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@meetanostomate.bsky.socialSep 9, 2026, 9:04 PM

Living with a permanent ileostomy for 15 years after UC and multiple abdominal surgeries has brought ups and downs. Scar tissue and adhesions have caused recurring mechanical blockages, and now food needs to be puréed. Has anyone else experienced this? Any advice?
#ostomy #stoma #ileostomy #wocn

@sailingbikeruk.bsky.socialSep 9, 2026, 8:36 AM

If anybody on here has a stoma and flies regularly within Europe I’d be really interested to know if you encounter any problems.

My wife had an ileostomy last year and we are planning a holiday …

Anything we should be aware of?

#stoma #ileostomy

@colostomyuk.bsky.socialSep 9, 2026, 6:55 AM

Does your stoma keep you up at night?

Sleep is crucial to our health and well-being. People who have a #stoma can feel anxious about sleeping. Issues such as leakage can be disruptive too.

For advice and lots of tips to get the best night’s rest, visit: colostomyuk.org/information/sleep

@meetanostomate.bsky.socialSep 9, 2026, 12:45 AM

What types of underwear work well for you to support an ileostomy pouch? Any recommendations for comfortable, supportive options that don’t cost a fortune?
#ostomy #ileostomy #stoma #wocn

@adarkhairedone.bsky.socialSep 8, 2026, 11:53 PM

Over the past several days my #stoma #detelescoped to being almost #flat. This has been #frustrating. So today I change my #OstomyBag. To help I used a tiny bit of #PasteStrip from a partially empty box from several stomas ago instead of the usual #PasteRing. #OstomyBagSystem #IBD

@heidylouisa.bsky.socialSep 8, 2026, 10:27 PM

#chronicillness #worshipisalifestyle #faithinChrist #discipleship #uncomfortablegrace #theGospel #JesusIsLove #walkbyfaith #inChrist #relationshipwithGod #meaningoflife #ostomy #wonderfullymade #trustintheLord #spoonie #IAmDisabled #stoma #abundantlife #receiveChrist #purposefulliving #ostomate

We would be wise to stay with Jesus and His plan for us.I finally got my foley removed today and had my voiding trial and it was A SUCCESS!!!!! It feels SO GOOD to not have any tubes coming out of me!!!! I am following up with one of my doctors at OSU in 6-8 weeks.

I realized as I was cathing that depending on what happens with the function of my hands, the solution
I have now may not be the solution
I have forever. I have a neurology appointment and an appointment with my beloved neurosurgeon next week to discuss that further, as well as to begin searching for answers as to what is causing my body to continually lean to the left. I am stillworking towards losing weight so that I can get my hernia and urethra repaired, and looking for answers for my swollen right foot and leg, and I need to get my teeth fixed. It’s still gonna be a long road, but I’m so happy to have so much of this urology nightmare behind me.

I also want to take this opportunity to thank you for your support. Every reaction, every comment and every follow means the absolute world to me. Thank you for being in my corner during the hardest years of my life. I love you all so much.
@meetanostomate.bsky.socialSep 8, 2026, 4:55 PM

What tips can help someone with a colostomy return to golf after surgery? Are there particular considerations regarding movement, equipment, or the pouch?
#ostomy #colostomy #urostomy #ileostomy #stoma #wocn

@meetanostomate.bsky.socialSep 7, 2026, 10:16 PM

Has anyone heard of hyaluronic acid injections to correct dips or defects around a stoma that cause pouch leakage? This treatment is being used in some European centers. Does anyone know where it’s available or have experience with it?
#ostomy #colostomy #urostomy #ileostomy #stoma #wocn

@meetanostomate.bsky.socialSep 7, 2026, 1:40 PM

What are good alternatives to Torbot skin-care and adhesive products now that the company has closed?
#ostomy #urostomy #ileostomy #stoma #wocn

@meetanostomate.bsky.socialSep 6, 2026, 10:34 PM

Hairy around the stoma? Shaving can improve pouch adhesion, but take care near the stoma. An empty toilet-paper roll can protect it while shaving. Clean the skin well and remove all residue before applying the pouch.
#ostomy #colostomy #urostomy #ileostomy #stoma #wocn

@meetanostomate.bsky.socialSep 6, 2026, 3:11 PM

What pouching systems are easiest for someone new to a temporary ileostomy? Are closed, single-use peel-and-stick pouches a good option? Pros, cons, or better alternatives? Thanks.
#ostomy #wocn #stoma

@colostomyuk.bsky.socialSep 6, 2026, 6:50 AM

We are Colostomy UK.
We're a vibrant and dedicated group of people who work tirelessly to support the #stoma community.

You can read all about our purpose and the values that guide us here:
https://www.colostomyuk.org/about-us/

#Stoma #StomaAware

@meetanostomate.bsky.socialSep 6, 2026, 1:22 AM

How can living with UC and undergoing ostomy surgery after precancerous findings affect quality of life? What positive experiences have others had?
#ostomy #urostomy #ileostomy #stoma #wocn

@meetanostomate.bsky.socialSep 5, 2026, 4:58 PM

www.MeetAnOstoMate.org
42,300+ members
395,900+ private messages
325,440+ forum post
#ostomy #stoma #colostomy #ileostomy #urostomy #wocn

@mrlockyer.bsky.socialSep 5, 2026, 4:05 PM

A little PSA on hidden disabilities #PouchTo5k #stoma

@meetanostomate.bsky.socialSep 5, 2026, 1:19 PM

What is considered normal discharge from the anal stump after a permanent colostomy? Is occasional mucus, brownish/reddish discharge, or small clots something others have experienced? Thx.
#ostomy #wocn #stoma #colostomy