@nfbot.bsky.socialLearn about NF1-associated GIST, treatment options, and patient experiences. Register: bit.ly/NF1-GIST #NF1 #GIST #GISTEducation
@liferaftgroup.bsky.socialLearn about NF1-associated GIST, treatment options, and patient experiences. Register: bit.ly/NF1-GIST #NF1 #GIST #GISTEducation
@nfbot.bsky.socialNew pediatric #NF1 study (n=301): 60.8% truncating variants, 37 novel mutations identified & sex-specific growth curves established to track growth impairment! link.springer.com/article/10.1... #Pediatrics #Genomics #RareDisease
@world-j-pediatr.bsky.socialNew pediatric #NF1 study (n=301): 60.8% truncating variants, 37 novel mutations identified & sex-specific growth curves established to track growth impairment!
@nfbot.bsky.social#Merck #Ezmekly #NHSuse #HEOR #MarketAccess #MerckKGaA #Neurofibromatosis #NF1 #NFItherapy #rarediseases #Reimbursement #NICE #oralMEKinhibitor #plexiformneurofibromas #PN #PNassociatedwithNF1 #paediatrics #MHRA #NICEfinaldraftguidance #paediatricNF1patients
@4040rec.bsky.social