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@rarectadvocate.comSep 17, 2026, 2:00 PM

Andersen-Tawil Syndrome (ATS) combines episodic muscle paralysis, dangerous heart arrhythmias, and distinctive facial features, caused mainly by mutations in the KCNJ2 potassium channel gene.

Learn more: https://dub.sh/ATS1

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Andersen-Tawil Syndrome (ATS), a rare potassium-channel disorder estimated to affect about one in one million people. The card notes it is caused mainly by KCNJ2 gene mutations and combines episodic muscle paralysis with heart-rhythm abnormalities. Key symptoms include muscle weakness, a prolonged QT interval, and distinctive facial features. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@kingtiger.bsky.socialSep 17, 2026, 2:56 AM

snap back

KingTiger is playing Pipistrello and the Cursed Yoyo! LIVE NOW on Twitch

twitch.tv/felineroyalt...

#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness

#FelineRoyalty #cozy #disabled #LGBTQIAPlus

@rarectadvocate.comSep 16, 2026, 2:00 PM

Crimean-Congo Hemorrhagic Fever (CCHF) is a tick-borne viral illness that can progress from flu-like symptoms to severe bleeding, shock, & organ failure, with outbreak fatality rates up to 30%

Learn more: https://dub.sh/CCHF

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Crimean-Congo Hemorrhagic Fever (CCHF), a tick-borne viral illness spread mainly by Hyalomma ticks and contact with infected livestock. The card notes an estimated 10,000 to 15,000 cases occur worldwide each year, with outbreak fatality rates typically ranging from 5 to 30 percent. Key symptoms include sudden fever, severe headache, and, in severe cases, uncontrolled bleeding. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@angioedemanews.bsky.socialSep 15, 2026, 2:03 PM

#HAE #HereditaryAngioedema #HAEAwareness #RareDisease #RareDiseaseAwareness #ChronicIllness #ChronicIllnessAwareness #PatientAdvocacy #DisabilityAwareness #RoshHashana #CommunitySupport #BioNews #AngioedemaNews

@rarectadvocate.comSep 15, 2026, 2:00 PM

Idiopathic Pulmonary Hemosiderosis (IPH) causes recurrent, unexplained bleeding in the lungs, mostly in kids under 10, leading to iron-deficiency anemia and possible lung scarring.

Learn more: https://dub.sh/IPH1

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Idiopathic Pulmonary Hemosiderosis (IPH), a rare lung disease causing recurrent, unexplained bleeding into the alveoli, mostly in children under 10. The card notes that pediatric incidence is estimated at under 1.3 cases per million and up to a quarter of adult patients also have celiac disease. Key symptoms include coughing up blood, shortness of breath, and iron-deficiency anemia. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comSep 14, 2026, 2:00 PM

Caroli Disease is a rare congenital disorder where bile ducts inside the liver become abnormally widened, leading to recurrent infections and stone formation.

Learn more: https://www.malacards.org/card/caroli_disease

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Caroli Disease, a rare congenital disorder in which bile ducts inside the liver become abnormally widened and prone to infection. The card notes simple Caroli disease affects about 1 in 1,000,000 people and causes abdominal pain, fever, and jaundice. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comSep 13, 2026, 2:00 PM

Acrodermatitis Enteropathica is a rare inherited disorder that blocks zinc absorption, causing a distinctive skin rash, chronic diarrhea, and hair loss in infants.

Learn more: https://dub.sh/acr-ent

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Acrodermatitis Enteropathica, a rare inherited disorder that prevents the body from absorbing zinc properly. The card notes it occurs in about 1 in 500,000 births and causes a horseshoe-shaped skin rash, chronic diarrhea, and hair loss, especially around weaning. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comSep 12, 2026, 2:00 PM

DIPNECH is a rare lung condition where hormone-releasing cells overgrow in the small airways, causing chronic cough and wheezing often mistaken for asthma.

Learn more: https://dub.sh/dipnech

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Diffuse Idiopathic Pulmonary Neuroendocrine Cell Hyperplasia, or DIPNECH, a rare precancerous lung condition mostly affecting middle-aged women. The card notes it causes chronic cough, shortness of breath, and wheezing often mistaken for asthma or COPD. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@kingtiger.bsky.socialSep 12, 2026, 3:12 AM

classic

BanShi is playing Pajama Sam!!! LIVE NOW on Twitch

twitch.tv/felineroyalt...

#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness

#FelineRoyalty #cozy #disabled #LGBTQIAPlus

@angioedemanews.bsky.socialSep 11, 2026, 2:03 PM

#HereditaryAngioedema #HAE #HAEWarrior #ChronicIllness #ChronicIllnessCommunity #RareDisease #RareDiseaseAwareness #InvisibleIllness #ChronicLife #ChronicIllnessSupport #Spoonie #BioNews #AngioedemaNews

@rarectadvocate.comSep 11, 2026, 2:00 PM

Membranoproliferative Glomerulonephritis (MPGN) is a rare kidney disease where immune complexes or complement dysregulation damage the kidney's filtering units, can lead to kidney failure.

