@thereforme.bsky.social
Working towards a world where healthcare, wider public services, & society are truly there for people affected by ME.
Registered Charity in England and Wales: 1218590
@thereforme.bsky.socialResearch: the HERITAGE study is recruiting, plus the first PRIME International Symposium
And:
- an Oscar-winning director's new film about very severe ME
- a school healthcare plan template from @long_covid_kids
- a BACME report on tube feeding in ME.
@thereforme.bsky.socialInside ThereForME Update No. 36: George Monbiot's Guardian piece about what has changed for people with ME since the 2021 NICE guideline, and our letter in response Policy watch: Scotland's implementation gap, and Burnham’s national care service plans PLUS...
@tessamunt.bsky.socialReposted by @thereforme.bsky.socialThanks @thereforme.bsky.social! There must be serious review of the government’s inadequate response to #ME, with its cost to us all. Still considering best options to call for including @georgemonbiot.bsky.social proposed public inquiry, Select Committee Inquiry, a Czar or even referral to HSSIB.
@thereforme.bsky.socialThe Guardian has published our letter responding to George Monbiot's article about how people with ME are abandoned, dismissed and gaslighted.
We point out the inadequate political attention, and call for action from the Health & Social Care Select Committee.
@thereforme.bsky.socialHowever you choose to publicise your event, we’d love to hear about it! As always, thank you for your support. 🙏🩵 ThereForME is a Charitable Incorporated Organisation registered in England & Wales. Registered charity No. 1218590.
@thereforme.bsky.socialYou can download our A3 poster to write details of your event on. drive.google.com/file/d/1l64J...
Or, you can use our editable Canva templates to create your poster or social media post: canva.link/6w1jqdl7p9z2... and canva.link/mptm21idb6ig...
@thereforme.bsky.socialPlanning a charity challenge, event or birthday fundraiser? It just got easier to support us! 🎉 You can now select ThereForME as your chosen cause when setting up your fundraising page on JustGiving.
@thereforme.bsky.socialAre you keen to share your experiences of adult social care? If you’d be interested to write for us (500 words max), let us know 👇
@thereforme.bsky.socialICYMI - more here👇
@thereforme.bsky.socialWe wanted to say a big thank you for all of your support since our charity announcement yesterday! We've had so many kind messages, and we're so grateful for all of the donations we've received so far. A big, big thank you from the team - this community is the best 🫶
@thereforme.bsky.socialThe sense of shock George conveys at how people with ME have been failed is exactly why we founded ThereForME. And it’s why we’re so determined to bring the reality of ME directly to the people with the power to act. Who’s with us?
@thereforme.bsky.socialGeorge Monbiot was nominated for last year’s ThereForME Advent Calendar for using journalism to shine a light on failings faced by pwME. Today, he writes that too often people with ME are abandoned, while discredited treatments continue to be prescribed. He’s right.
@weiszguy.bsky.socialReposted by @thereforme.bsky.socialAfter two years of amazing work, we’re only just getting started!! Please reshare and donate if you can (link in thread)
@thereforme.bsky.socialWe will never encourage anyone to give beyond their means, and there are ways to support our work other than donating.
You can follow our blog, where we'll share updates on how you can help 👇
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@thereforme.bsky.socialWe'd love to ask for your support.
For those who are willing & able, it's now possible to donate to ThereForME via the link here 👇
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@thereforme.bsky.socialWe have big ambitions to drive forward change for people with ME & we’ve outgrown what a volunteer effort can sustain. Charitable status enables us to work more effectively towards a world where healthcare, public services, & society are truly there for people affected by ME. 2/4
@thereforme.bsky.socialWe're excited to share something we've been working on for a while. ThereForME is now a registered charity! 🥳 1/4
@longcoviduk.bsky.socialReposted by @thereforme.bsky.socialLast weekend, alongside representatives from @thereforme.bsky.social, @actionforme.bsky.social and the ME Association, our trustee Jo Dainow had the opportunity to visit the Royal Opera House and experience The Mirrorbox on behalf of Long Covid UK.
@thereforme.bsky.socialIn today's update, we share a round-up of what was published to mark Severe ME Day, some of the creative ways people are keeping ME and Long Covid visible year round, and, as ever, a few rays of light.
@thereforme.bsky.social@lbc.co.uk presenter @natashadevon.bsky.social is #ThereForME!
Her message: “For people affected by ME and Long Covid, please know that you are in my thoughts this Christmas and I will continue to advocate for you whenever I can. Sending you so much love, Natasha Devon”
