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Care Opinion

@careopinion.org.uk

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We want people to be able to share their experiences of health and care in ways which are safe, simple, and lead to learning and change.

Care Opinion CIC (non-profit) | https://www.careopinion.org.uk

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@careopinion.org.ukOct 13, 2026, 10:07 AM

More than 2,600 people have shared their experience of baby loss on Care Opinion, in their own words. For #BabyLossAwarenessWeek, we looked across these stories, and five words appeared most often: compassion, care, kindness, staff and empathy. Swipe through to read a quote for each.

@careopinion.org.ukOct 9, 2026, 3:02 PM

This #HospiceCareWeek our latest blog looks at what Care Opinion means to the team at St Margaret of Scotland Hospice, and how they make it part of everyday life. Thank you team and patients for your ongoing commitment to Care Opinion stories
Read the full blog www.careopinion.org.uk/blogposts/14...

Care Opinion graphic for #HospiceCareWeek2026. A quote from story author maxineb87 reads: “Every member of staff went above and beyond to make sure she was comfortable, cared for and surrounded by compassion.” Beside it is an illustration of a smiling nurse with a stethoscope, her arm around an older woman wrapped in a shawl, holding her hand.
@patientlibrary.bsky.socialOct 6, 2026, 1:54 PMReposted by @careopinion.org.uk

NHS clinicians, finance managers, HR staff all have qualifications. But #PatientExperience staff have had to muddle through - until now.

New professional development course from
@bsmsmedschool.bsky.social: preview-bsms-brighton-uni.cloud.contensis.com/Preview/1/ab...
@jessiecunnett.bsky.social

Photo, no description
@careopinion.org.ukOct 7, 2026, 11:19 AM

Explore our most recent blog looking back at a lunchtime session we held in August for HSCP colleagues. This session explored how @careopinion.org.uk can support listening, learning and improvement across health and social care. Read the blog: www.careopinion.org.uk/blogposts/14...

What's your story?" in a white circle on a pink background. Text reads: How Care Opinion can support listening, learning and improvement in HSCPs. An online event for Health and Social Care Partnerships.
@careopinion.org.ukOct 6, 2026, 1:14 PM

Today is #WorldCPDay!

At Care Opinion, we created a word cloud from stories shared by people with cerebral palsy, their families and supporters, to look at what they feel could be improved in health & social care.

What change would you like to see? 💬🗨️

Share your story at www.careopinion.org.uk.

Word cloud on a white background with a pink and purple border, titled #WorldCerebralPalsyDay2026. The largest word by far is "communication". Other prominent words include "waiting time", "staffing", "not treated", "information", "cancellation", "treatment", "staff attitude", "attitude", "accessibility", "stress", "doctor care" and "facilities". Smaller words include "not listened to", "disability awareness", "access to equipment", "hoist", "patient transport", "hospital discharge", "lack of support", "empathy", "good care" and "good service". The Care Opinion logo with the tagline "What's your story?" sits in the bottom right corner.
@careopinion.org.ukOct 2, 2026, 12:27 PM

Today we share a story from a young person describing how the support from the WEST team at Herefordshire and Worcestershire Health and Care NHS Trust enabled them to feel more confident to go to school.
Read the full story: www.careopinion.org.uk/1473706

Image of the Care Opinion Bear alongside a quote from the story that reads: “I liked having someone to speak to and I liked all the techniques I got and they really helped me ... I felt a lot better after that and I realised the bad perspective isn't true and when I faced my fears they got easier.”
@careopinion.org.ukOct 1, 2026, 1:17 PM

Happy #NationalPoetryDay! People share stories about their health and care experiences on @careopinion.org.uk in their own words, and sometimes those stories take the form of a poem. Read this blog reflecting on some of the poems: www.careopinion.org.uk/blogposts/10...

A quote from a poem shared on Care Opinion, written in purple text on a white background with a drawing of a feather quill: "so now we want to let you know how great you been high and low so celebrations now from us to you for all the wonders that you do". Author, poemCRB. The Care Opinion logo is at the bottom.
@careopinion.org.ukSep 24, 2026, 10:24 AM

This week is #OrganDonationWeek. We share this heartfelt story from a daughter about her experience of donating a kidney to her Dad.
🔗 www.careopinion.org.uk/1464722

mage of a nurse caring for a patient in a hospital bed. Quote from story reads "Donating a kidney to my dad was one of the biggest and most emotional experiences of my life and from the very beginning I felt that I was in the safest possible hands.” #OrganDonationsWeek
@careopinion.org.ukSep 22, 2026, 1:02 PM

As part of #OccupationalHealthAwarenessWeek, we'd like to share a visualisation from @careopinion.org.uk. These are the words people chose most often to describe how they felt from the stories shared about occupational health. Read the full stories: www.careopinion.org.uk/opinions?tcx...

