@patientlibrary.bsky.social
Open access evidence base for patient experience, lived experience, patient/public involvement. www.patientlibrary.net
@drmroz.bsky.socialReposted by @patientlibrary.bsky.socialFacilitators and barriers to patient and public involvement in developing learning health systems within community health services: ascoping review | Research Involvement and Engagement | Springer Nature Link link.springer.com/article/10.1...
@patientlibrary.bsky.socialA must-read here from @drlizamorton.bsky.social
#PatientExperience
@patientlibrary.bsky.socialNHS clinicians, finance managers, HR staff all have qualifications. But #PatientExperience staff are largely unsupported - until now.
New professional development course from @bsmsmedschool.bsky.social :
www.bsms.ac.uk/postgraduate...
@healthwatchengland.bsky.social @nationalvoices.bsky.social
@patientsafetylearning.orgReposted by @patientlibrary.bsky.socialšIn a new blog on the hub, Victoria Wilkins from @nhsresolution.bsky.social highlights insights from four pilot trusts who recently shared their progress and learning from implementing Marthaās Rule. www.pslhub.org/learn/improv...
@patientlibrary.bsky.social"Why I'm involved in this course and why you should be too".
Miles Sibley from @patientlibrary.bsky.social on the professional development course for #PatientExperience staff being offered by @bsmsmedschool.bsky.social
preview-bsms-brighton-uni.cloud.contensis.com/Preview/1/ab...
@drmroz.bsky.socialReposted by @patientlibrary.bsky.socialBest practices for engaging lived experience experts in dialogues about climate change and mental health: lessons learned from a global effort | BMC Global and Public Health | Springer Nature Link link.springer.com/article/10.1...
@publicservomb.bsky.socialReposted by @patientlibrary.bsky.socialNew data shows written complaints about the health service rose 18.9% last year, to a record 305,264. Communication was the most common reason: www.gov.uk/government/s...
We see the same in our casework. Listening to patients and communicating clearly is key to good public services.
@careopinion.org.ukReposted by @patientlibrary.bsky.socialAs today is #WorldValuesDay we thought we would share @careopinion.org.uk company values. They are at the heart of what we do and guide us through our mission. To read more about our vision, mission and values follow the link www.careopinion.org.uk/info/mission
@drmroz.bsky.socialReposted by @patientlibrary.bsky.socialCo-designing engagement principles for involving children and young people in palliative care research in low- and middle-income settings | Research Involvement and Engagement | Springer Nature Link link.springer.com/article/10.1...
@sharonhodgsonmp.bsky.socialReposted by @patientlibrary.bsky.socialToday, I called on the government to stop the stalemate and finally give the victims of mesh the justice they deserve. Every day of delay is a day of justice denied.
@patientlibrary.bsky.socialFind out how patient and carer experience can drive improvements in healthcare quality, safety and equity.
New professional development course from @bsmsmedschool.bsky.social on offer here:
www.bsms.ac.uk/postgraduate...
@nationalvoices.bsky.social @patients-association.org.uk
@patientsafetylearning.orgReposted by @patientlibrary.bsky.socialš¬Trusts have improved communication by giving patients and families clearer guidance on the routes available to raise concerns that may not relate to Marthaās Rule but are still important to hear.š¬
Marthaās RuleāLearning from others - a new blog on the hub. www.pslhub.org/learn/improv...
@amyloidosisuk.bsky.socialReposted by @patientlibrary.bsky.socialAmyloidosis does not only weigh on the patient. š It can also weigh on the person who remembers, organises, worries, supports, and keeps going quietly. š¤² This is the invisible load of Amyloidosis. We want to make it visible.
š¬ Does this resonate with you?
@peopleshealthtrust.bsky.socialReposted by @patientlibrary.bsky.socialDrawing on more than a decade of evidence from Peopleās Health Trust's programmes and authored by Dr Kate Fryer, our new report explores the relationship between community power, wellbeing and health inequalities.
Read the full reportš
@healthwatchoxfordshire.co.ukReposted by @patientlibrary.bsky.socialTwo weeks today! Come along to our webinar, "What makes a successful Patient Participation Group?", Tuesday 27th October 1pm-2pm.
With practical advice, real examples and shared learning from people helping PPGs make a positive impact across Oxfordshire: healthwatchoxfordshire.co.uk/our-webinars
@patientlibrary.bsky.socialHow can a "patient-centred" and "evidence-based" NHS put patient voice front and centre of its work?
@bsmsmedschool.bsky.social is providing answers and practical support. More here:
www.bsms.ac.uk/postgraduate...
@hssib.bsky.socialReposted by @patientlibrary.bsky.socialNew investigation launched. We are keen to hear from patients, families, carers and health and care professionals who may wish to share their experience.
Find out more and get involved: buff.ly/CNN9uUN
#PatientSafety #NHS #Healthcare #MaternityCare #MentalHealth
@tandemkate.bsky.socialReposted by @patientlibrary.bsky.socialReading some complaints procedures as part of some research Iām doing. So far this is my āfavouriteā - it shouts at anyone whoās thinking of complaining and puts them off!
@kghlibrary.bsky.socialReposted by @patientlibrary.bsky.socialWomen āmore likely to be told autoimmune conditions are psychologicalā
www.theguardian.com/society/2026...
@trishaelliott.bsky.socialReposted by @patientlibrary.bsky.socialA patientās perspective in the @bmj.com.
Being told that your tests are all normal isnāt always the reassuring message that the doctor hoped it would be.
Please listen to people! Their experiences are valid even if the tests are negative.
