More funding is being awarded for ME/CFS research in Austria

“It is important to us to bring together basic research and its relevance to patients. This requires an environment in which clinical practice and basic research collaborate directly. We have that here.”
tinyurl.com/2jhase93

discussion of the study, which investigated how inherited haptoglobin phenotypes influence post-exertional cognitive dysfunction in Long COVID. Plus connections to ME/CFS. [43 mins] +Transcript +Chapters
tinyurl.com/yxxcmsc8

Dr Jackie Junco explains what chronic inflammation is, and what people living with ME/CFS, long COVID, POTS, mast cell activation, and other chronic conditions can do to support their inflammatory health. [44 mins] +Transcript +Chapters
tinyurl.com/yh79rjpv

Willecke thought she would become the caregiver for her partner with progressive MS but as her ME and POTS has worsened he is now caring for her. "What I am extremely good at? Lie down! At least twenty-one hours a day."
tinyurl.com/pvf2stzt

The #MEAction Caregivers Support Group invites caregivers of people with ME/CFS or Long COVID (& associated conditions) to connect, share & support each other via zoom - third Sunday of the month. 17 Oct @ 6.30pm BST Contact [email protected]
tinyurl.com/563wad5x

Dr David Kaufman talks about Rebooting the System: mTOR, Autophagy, and Low Dose Rapamycin in ME/CFS. [31mins] +Transcript +Chapters
tinyurl.com/53tv3rem

OT Abby says only a few might improve and their recovery story might not tell you much about your journey. She says hope is important but change doesn't happen the same way for everyone.
tinyurl.com/3j9k8ey6

You can use this template from AfME to communicate how ME impacts you and what adjustments you need to access the services and support you are entitled to.
tinyurl.com/yy4d8puv

Bridge Between Continents Conference: Beyond the diagnosis, understanding complex chronic illness. Bringing together "leading Icelandic and international experts in ME, Long COVID, Environmental illness and POTS"

Live streamed in English Registration closes 20 Oct.
tinyurl.com/3v2r4wdr

Free online course: Ageism and age discrimination
As pwme age an additional experience of discrimination can come as a shock. Find out what ageism is, impact it has on older ppl & why it matters.
2 hrs of study with Open University & Older People’s Commissioner for Wales
tinyurl.com/3m8chear

28 year old Kieran spent his teenage years severely affected by ME. He said "everything shut down" as he felt "trapped inside" his own body. Gradually he began to improve and now has a job but considers himself to have mild ME.
tinyurl.com/2v6uumjn

Dr Brayden Yellman & Paige Zuckerman talks about 'A New View: Reorienting to the Neurocognitive, Neuroinflammatory, and Neuropsychiatric Symptoms in ME/CFS.'

[1 h 7mins] +Transcript +Chapters
tinyurl.com/3kbrcbhk

Severely ill & invisible: Living with ME/CFS.
Teens & siblings Anna & Moritz have very severe ME. They lie in darkened rooms only meters apart, yet they haven't seen each other for almost a year. Watch this short heart wrenching segment from a documentary about ME [4 mins 25]
tinyurl.com/yw6dp9cv

Dr Robert Phair talks about The itaconate shunt: a short circuit, two toxins, and a fuel leak [29 mins] +Transcript +Chapters
www.youtube.com/watch?v=RzRz...

DNS reports that disability minister has supported the UK Gov's “unprincipled” decision to slash accessible housing targets set by the last Conservative government where 100% of homes would have had to be built to the M4(2) accessible housing standard. The minimum is now 40%.
tinyurl.com/2v3rhrsd

Support for unpaid carer survey - share your experiences

On Thurs 15 Oct, Alison Bennett MP will lead a debate in Westminster Hall on support for unpaid carers.

Survey deadline: Wed, 14 Oct.
tinyurl.com/2zy37ant

MERUK gives an overview of research findings of ME/CFS core symptoms: Post-exertional malaise; Cognitive dysfunction (“brain fog”); Sleep dysfunction; Fatigue.

They conclude: ME/CFS is a complex & debilitating disease with a wide range of symptoms. The cardinal feature is PEM.
tinyurl.com/ymd4wbjz

Claire Jones, consultant physio, explains the approach taken by the Living Well Service in Betsi Cadwaladr UHB: focuses on ppl, not dx, combines rehab, advanced clinical practice, psychological support & prescribing, & measures success thru outcomes that matter to patients.
tinyurl.com/4cxzatpy

Unbound is a short dance film created by individuals living with ME/CFS and/or Long COVID, exploring the tension between constraint and expression, stillness and vitality. [6 mins]
tinyurl.com/2uxm6c8m