A word cloud showing tags people chose to describe how they felt in stories about occupational health, with the Care Opinion logo in the corner. Word size shows how often each tag was used. The largest, most frequent words are supported, thankful, listened to, thank you, and grateful. Medium-sized words include cared for, reassured, informed, fantastic, positive, and looked after. Smaller, less frequent words cover a wider mix of feelings, both positive and negative, including confident, encouraged, relaxed, comfortable, empowered, motivated, valued, proud, anxious, frustrated, exhausted, overwhelmed, dismissed, ignored, unheard, scared, and shocked.
@careopinion.org.ukSep 21, 2026, 12:57 PM

This #MigraineAwarenessWeek theme is #BelieveMe. This author highlights the importance of being believed and listened to in relation to their Migraines.
Read the full story:
🔗 www.careopinion.org.uk/1443011

Image of someone holding their head in pain. Story quote reads: “Being believed & listened to is so important to everyone, add on other health problems & it is not easy.
@careopinion.org.ukSep 17, 2026, 1:59 PM

In recognition of #WorldPatientSafetyDay, we're sharing one of our past Research Chats. @jamesfm55.bsky.social was in discussion with Alex Gillespie & Tom Reader about their paper 'Online patient feedback as a safety valve'. Read the blog & watch the recording: www.careopinion.org.uk/blogposts/10...

Care Opinion Research Chat 16 graphic. Title: "Identifying unnoticed or unresolved safety issues: what can we learn from online patient feedback?" Subtitle: James Munro in conversation with Alex Gillespie and Tom Reader, LSE. Decorative magnifying glass and speech bubble icons in pink and dark purple, with a row of abstract person icons along the bottom.
@careopinion.org.ukSep 14, 2026, 11:13 AM

"I'm not sure where to start, or just how much to share."

That's how one service user started their story on Care Opinion. They named each team across #NHSA&A & @nhsggc.bsky.social who cared for them individually, determined not to forget anyone. Read the full story: www.careopinion.org.uk/1468052

Quote graphic on a white background with a magenta Care Opinion banner at the bottom. Text reads: "I have thanked everyone involved in my care profusely and sincerely as much as I can, but still feel it won't convey my (or my family and friends) genuine gratitude from the staff of my diagnosis and treatment around two years ago!" An illustration of five healthcare workers. The Care Opinion logo and tagline "What's your story?" appear in the bottom banner.
@careopinion.org.ukSep 10, 2026, 11:36 AM

Behind every suicide prevention story are people. This story shows a couple's strength in getting through a mental health crisis including suicidal thoughts, with the support of @ttherapiesrdash.bsky.social Home Treatment Team. Read the story and inspiring response: www.careopinion.org.uk/1463763

Line drawing of several pairs of hands holding up a heart shape, next to the quote: 'Through the amazing support of the home treatment team my fiancé has started to move forward with his life taking small steps each day.' Hashtag World Suicide Prevention Day. Care Opinion logo below.
@careopinion.org.ukSep 10, 2026, 11:36 AM

Every day, people share deeply personal stories on Care Opinion. When a story raises a serious concern, we regularly send out signposting to make sure the person sharing it has access to the right help. #WorldSuicidePreventionDay

@careopinion.org.ukSep 8, 2026, 12:20 PM

When someone shares their story, it gives an organisation an opportunity to listen, learn & make change.
A patient suggested clearer instructions for registering on arrival. The team at Angus HSCP made a change adding clearer visual signage. Read more: www.careopinion.org.uk/1464014

@careopinion.org.ukSep 4, 2026, 3:37 PM

For #PulmonaryFibrosisAwarenessMonth, we'd like to share a story in which a patient describes their #IPF journey at Nottinghamshire Healthcare NHS Foundation Trust following a free NHS Lunch Check/Scan. Read the full story: www.careopinion.org.uk/1433493

@careopinion.org.ukSep 3, 2026, 11:54 AM

✨ Today we share a story from a parent thanking one of the Creative Therapy Support Worker's #SHSCT for their person centred & attuned intervention with their son. Read the story: www.careopinion.org.uk/1466016

@careopinion.org.ukSep 2, 2026, 12:16 PM

One service user described the care they received from the Apheresis unit at #SNBTS after their stem cell collection. They spoke of colleagues supporting each other & the team taking the time to explain every step. Read the full story: www.careopinion.org.uk/1465399

@careopinion.org.ukAug 31, 2026, 12:44 PM

When their husband developed sudden abdominal pain, this individual found the care and efficiency between departments from Phone First through to A&E at #SHSCT to be brilliant. Read the full story here: www.careopinion.org.uk/1464768

@careopinion.org.ukAug 27, 2026, 1:07 PM

✨ This author describes how the kind and encouraging support from the CERT team at @shpu.bsky.social helped them, as someone living with Psychosis, on their road to recovery. read the story: www.careopinion.org.uk/1464336

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