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@behavioralhealth.bsky.socialOct 6, 2026, 5:30 PM

A 20-year journey through misdiagnosis and depression ended with a new diagnosis, a new treatment, and a life reclaimed – a powerful reminder to keep seeking answers.

#MentalHealthAwareness #DepressionRecovery #PatientAdvocacy

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@smartpatient.bsky.socialOct 6, 2026, 12:30 PM

Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.

#PatientAdvocacy #ChronicIllness #HealthTracking

@citizenptnewsga.bsky.socialOct 6, 2026, 11:23 AM

Georgia lawmakers heard shocking testimony revealing a staggering $245 million gap in pharmacy payments, raising urgent questions about the future of local pharmacies and patient care.

Click to read more!

#GA #CitizenPortal #PharmacyClosures #GeorgiaPharmacy #PatientAdvocacy #HealthcareAccess

@citizenptnewsal.bsky.socialOct 6, 2026, 9:57 AM

A young man's fight for life takes a turn as Blue Cross Blue Shield reverses its denial for critical rehabilitation after a compelling investigative report highlights the devastating impact on his recovery.

Get the details!

#AL #PatientAdvocacy #InsuranceReform

@smartpatient.bsky.socialOct 5, 2026, 7:30 PM

Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.

#PatientAdvocacy #ChronicIllness #HealthTracking

@dantedkingofficial.bsky.socialOct 4, 2026, 8:30 PM

What happens when two surgeons recommend operating on your loved one—but cannot clearly show you the medical evidence proving that surgery will actually repair the damage?

www.youtube.com/watch?v=kqcT...

#MedicalGaslighting #BlackHealth #PatientAdvocacy #QuestionAuthority #KingsCourt

@smartpatient.bsky.socialOct 4, 2026, 5:30 PM

Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.

#PatientAdvocacy #ChronicIllness #HealthTracking

@psor.orgOct 3, 2026, 10:36 AM

No government grants. No pharmaceutical funding. Just volunteers, lived experience, and the conviction that people with psoriatic disease deserve better.

That's Psoriatic Disease UK. And we're not going anywhere.

psor.org | #PsoriaticDisease #NHSWaitingLists #PatientAdvocacy

@smartpatient.bsky.socialOct 3, 2026, 10:17 AM

If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.

#ChronicIllness #PatientAdvocacy #Spoonie

@madintheuk.bsky.socialOct 3, 2026, 7:39 AM

My Mother Had to Be Dying Before Anyone Would Take Her Off the Drugs
By Kat Vu

madintheuk.com/2026/09/my-m...

#AkathisiaAwareness #MedicationSafety #Deprescribing #PatientAdvocacy #MentalHealth

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@iamcharleneyoung.bsky.socialOct 2, 2026, 10:01 PM

*This workshop was funded by the European Union 🇪🇺

#IAmCharlene #PPIE #Workshops #PatientPublicInvolvement #HealthResearch #ClinicalTrials #PatientAdvocacy #PhDStudents #PatientEngagement #EDI #Researchers

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@npaforg.bsky.socialOct 2, 2026, 7:20 PM

"It's not a safety net, but a system we're constantly trying to find our way into while being told there's no room."

The full conversation from our Medicaid Decoded Policy Consortium is now live: youtu.be/gPE4C49CLRw
#MedicaidDecoded #PolicyConsortium #PatientAdvocacy #GetCovered

@buttahflyk.bsky.socialOct 2, 2026, 2:02 PM

... messaging can come across as insensitive or hurtful to patients, and how pharma and industry leaders can do better.
🦋
#AWNY26 #ChronicIllness #PatientAdvocacy #PatientVoice #SpoonieSky
newyork2026.advertisingweek.com/aw/schedule/...

@madintheuk.bsky.socialOct 1, 2026, 11:14 AM

My Mother Had to Be Dying Before Anyone Would Take Her Off the Drugs
By Kat Vu

madintheuk.com/2026/09/my-m...

#AkathisiaAwareness #MedicationSafety #Deprescribing #PatientAdvocacy #MentalHealth

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@smartpatient.bsky.socialOct 1, 2026, 10:46 AM

Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.

#PatientAdvocacy #ChronicIllness #HealthTracking

@breakingnews06.bsky.socialOct 1, 2026, 9:09 AM

Son who used AI to help save mum's life hopes case unlocks clues for other Parkinson's patients #Parkinsons #AIInHealthcare #ClinicalTrials #HealthTech #PatientAdvocacy

@angioedemanews.bsky.socialSep 30, 2026, 2:06 PM

#HAE #HereditaryAngioedema #RareDisease #HumanSideOfRare #RareDiseaseAwareness #HAEAwareness #ChronicIllness #PatientAdvocacy #RareCommunity #HAEForum #BioNews #AngioedemaNews

@cancercoachusa.bsky.socialSep 30, 2026, 10:01 AM

You don’t have to become your own medical expert. Being informed enough to ask questions, understand your options, and participate in decisions is powerful. #PatientAdvocacy #cancer #oncosky #cansky

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@stillrollingoutdoors.comSep 30, 2026, 12:16 AM

In the case of drug induced #nutrient #depletion, it's more about mechanics and physics. It's a #leak in the bucket holding what's needed for baseline #function.

buff.ly/wTF6LxO

#ChronicIllness #Meds #PatientAdvocacy

@smartpatient.bsky.socialSep 29, 2026, 7:30 PM

If your doctor ever tells you it's all in your head, find a new doctor. Your symptoms matter. Your experience matters. Keep advocating for yourself.

#ChronicIllness #PatientAdvocacy #Spoonie