Discover more: https://bit.ly/4jaBz20

Columnist Kristin Neva pauses to reflect on the uncertainty of living with ALS, even as she commits to making memories with her husband.

#ALS #ALSNewsToday #Bionews #ALSCommunity

Take a closer look: https://bit.ly/3TCmdcf

Keynote speaker Mindy Henderson redefines "impossible" ahead of MDA Engage: Chicago, taking place Sept. 25-26 at the Westin Chicago Lombard.

#ALS #ALSNewsToday #Bionews #ALSCommunity

“Hearing from others who’d lived through those same emotions and could both normalize them and offer practical advice felt like the ultimate gift of empathy and compassion” -Juliet Taylor: https://bit.ly/44bgFI2

#ALS

When “How are you feeling?” is always a complicated question as a patient or caregiver. 😅

Living with ALS or caring for someone who is? Connect with others who get it: https://bit.ly/4rcO8vI

#ALS #ChronicIllness #Bionews #ALSNewsToday #Disability

🧬 The phase 2 HIMALAYA trial found no evidence that RIPK1 inhibition could slow functional decline in #ALS

📊 At week 24, ALSFRS-R change was −6.73 with SAR443820 vs −6.32 with placebo

Read 👉 www.neurologylive.com/view/ripk1-i...

#Neurology #ClinicalTrials #BrainHealth #Placebo #Neuro #Phase2

Get the scoop: https://bit.ly/4AiSiX1

A fitness routine columnist Dagmar Munn developed for a wellness project became a core part of her own exercise regimen after her diagnosis.

#ALS #ALSNewsToday #Bionews #ALSCommunity

Sandra Bullock talks about her years as a #caregiver to a partner with #ALS.
Starts around 20 mins in. podcasts.apple.com/ca/podcast/s...

“Each of us develops our own means of coping with heartbreak” -Juliet Taylor: https://bit.ly/4a8B2cF

#ALS

Take a closer look: https://bit.ly/4heYC9u

The 100th participant has been enrolled in a Phase 2/3 clinical trial testing COYA 302, Coya Therapeutics’ experimental therapy for ALS.

#ALS #ALSNewsToday #Bionews #ALSCommunity

Get the scoop: https://bit.ly/4xYhTD7

Five Canadian students personally affected by ALS each received $2,500 from ALS Canada's Kevin Daly Bursary.

#ALS #ALSNewsToday #Bionews #ALSCommunity

This experience has many layers, and you’re navigating them the best way you can.

#ALS

Have you ever wondered if a devastating diagnosis could actually change your life for the better?

This week, I was reflecting on a column over at ALS News Today by my Bionews colleague Dagmar Munn - https://bit.ly/4xxJQRp

#HumanSideOfRare #RareDisease #ALS #FriedreichsAtaxia

Discover more: https://bit.ly/4dIiC39

A filmmaker with amyotrophic lateral sclerosis (ALS) is working with his friends to finish a documentary about death.

#ALS #ALSNewsToday #Bionews #ALSCommunity

ALS is still incurable—but there is real hope.

In our latest podcast, Dr. Ileana Howard explains ALS, current treatments, exercise and rehabilitation, and practical ways to help maintain independence and quality of life.

Watch now: youtu.be/uo9vBuM6K_c
#ALS #ALSAwareness #BobAndBrad

🆕New in #JEV🆕 Neural Stem Cell-Derived Extracellular Vesicles Improve CNS Delivery and Therapeutic Efficacy of Antisense Oligonucleotide in Amyotrophic Lateral Sclerosis #extracellularvesicles #als #drugdelivery #neuralstemcells isevjournals.onlinelibrary.wiley.com/doi/epdf/10....

Here’s a glimpse of how to live with #ALS in New York City.

Donate: iamals.donordrive.com/participant/...

Take action: www.iamals.org/progress

#EndALS #ALSAwareness #MND @iamals.bsky.social

Inspired by HBO’s How To with John Wilson
@hbomax.bsky.social @hbo.bsky.social

Throwback Tuesday 🔙🎙️

Revisiting ALS: early signs, diagnosis challenges, treatment, and planning for quality of life.

🎧 Listen https://every1dies.org/2021/s2e24-als-part-2-what-to-expect-for-diagnosis-and-disease-management/

#ALS #SupportiveCare #EveryoneDiesPodcast