Young adults in Singapore: “Even if I were to wear the #disability lanyard, I’m...sceptical people would give up their seat for me.”
Pang is 25. He has #AnkylosingSpondylitis.

We have many similar stories in #Taiwan with 'Who gets a disability seat?'
🔗 www.channelnewsasia.com/cna-insider/...

Metaphors are keys for opening the doors to understanding, for illustrating concepts that the average person is able to relate to. Despite living w #ChronicIllness for 20+ years, I realise that there is still so much I don’t know about.
🔗
www.achronicvoice.com/2016/04/11/q...

@achronicvoice.com

#ChronicPain & #MentalHealth are intricately interwoven. Here are just 5 ways life w/ pain can detrimentally affect mental #wellbeing.
🔗
invisiblyme.com/chronicpain-...

Via @invisiblyme.bsky.social

#Spoonie #InvisibleIllness

I smile through the pain…nausea…exhaustion…I have really bad days and those far outnumber the good. They can be absolutely awful… I’d give anything for a cure but since that’s not reality now—I play the hand I was dealt.”
🔗
buff.ly/3vPhveX #CRPS

via @apainprincess.bsky.social

Reminder: seasonal changes make disabled people feel like shit.

It has to do with the
barometric changes.
Or we're witches.
We'll never say.

Credit: Crutches&SpookySpice

#MySeveralWorlds #AutumnVibes #Spoonies #DisabledLife

#Inflammation & #BloodClots
"Diseases that cause chronic inflammation can lead to damage to the clotting process which can block blood flow in the veins. Common inflammatory diseases include
Lupus
Cancer
Cystic fibrosis
Asthma
Psoriasis
MS
Diabetes
Infection
IBD"
🔗
thrombosis.org/2024/10/infl...

Actually, I filed a formal patient complaint for ER letting me hemorrage for 5 hours with not a single health professional entering my room before the ER doc arrived and saw me & my room covered in blood and realized, oh shit, #HughesSyndrome aka #APS is pretty serious. 24 hours in two hospital ERs.

Thank you @achronicvoice.com for taking the time to share my blog post on how I don’t feel safe in my own body because it betrays me every day and the anger I feel because of it. It’s much appreciated! 🫶

Mirror: Lookin' good today.
Grocery store window: You could use some sleep.
Target checkout camera: T'was winter when she contracted the cholera, quickly succumbed & was buried in a shallow grave marked with a rough-hewn tombstone & wisps of lemongrass.
@paigekellerman.bsky.social

#MySeveralWorlds

Appropriate after spending the whole night at the Carleton Place Chamber of Commerce mixer masking my pain and migraine.

CHRONIC ILLNESS MASKING

Forcing yourself to keep plans even when you feel awful.

@THEMIGRAINENETWORK

#MySeveralWorlds #LifewithPain #Masking #InvisibleDisabilityAwareness

Here's the real truth:
If you smile, you're "doing better."
If you cry, you're "too emotional."
If you speak up, you're "difficult."
Pick your poison.

Credit @dear chronic pain

#MySeveralWorlds #ChronicIllnessAwareness

Few people know I took a 9 month pro course on #LymphaticsDrainage in Oct 2025. I learned how to drain fluid from my own limbs & chest. I do not have a firm dx yet. My 2023 clot crisis shows there is something wrong with my lymphatics system.

Credit: Unknown

#MySeveralWorlds #LymphaticDrainage

Dressing for diseases that change your body shape often
🔗
rheumatoidarthritis.net/living/choos...

#Actions speak louder than words. Where are you focusing your time and energy, & what or whom for? Where do your #priorities lie? If the things you take pride in are all suddenly taken away from you, who are you?
🔗
buff.ly/YnTDkIM #SelfIdentity #ChronicIllness
@achronicvoice.com

"Me on my way to leave a review for the dr who gaslit
me."

Credit: @chronically_nell

#MySeveralWorlds #MedicalGaslighting #MedicalTrauma

On my way to the hospital again. Sigh...

Gonna light their MRI equipment up like a Christmas tree.

Appointment #5 this week!

Chronically yours,
Carrie

Credit: Chronic illness memes

#MySeveralWorlds #MedicalBurnout #ComplexCare #ComplexIllness #CanadianHealthcare

It's that time of year when tasks like holding a glass are hard! Cold weather makes fine motor skills tough for arthritis patients. It might look easy, but it is a difficult thing to do for many arthritis patients.

Do you struggle with basic tasks?
#InflammatoryArthritis #MySeveralWorlds

Finished #reading #TheAstralLibrary by Kate Quinn and this #quote from it really spoke to be as someone who id a self-confessed #bookworm: ‘Can a bookworm ever really call herself alone when she’s surrounded by books?’