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Patients Association

@patients-association.org.uk

420 Following1.4k Followers

We are an independent charity campaigning for patient partnership. For our social media community guidelines, see: https://bit.ly/3X9Hd83

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@patients-association.org.ukOct 12, 2026, 5:38 AM

📊 76% felt like an equal partner in decisions
⏱️ 76% felt they had enough time
💬 85% felt comfortable speaking to their link worker
🔗 90%+ were connected to services they didn’t previously know about

Read the reports: buff.ly/KDtIHuu

@patients-association.org.ukOct 12, 2026, 5:38 AM

What makes social prescribing work for patients? Our research, commissioned by the National Academy for Social Prescribing found that patients valued the time, listening and individual support they received from Social Prescribing Link Workers.

More than three-quarters
of patients (76%) reported they felt like an equal partner in decisions about their care made with their link worker.
@patients-association.org.ukOct 9, 2026, 3:12 PM

Decisions about bladder and bowel care should put patients’ individual needs first.

Our free webinar on Wednesday with Coloplast UK to hear about patients’ experiences and the importance of shared decision-making

📅 Book your place: buff.ly/moo26vq

@patients-association.org.ukOct 9, 2026, 7:26 AM

How we can move away from consent being treated as a form or tick-box exercise and towards a culture where patients feel able to speak up and where healthcare professionals genuinely listen?

Join our free webinar, delivered in partnership with Radar Healthcare, to find out: buff.ly/0QqmAs7

@patients-association.org.ukOct 8, 2026, 3:00 PM

Read the reports here: www.patients-association.org.uk/patients-exp...

@patients-association.org.ukOct 8, 2026, 3:00 PM

As social prescribing develops, patients' experiences should remain central to decisions about how it is delivered. That means listening to what patients say works, understanding where there are barriers, and making sure the model reflects the needs and preferences of patients

@patients-association.org.ukOct 8, 2026, 3:00 PM

Our research, commissioned by the National Academy for Social Prescribing (NASP), found that patients valued the time, listening and individual support they received from Social Prescribing Link Workers ♥️

@patients-association.org.ukOct 8, 2026, 3:00 PM

⭐ Social prescribing can make a significant difference to people’s health and wellbeing.

It's just better than anything else as it is personal and not self serving. If the NHS put folk like my social prescriber in charge you'll have a NHS to be proud of.Genuinely the best interaction within the NHS in my life. (My link worker) is fantastic and changed my experience completely around for the bestI recommend social prescribing to anyone I meet who is struggling,  typically those who are sole unpaid carers for family members.
@patients-association.org.ukOct 8, 2026, 11:46 AM

Really great to see so much amazing work in improving patient experience across health and care! @pickereurope.bsky.social

@patients-association.org.ukOct 7, 2026, 11:44 AM

Are you getting the bladder and bowel care that’s right for you?

Join our free webinar to hear patients’ experiences of accessing products and services, explore the importance of shared decision-making and find out how new resources can help you understand your rights.

Book now: buff.ly/moo26vq

@patients-association.org.ukOct 6, 2026, 8:10 AM

Yesterday our Head of Partnerships and Involvement @sarahtilsed.bsky.social shared at this session at the Conservative Party Conference about putting patient experience at the heart of delivering the National Cancer Plan

Sarah Tilsed speaking on a panel at the Conservative Party Conference
@patients-association.org.ukSep 29, 2026, 6:56 AM

Download the translated guides: buff.ly/GuqJPym

We also translated our animation voiceover into Punjabi: buff.ly/IEBeDmx

@patients-association.org.ukSep 29, 2026, 6:56 AM

Know your rights as a patient and understand what help you can get in our guide - now translated into Arabic, Bengali, Portuguese, Romanian and Urdu! Thank you to Novartis UK for funding the translation of this work.

@patients-association.org.ukSep 28, 2026, 4:40 PM

And this afternoon Rachel spoke about the National Cancer Plan and the vital importance of designing services with patients, and in a way that specifically targets delays and unfairness in waiting times. If you see her, do say hi, we'd love to speak with you! 👋

@patients-association.org.ukSep 28, 2026, 4:40 PM

Our Chief Executive @rachel-p.bsky.social is at Labour Party conference this week and today was speaking on two panels.

The first was with RCGP and @rcphysicians.bsky.social about neighbourhood health and what it will take to get it right for patients. #LAB26

@patients-association.org.ukSep 28, 2026, 4:38 PM

Thank you for sharing!

@patients-association.org.ukSep 28, 2026, 5:38 AM

At this free webinar, you'll hear about patients' experiences of accessing bladder and bowel products and services, including some of the challenges people face in getting care that meets their individual needs.

Sign up: buff.ly/BijgGjK

@patients-association.org.ukSep 25, 2026, 7:26 AM

Too often, neurodivergent south Asian women are dismissed or misunderstood in healthcare. Patient advocate Mala shares why inclusion, empathy, and small changes can transform trust and outcomes.
👉 Read her blog: buff.ly/4F0sx8a #ESEA Heritage Month

@patients-association.org.ukSep 24, 2026, 8:10 AM

👋 Our free membership brings you to the heart of our campaign for improvements in health and social care. Sign up today: buff.ly/2kFknqW

Join our free membership!
@patients-association.org.ukSep 23, 2026, 10:50 AM

Patient consent is much more than signing a form and saying yes.

Join our free webinar, in partnership with Radar Healthcare, to explore what meaningful consent looks like in practice on 21 October, at 4pm

Book now: buff.ly/z6CrLUv

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