13:30 Saturday afternoon.

LOTS of welcome REST 🙏

A single #VisibleHealth PacePoint, despite a shopping trip and a fair bit of light housework this morning.

#LongCovid #Pacing to avoid debilitating #PostExertionalMalaise

./4
Bedenke: Jede(!) weitere Reinfektion, auch asymptomatisch, ist eine erneute Lotterie-Teilnahme für #LongCovid !🧐

Mit jeder #Covid19 Reinfektion kumuliert das Risiko. Das bedeutet, mit jeder Infektion wird das Risiko größer (LongCovid, teils lebenslange Beeinträchtigungen)! Wird so hingenommen?🤬

...but a busy week of #teaching has left me exhausted (in a standard/ non-Long-Covid way).

Also looking after my unwell partner, so taking things slowly today 🙏

#Pacing to avoid #PEM

#LongCovid

Ik denk de laatste maanden zo vaak aan deze dagen. Het laatste grote doel van mijn eerste grote tocht sinds ik covid kreeg. Ik dacht dat het voorbij was. Wat extra conditie opbouwen en alles zou weer normaal zijn.

Gisteravond was mijn ademhaling zo verstoord dat ik moeite had met praten.
#LongCovid

@fds.wsocial.eu

Thank you for the information

#covid #longcovid #electromagnetic #healthcare

Magnetic Stimulation Improves #LongCOVID “Brain Fog”
#Neurology #Neuroscience

Magnetic Stimulation Improves #LongCOVID “Brain Fog”
#Neurology #Neuroscience

This is excellent news for UK science!
He should be invited into government, nobody in the world knows more about viral reactivation and its implications for #LongCovid #ME

Save-the-date: eerste themabijeenkomst op 3 november a.s.

https://www.postcovidnl.nl/nieuws/save-date-eerste-themabijeenkomst-op-3-november

#longcovid #longcovidnieuws

#TrueBlood is playing tonight in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #FaerieRealm #Halloween #spookyseason #disability #longcovid #ChronicPain #autism #ADHD

Takeaway: medical-record codes can miss people whose symptoms are real but not formally documented.

Better measurement affects research, services, and care.
recovercovid.org/news/recover-research-update-september-2026
#LongCOVID #HealthData

I love being short of breath to the point that I need to lay down
Gotta love #longcovid

Survey still open for those who started but were unable to finish. Pls consider completing yours if capacity allows 🙏🩵

It would be a pity to waste that energy expended and precious data 📊

🎯Let’s hit that target of 2000 respondents❗️
#MyalgicEncephalomyelitis #LongCovid

People living with #longCOVID, #MECFS and other complex, #chronicdiseases deserve the progress that precision medicine has brought to cancer care.

That requires taking a fundamentally different approach to studying the biology.

So that's what we've done.

Finally read that Smithsonian #LongCovid piece (I have a paper subscription). It’s good!

Mitochondrial carrier SLC25A34 links clock, diet, and temperature control of adipocyte lipid cycling #MECFS #LongCovid

www.science.org/doi/10.1126/...

🚨🚨 neuroinflammation is the worst part of #LongCOVID.

Migraines from reading.

Splitting headaches from dealing with difficult people.

Fatigue from sitting or standing.

Meningiomas and glioblastomas frequently develop and grow.