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Rhiann Johns

@serenebutterfly.bsky.social

77 Following139 Followers

Blogger documenting life with chronic illness and disability. Aside from posts about the chronic life, I am an avid reader, and a square-eyed binge-watcher of TV and films

http://brainlesionandme.com

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@bannedbooksweek.bsky.socialOct 9, 2026, 11:32 PMReposted by @serenebutterfly.bsky.social

LET BOOKS BE ACCESSIBLE! Attempts to limit access for the intended audience are acts of censorship.

Let's take a look at the harmful myths and misinformation censors use to justify their actions. And find ways to push back!

#BannedBooksWeek #LetBooksBe

@drhannahbattersby.bsky.socialOct 9, 2026, 12:49 PMReposted by @serenebutterfly.bsky.social

"Living this way means each day starts with an assessment, a careful negotiation with a body that doesn’t always tell the truth." Sums it up.

@serenebutterfly.bsky.socialOct 9, 2026, 8:43 PM

Usually I would think it way too early to start reading #Christmas romance novels but as I have been particularly bad of late and with my health at a low I have already started reading a couple as I could really do with some cheer, joy and hope that they bring! Hooray for books!

@serenebutterfly.bsky.socialOct 9, 2026, 11:54 AM

Thank you so much @achronicvoice.com for taking the time to share my blog post on the reality of living with a #DynamicDisability. It’s much appreciated! 🫶

@serenebutterfly.bsky.socialOct 8, 2026, 11:51 AM

Thank you @achronicvoice.com for taking the time to share my blog post on how I don’t feel safe in my own body because it betrays me every day and the anger I feel because of it. It’s much appreciated! 🫶

@serenebutterfly.bsky.socialOct 5, 2026, 5:02 PM

"But it’s been ten years, and I haven’t learned how to actually live with a chronic illness. I don’t know how to be the real me in my life anymore." thought.is/how-my-chron...

#ChronicIllness #ChronicallyIll #NEISVoid #Identity

@serenebutterfly.bsky.socialOct 5, 2026, 3:30 PM

"The world moves on, but still, I remain trapped, my body tethered to the confines of my home, wishing, like Ariel, that I could be part of the world outside my prison." www.brainlesionandme.com/why-im-not-f...

#ChronicIllness #ChronicallyIll #NEISVoid #InvisibleIllness

@serenebutterfly.bsky.socialOct 5, 2026, 2:01 PM

"This isn’t cool. This isn’t a lifestyle trend; it is a lifestyle destroyer." medium.com/illumination...

#ChronicIllness #ChronicallyIll #NEISVoid #Disability

@serenebutterfly.bsky.socialOct 5, 2026, 12:30 PM

"What doesn’t work is pretending the illness has nothing to do with who I am. It’s in how I plan, what I notice, and how I decide what matters on a limited budget." www.thethrivingspoonie.com/the-hidden-r... via @thethrivingspoonie.com

#ChronicIllness #ChronicallyIll #NEISVoid

@serenebutterfly.bsky.socialOct 5, 2026, 11:00 AM

"There is nothing fashionable about chronic pain, crushing fatigue, brain fog or having to think about the consequences of an activity that most people would never give a second thought to." crackednailsandsplitends.co.uk/blog/disable...

#ChronicIllness #ChronicallyIll #ChronicPain #Disability

@serenebutterfly.bsky.socialOct 5, 2026, 9:30 AM

"Some disabled people have a harder time accepting their differences than others and may never get to a place where they are happy being disabled, but it’s something we all go through." myrockindisabledlife.com/2026/08/18/w...

#Disability #DisabilityAwareness #NEISVoid #DisabledLife

@serenebutterfly.bsky.socialOct 3, 2026, 12:29 AM

"The night stretches ahead of me, not as a time for sleep, but as something to endure: hour by hour, minute by minute." www.brainlesionandme.com/painsomnia-w...

#ChronicPain #Painsomnia #NEISVoid #PainAwarenessMonth

@serenebutterfly.bsky.socialOct 2, 2026, 8:20 PM

"The decision whether to take a painkiller is a catch-22. Whether I choose to endure the pain or take a painkiller and face the side effects, it feels that I lose either way." www.brainlesionandme.com/pain-or-pain...

#ChronicPain #PainAwarenessMonth #NEISVoid

@serenebutterfly.bsky.socialOct 2, 2026, 11:39 AM

Thank you so much @apainprincess.bsky.social for taking the time to share my blog post on the lessons I’ve learned about living with #ChronicIllness and #ChronicPain whilst at sea #cruising. It’s much appreciated! 🫶

@serenebutterfly.bsky.socialOct 1, 2026, 8:30 PM

Think tonight’s episode of #CelebrityTraitors is a testament to how this is one of the best series on TV at the moment. It’s a show that keeps evolving, with surprises and new twists that makes it feel fresh from previous series. It’s so unpredictable and the cast makes it oh so funny!

@serenebutterfly.bsky.socialOct 1, 2026, 8:29 PM

#Strictly. #GBBO. And now #CelebrityTraitors.

Autumn television is some of the best TV of the year. Such brilliantly entertaining, cozy and comforting TV.

@serenebutterfly.bsky.socialSep 30, 2026, 10:35 AM

Finished #reading #TheAstralLibrary by Kate Quinn and this #quote from it really spoke to be as someone who id a self-confessed #bookworm: ‘Can a bookworm ever really call herself alone when she’s surrounded by books?’

@serenebutterfly.bsky.socialSep 29, 2026, 10:12 PM

In so much #pain that I cannot sleep. So, once again I have chosen to escape this reality and escape into a #book! Although it’s taking me much longer to read than usual, I have just finished my 100th book of the year which is a record for me!

#Painsomnia #ChronicLife

@serenebutterfly.bsky.socialSep 28, 2026, 10:41 AM

Wordle 1,927 2/6

⬜🟩⬜🟨⬜
🟩🟩🟩🟩🟩

#Wordle

@serenebutterfly.bsky.socialSep 27, 2026, 4:20 PM

Thank you so much @myseveralworlds.com for taking the time to share my blog post on how living with #ChronicIllness is constantly having to relive the same heartbreaks over and over again. It’s much appreciated! 🫶

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