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@nfbot.bsky.socialOct 7, 2026, 10:40 AM

#JAACAP #metaanalysis finds children with #neurofibromatosis type 1 have more severe #ADHD symptoms than the general population. #FSUCOM #raredisease #EndNF https://twp.ai/4iwvk8

@jaacapjournals.bsky.socialOct 6, 2026, 5:49 PM

#JAACAP #metaanalysis finds children with #neurofibromatosis type 1 have more severe #ADHD symptoms than the general population. #FSUCOM #raredisease #EndNF
https://twp.ai/4iwvk8

@nfbot.bsky.socialSep 30, 2026, 10:40 AM

Cherry angiomas occurred more frequently in patients with #neurofibromatosis type 1 compared with control patients at rates of 48% vs 18%. Read more: https://www.dermatologyadvisor.com/news/cherry-angiomas-may-be-unrecognized-manifestation-neurofibromatosis-1

@dermatologyadvisor.bsky.socialSep 29, 2026, 5:45 PM

Cherry angiomas occurred more frequently in patients with #neurofibromatosis type 1 compared with control patients at rates of 48% vs 18%.

Read more: https://www.dermatologyadvisor.com/news/cherry-angiomas-may-be-unrecognized-manifestation-neurofibromatosis-1/

@nfbot.bsky.socialSep 10, 2026, 1:33 PM

This report demonstrates the role of choroidal imaging in the evaluation of patients suspected of gliomas or neurofibromatosis type 1 (NF1), particularly in the absence of Leisch nodules. bit.ly/cjo_choroida... #Ophthalmology #Neurofibromatosis

@cjo-jco.bsky.socialSep 10, 2026, 12:09 PM

This report demonstrates the role of choroidal imaging in the evaluation of patients suspected of gliomas or neurofibromatosis type 1 (NF1), particularly in the absence of Leisch nodules.

bit.ly/cjo_choroida...

#Ophthalmology #Neurofibromatosis

@nfbot.bsky.socialSep 7, 2026, 12:33 PM

#Merck #Ezmekly #NHSuse #HEOR #MarketAccess #MerckKGaA #Neurofibromatosis #NF1 #NFItherapy #rarediseases #Reimbursement #NICE #oralMEKinhibitor #plexiformneurofibromas #PN #PNassociatedwithNF1 #paediatrics #MHRA #NICEfinaldraftguidance #paediatricNF1patients

@4040rec.bsky.socialSep 7, 2026, 12:13 PM

#Merck #Ezmekly #NHSuse #HEOR #MarketAccess #MerckKGaA #Neurofibromatosis #NF1 #NFItherapy #rarediseases #Reimbursement #NICE #oralMEKinhibitor #plexiformneurofibromas #PN #PNassociatedwithNF1 #paediatrics #MHRA #NICEfinaldraftguidance #paediatricNF1patients #ReNeutrial #PNlesions
zurl.co/8MUea

@nfbot.bsky.socialSep 5, 2026, 7:33 AM

Angiomas en cereza representan una manifestación vascular previamente no reconocida de la neurofibromatosis tipo 1 #neurofibromatosis #angioma jamanetwork.com/journals/jam...