@europeanlung.bsky.social📣 One week to go: https://us02web.zoom.us/meeting/register/n2DTwrvoQhKwX7xNyek30A#/registration
Want to influence the European Lung Foundation's future priorities and activities?
Join our Annual Stakeholder Meeting online on 15 October and help shape the future of lung health!
@psych-strata.bsky.socialWhy do patient voices matter in mental health research?
People with lived experience bring insights that data alone cannot capture.
Learn more: psych-strata.eu
#PsychSTRATA #PatientVoice #MentalHealth
@broadinstitute.org @kingscollegelondon.bsky.social @mpi-psychiatry.bsky.social @uni-muenster.de
@teamtouchdesign.bsky.socialA powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
🎟 Register: https://tinyurl.com/426cvk5h
🎬 https://ow.ly/rOys50ZBp5Z
#PatientExperience #PatientVoice #NHS
@ikccorg.bsky.social🌍 The 5th Global Patient Survey on Kidney Cancer
This year marks an important milestone: 10 years of collecting data on the experiences of people living with kidney cancer. 💙
Your experience matters. Add your voice and take part in the survey today: buff.ly/7mCplWI
@teamtouchdesign.bsky.socialA powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
🎟 Register: https://ow.ly/2pnj50ZBpkc
🎬 https://ow.ly/cuRw50ZBpke
#PatientExperience #PatientVoice #NHS
@ipopi.bsky.socialIPOPI was pleased to join the K-POINT scientific forum in Rome on 29–30 September, bringing together international experts in immunology and hema-oncology to discuss some of the key challenges in PIDs and SIDs.
@kidneycareuk.bsky.socialIt's been a busy few days at the Labour Party Conference. We were there to make sure kidney disease & the experiences of our patient community remain firmly on the health agenda. We continue to champion the voices of those affected & push for the changes that matter.
#PatientVoice
@buttahflyk.bsky.social... messaging can come across as insensitive or hurtful to patients, and how pharma and industry leaders can do better.
🦋
#AWNY26 #ChronicIllness #PatientAdvocacy #PatientVoice #SpoonieSky
newyork2026.advertisingweek.com/aw/schedule/...
@carolefogg.bsky.socialthis is brilliant #PatientVoice
@mi4innovates.bsky.social🎤Meet Ildiko Mehes at the 8th MI4 Symposium.
Attorney, healthcare leader, IBD advocate, and parent, Ildiko will share the patient perspective in her talk: "It's Time to Change Tack in IBD Thinking."
@pscsupport.bsky.socialFor #NationalPoetryDay, a community member diagnosed with PSC & UC at 13 shares how writing poetry in hospital waiting rooms became a vital outlet.
Watch & listen to them read their moving poem set to a sun-dappled backdrop 👇
#PatientVoice #PSCSupport
@teamtouchdesign.bsky.socialA powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
🎟 Register: https://tinyurl.com/426cvk5h
🎬 https://ow.ly/rOys50ZBp5Z
#PatientExperience #PatientVoice #NHS
@autopix.bsky.social📺 Watch it directly on our YouTube channel:
https://www.youtube.com/@AutoPiXproject
Don’t miss it!
#AutoPiX #IHI #ArtificialIntelligence #AI #Rheumatology #PatientEngagement #DigitalHealth #MedicalImaging #ClinicalResearch #PatientVoice #PRP
@longcoviduk.bsky.social📝 Please support the APPG if you can by writing to your MP and encouraging them to attend this meeting!
#LongCovid #APPG #LongCovidAwareness #Parliament #PatientVoice #LongCovidUK
@melanomafocus.bsky.socialOnline engagement events are also taking place on 14 October for children and young people, and on 15 October for everyone else.
Your experience matters. Help shape the future of cancer care in Wales 💙
#MelanomaFocus #CancerCare #Wales #CancerSupport #PatientVoice
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@nnhla-natcan.bsky.socialOur 2026 State of the Nation Infographic provides a helpful overview of the key findings arising from our 2026 report. Take a look here:https://buff.ly/pM1CYxN
#BloodCancerAwarenessMonth #BCAM #Cancer #September #NHL #NNHLA #Audit #ClinicalAudit #NATCAN #patientvoice #StateoftheNation
@teamtouchdesign.bsky.socialA powerful patient story that is changing healthcare conversations. Join our free #LexisLetter webinar on 15 October and hear from Lexi's family, NHS leaders and the team behind the project.
🎟 Register: https://ow.ly/2pnj50ZBpkc
🎬 https://ow.ly/cuRw50ZBpke
#PatientExperience #PatientVoice #NHS
@lumanity.bsky.socialEvery voice in rare disease carries a story—and every story has the power to change things. Watch the full Voices of Rare Disease series: lumanity.com/perspectives...
@meassociation.org.uk📢 Help shape the future of care for ME/CFS and Long Covid!
The HERITAGE study is looking for people with lived experience of ME/CFS and Long Covid to take part in our study!
Get involved:
🔗 https://heritage.leeds.ac.uk/join/
#MECFS #LongCOVID #Research #PatientVoice #HealthcareResearch
@nnhla-natcan.bsky.socialWe are honoured to work alongside you in seeking better care and outcomes for those with a dignosis of non-Hodgkin Lymphoma.
#BloodCancerAwarenessMonth #BCAM #Cancer #September #NonHodgkinLymphoma #NHL #NNHLA #Audit #ClinicalAudit #NATCAN #patientvoice #charity