@iamals.bsky.social

@iamals.bsky.social

I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.

@iamals.bsky.social

“What the heck is ALS? Why is my body failing me? What do I tell my family?”

The latest Let’s Talk About It: A Mental Health Series conversation is Oct 22 at 6 PM ET, with the Many Shades of ALS Community Team and guests from Loma Linda University Health.

RSVP: bit.ly/letstalkALS

A digital flyer for a mental health conversation event titled "Let’s talk about it," hosted by the Many Shades of ALS Community Team. Scheduled for October 22 at 6 PM ET, the event features Melissa Harris, a Clinical Therapist, and Jeffrey Rosenfeld, a Professor of Neurology. RSVP information is provided as a URL: bit.ly/letstalkALS. The flyer includes the I AM ALS logo.
@iamals.bsky.social

Thank you, Rebel, Rebecca Gayheart Dane, Erin Taylor, Katie Couric, and Erin Tatum for advocating for ACT for ALS! 🙌 They've used their platforms to bring thousands of new people into this movement and strengthen our calls for progress towards a cure.

@iamals.bsky.social

🚨 ACT for ALS passed Congress, but hasn't reached the President's desk yet.

Once it does, he has 10 days to sign it. If he doesn't sign after day 10, the bill automatically becomes law.

We'll update you once anything changes. For now, thank your lawmakers: bit.ly/A4A-TY

The image is an announcement with siren icons at the top. It states the tracking of the ACT for ALS bill, mentioning the President has 10 days to sign it once it reaches the desk. If not signed, it becomes law after 10 days. The bill hasn't left Congress yet. It encourages reminding Congress of support and includes a link: bit.ly/A4A-TY. The "I AM ALS" logo is in the corner.
@iamals.bsky.social

We are deeply saddened by the passing of our dear friend and community member, Pat Dolan.

Pat broke many of the most overwhelming barriers in the ALS landscape. He built Pat's maps and founded GeoALS to connect people with ALS to care and research.

We'll miss you, Pat.
www.geoals.org/about

Pat Dolan smiling while lying on a pillow, wearing a blue shirt and a tracheostomy tube.
@iamals.bsky.social

Thank you to our Legislative Affairs Team for leading our work to reauthorize ACT for ALS! This community sent 95,000+ emails to lawmakers this year, and Congress heard us. The bill passed unanimously last week. Leave a note for the team below 👇

The image features a message from the I AM ALS community, highlighting the sending of over 95,000 emails to Congress to support the ACT for ALS initiative. Three individuals are shown: Garrett May, Troy Fields, Jack Silva, and Teri McCormick, all of whom are co-chairs or advocates for ALS, with brief personal connections to the cause mentioned. A note at the bottom acknowledges the contributions of the Legislative Affairs Team. The I AM ALS logo is present.
@iamals.bsky.social

Meet Jenny 🏃👟🏃

Jenny DeVaughn is training for her first marathon, the TCS NYC Marathon on Nov. 1. We're so lucky to have her on Team I AM ALS.

"I would be honored to carry their courage across that finish line."

Cheer Jenny on at bit.ly/JennyIAA

@iamals.bsky.social

ACT for ALS passed because champions like Steve Gleason refused to take "later" for an answer. Steve, we are so lucky to have you. Thank you for everything you've done to keep ACT for ALS a priority.

Thank your legislators for passing ACT for ALS → bit.ly/A4A-TY

@iamals.bsky.social

A HUGE thank you to our ALS congressional champions for getting ACT for ALS across the finish line this week!

Our community has been advocating for this critical ALS legislation for years.

Let Congress know how much we appreciate their support. Continue thanking YOUR legislators at bit.ly/A4A-TY

@iamals.bsky.social

Community, Meet Kellie! 🏃‍♀️🎽

After her father, Brian, was diagnosed with bulbar-onset ALS in 2022, Kellie felt drawn to the ALS movement.

Kellie is close to the halfway mark, and YOU can help get her closer to hitting her goal. Support Kellie → bit.ly/KellieIAA

@iamals.bsky.social

As we round up this incredible week of wins, a huge thank you to AEW, AEW Together, and 1FW for being dedicated partners in the movement to end ALS!

Thank you for your advocacy!

Want to join Rebel in the ring? Step in → bit.ly/withRebel

@iamals.bsky.social

The Senate passed ACT for ALS! As we await the President's signature, we honor those who advocated, testified, and told their stories but didn't live to see this day. Their courage is written into this law. We carry their names with us. Rest in power. #ACTforALS #EndALS

@iamals.bsky.social

We are heartbroken to announce that our friend Brooke Eby has passed away. She changed the world. We will always remember how she contributed to the movement and lived fully and unapologetically: "Through the support of my family, friends, and work, I’ve been able to laugh in the face of ALS."

@iamals.bsky.social

ACT for ALS has always been a community effort, and we couldn't be prouder to stand with you in this movement. Let's celebrate what we've accomplished together! Tell us how you feel now that ACT for ALS has FINALLY passed Congress in the comments ↓

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