@tomkindlon.bsky.socialLiving a rock ‘n’ roll life: doing laps of the local green air (300 metres) to check battery length of my electric wheelchair! 😜
Didn’t get a great angle for this photo when I was taking one of many breaks lying on a bench.
#MEcfs #PwME #MyalgicEncephalomyelitis #SpoonieLife #ChronicLife
@fabulousphoenixboy.bsky.socialreally feeling the post-multiple-Fringes-crash + SAD motivation: file not found + exec dysfunction these past few days 😭
fellow #neurodivergent / #disabled / #spoonie creatives, do you relate?
if yes, do you have strategies to cope/fight back?
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@angioedemanews.bsky.social@angioedemanews.bsky.social
@msnewstoday.bsky.socialChronic illness jokes are my favorite coping mechanism. #SpoonieLife
@fabulousphoenixboy.bsky.socialslept less than 2hrs because MY SODDING FOREARMS are in sodding agony and won't let me forget they exist
2 Tramadols? like drinking fresh water 😭
now, to toss & turn some more, or to begrudgingly accept I'm awake, that is the question
#spoonie #SpoonieLife #ChronicPain #fibromyalgia #FibroWarrior
@ftkwellness.bsky.socialA story of mine—and many of us living with #Fibromyalgia...
Short-term memory issues, losing simple words, forgetting what you were doing or losing your train of thought in the middle of a conversation. #brainfog #FibroFog #spoonielife
Thanks to FibroWomen.com for this image.
@nevada-stray-cat.bsky.socialTook pain meds, had a nucrowave burrito to buffer the absorption, sat upright for a while while both digested. Going to try sleeping again.
@spoonkie.bsky.socialHad an Upper Endoscopy done this afternoon & my throat is feeling really sore afterwards.
Nurse is like get yourself a milkshake I'm like wish I could but alas lactose intolerant. 😂
@smartpatient.bsky.socialEvening symptom notes do not need to be perfect. A quick pain level, energy level, and one sentence about the day can still show useful patterns later. #SymptomTracking #HealthJournal #ChronicIllness #SpoonieLife
@smartpatient.bsky.socialOn flare days, your baseline may be completely different. Track what is realistic for today, not what you could do last week. That context matters. #FlareDay #ChronicIllness #SymptomTracking #SpoonieLife
@smartpatient.bsky.socialOn flare days, your baseline may be completely different. Track what is realistic for today, not what you could do last week. That context matters. #FlareDay #ChronicIllness #SymptomTracking #SpoonieLife
@smartpatient.bsky.socialOn flare days, the goal does not have to be productivity. It can be fewer decisions, gentler pacing, and recording enough context that future you has a clearer picture. #FlareDay #SpoonieLife #PacingYourself
@msnewstoday.bsky.socialI’ve learned to laugh at the absurdity because the alternative is crying full-time. #SpoonieLife
@smartpatient.bsky.socialIf your medication schedule feels hard to remember, pair it with something already in your day: breakfast, brushing teeth, or bedtime. Then log doses so missed patterns are easier to spot. #MedicationReminder #HealthTracking #SpoonieLife #ChronicWarrior