Learn more: https://dub.sh/MPGN

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Membranoproliferative Glomerulonephritis, a rare kidney disorder in which immune complexes or complement system dysregulation damage the kidney's filtering units. The card notes primary MPGN affects about 1 to 2 people per million and can cause foamy urine, swelling, and high blood pressure. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@angioedemanews.bsky.socialSep 10, 2026, 6:46 PM

Discover Hollie's inspiring story: https://bit.ly/43yorKH

 She turned to advocacy and resilience after a hereditary angioedema diagnosis.

#PatientAdvocate #HAEStory #RareDiseaseAwareness #Inspiration #HealthAdvocacy #AngioedemaNews #Bionews

Photo, no description
@rarectadvocate.comSep 10, 2026, 2:00 PM

Chagas Disease is a parasitic infection spread by kissing bugs that can silently damage the heart and digestive tract over decades if left untreated. Considered rare in US/Europe, not worldwide.

Learn more: chagasfound.org

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Chagas Disease, a parasitic infection caused by Trypanosoma cruzi and spread mainly by triatomine kissing bugs. The card notes that it is considered rare in the US and Europe, but not worldwide. it affects about 8 million people worldwide and can lead to serious heart and digestive complications if untreated. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@kingtiger.bsky.socialSep 10, 2026, 2:34 AM

rescued a little spider today

KingTiger's going for the Speed Completion achievement in Silksong! LIVE NOW on Twitch

twitch.tv/felineroyalt...

#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness

#FelineRoyalty #cozy #disabled #LGBTQIAPlus

@angioedemanews.bsky.socialSep 9, 2026, 2:04 PM

#HAE #Angioedema #HereditaryAngioedema #RareDisease #RareDiseaseAwareness #ChronicIllnessCommunity #PatientEducation #PatientAdvocacy #CaregiverLife #BioNews #AngioedemaNews

@rarectadvocate.comSep 9, 2026, 2:00 PM

Choroideremia is a rare inherited eye disease that slowly destroys the retina, mostly in males, causing childhood night blindness that progresses toward legal blindness over time.

Learn more: https://curechm.org/

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Choroideremia, a rare inherited eye disease that gradually destroys the retina and underlying choroid, almost always in males. The card notes it affects about 1 in 50,000 people and causes night blindness, progressive tunnel vision, and eventual legal blindness. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@kingtiger.bsky.socialSep 9, 2026, 3:00 AM

filthy casual

KingTiger's going for the Speed Completion achievement in Silksong! LIVE NOW on Twitch

twitch.tv/felineroyalt...

#smallstreamer #cats #neurodivergent #chill #mentalhealth #chronicillness #rarediseaseawareness

#FelineRoyalty #cozy #disabled #LGBTQIAPlus

@angioedemanews.bsky.socialSep 8, 2026, 2:04 PM

#HAE #HereditaryAngioedema #HAEAwareness #LivingWithHAE #RareDiseaseAwareness #ChronicIllnessCommunity #InvisibleIllness #ChronicIllnessAtWork #DisabilityAwareness #PatientAdvocacy #RareDiseaseCommunity #CatsOfInstagram #WorkFromHome #BioNews #AngioedemaNews

@rarectadvocate.comSep 8, 2026, 2:00 PM

Left Ventricular Noncompaction Cardiomyopathy (LVNC) is a rare heart disorder causing a spongy, grooved heart wall that raises the risk of heart failure and dangerous arrhythmias.

Learn more: https://dub.sh/LVNC

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Left Ventricular Noncompaction Cardiomyopathy (LVNC), a rare heart disorder in which the lower left heart chamber develops a spongy, deeply grooved wall instead of smooth muscle. The card notes it affects roughly 0.014 to 0.26 percent of people and can cause heart failure, palpitations, and fainting. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
@rarectadvocate.comSep 7, 2026, 2:00 PM

Sjögren's Syndrome is a rare autoimmune disease attacking moisture-producing glands, causing chronic dry mouth and dry eyes, with possible joint, skin, and organ involvement.

Learn more: https://sjogrens.org/

You may be rare, but you're not alone!
#rareDisease #rareDiseaseAwareness

Info card for Sjögren's Syndrome, a rare autoimmune disease attacking the moisture-producing glands. The card notes it affects 1 to 4 million Americans, mostly women, causing chronic dry eyes and dry mouth. Key symptoms include joint pain, fatigue, and brain fog. Footer reads: "You may be rare, but you're not alone! rarectadvocate.com"
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