Tip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
@smartpatient.bsky.social
@smartpatient.bsky.socialTip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
@healcanada.bsky.socialE3 Advocacy Magazine, a free publication from Heal Canada, is looking for contributors for our upcoming issues!
If you have an idea, a topic, or a story you'd like to contribute, we'd love to hear from you. Please reach out to [email protected] with your thoughts.
@moogie14.bsky.socialMom needed the bathroom. We heard three explanations of why it was complicated—but no solution.
A bedpan finally resolved it. Patient dignity shouldn’t get lost while waiting for an evaluation.
Full story:
nielflamm.com/blog
@uoustanford.bsky.socialThis #ThrowbackThursday, we’re looking back at Stanford Medicine’s Health After Cancer podcast. 💗
Visit here to listen: healthaftercancer.stanford.edu
#UnderOneUmbrella #StanfordMedicine #HealthAfterCancer #CancerSurvivorship #CancerSupport #PatientAdvocacy #LifeAfterCancer
@andyhageman.bsky.socialSix years after a UNMH surgeon's deposition didn't match the hospital's own records, I wrote it all down. New post on my Substack:
andyhageman.substack.com/p/my-unbelie...
@gmj-georgia.bsky.socialUS lawmakers have called on HHS to enforce Eli Lilly's participation in the 340B drug discount program, which provides discounted medications… #340Bprogram #Drugpricing #Hospitalaccess #Patientadvocacy #Pharmaceuticalcompliance #340Bprogram #Drugpricing #Hospitalaccess #Patientadvocacy #Pharmac…
@healcanada.bsky.socialE3 Advocacy Magazine, a free publication from Heal Canada, is looking for contributors for our upcoming issues!
If you have an idea, a topic, or a story you'd like to contribute, we'd love to hear from you. Please reach out to [email protected] with your thoughts.
@smartpatient.bsky.socialTip from someone who learned the hard way: bring data to your doctor appointments. Even rough notes about when symptoms happen and what makes them better or worse can change the conversation completely.
@dollarfor.bsky.socialWe already know a lot of hospitals create unnecessary hoops to get financial assistance BUT when the person answering the phone is rude and unhelpful and trying to make me feel like an idiot for asking… WHAT ARE WE EVEN DOING!?
@allergyasthmahq.bsky.socialAstraZeneca has announced full results from the Phase III OBERON and TITANIA trials evaluating tozorakimab, an investigational biologic, in adults living with COPD.
#COPD #RespiratoryHealth #ClinicalTrials #LungHealth #PatientAdvocacy
@glcc01.bsky.socialAt our Annual Meeting in Seoul, Karen Clayton of Lung Cancer Nursing UK spoke to the role of lung cancer nurse specialists. They provide more than clinical care, supporting patients and carers emotionally, psychologically and practically.
#LungCancer #CancerCare #PatientAdvocacy #HealthcareEquity
@uoftpress.bsky.socialYour Aorta combines medical expertise and patient-advocacy insight to explore the physical, emotional, and psychological realities of #AorticDisease. An essential guide for patients and loved ones.
Read more: bit.ly/4bd3pG6
#AorticAneurysm #PatientAdvocacy
Yale Cardiovascular Research Center
@pbcawareness.bsky.socialYOU MAY HAVE NEVER HEARD OF #PBC… but someone is living with it every single day.
September is #PBCAwarenessMonth, and we’re making some noise for Primary Biliary Cholangitis (PBC)—a rare, chronic autoimmune liver disease.
#PrimaryBiliaryCholangitis #RareDisease #LiverHealth #PatientAdvocacy
@angioedemanews.bsky.socialNavigate health insurance and find financial help for managing angioedema: https://bit.ly/43G9y9r
#HealthInsurance #FinancialSupport #HAEResources #PatientAdvocacy #RareDiseaseHelp #AngioedemaNews #Bionews
@harriseve.bsky.socialNow, was that so hard? >>Clinicians should aim to avoid overtreatment when available evidence suggests a less intensive approach may suffice for a lower-risk cancer, and/or the patient is at high risk of serious toxic effects from chemotherapy treatment<<
#bcsm
#patientadvocacy
@smartpatient.bsky.socialA health log does not need every detail to help. Note one symptom, one possible trigger, and one thing that helped. Small notes can reveal patterns over time and give you something concrete to bring to your next appointment. #SymptomTracking #HealthJournal #PatientAdvocacy
@cancercoachusa.bsky.socialA useful question for your next appointment: “What should I watch for, what is expected, and when should I call?” Write the answer in your own words. #PatientAdvocacy #cancer #oncosky
@smartpatient.bsky.socialWhen tracking medication, the context matters too. Note timing, food, sleep, stress, and side effects so the log tells the full story. #MedicationTracking #HealthTracking #PatientAdvocacy #InvisibleIllness