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@swastrosarah.bsky.socialOct 8, 2026, 7:41 PM

Ethically completely unacceptable. Any me or thee conflict in family relationships imposed by medical neglect is a matter for Professional Standards. So where are they?
Infuriating once experienced.
#pwME #LongCovid-30%

@benking01.bsky.socialOct 8, 2026, 7:07 PM

Decided to attend our orchestra rehearsal. Parked just outside, so just a few additional steps. All very relaxing.

Back behind my #VisibleHealth pacesetter line 😎

#TubaPlayer #LongCovid #Pacing

0.5 pacepoints behind today's pacesetter
@tomkindlon.bsky.socialOct 8, 2026, 7:05 PM

Hope to see a few of you at this. 👋

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #LongCovid

@solveme.bsky.socialOct 8, 2026, 6:42 PM

Sign up for our Nov. 10 webinar on the Renegade Research SIGNAL study. We’ll discuss how people with #MECFS and #LongCovid can join and borrow therapeutic devices for home use at no cost & contribute data to the BIC unhide® platform for research.

Register:
https://ow.ly/LGx250ZIvx7

Portraits of four Renegade Research reps who are panelists for the Nov. 10 Solve M.E. webinar on the SIGNAL study. The study lends therapeutic devices to people with ME/CFS and Long COVID at no cost for home use and collects their data for research.
@irishmecfsassoc.bsky.socialOct 8, 2026, 6:36 PM

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon.bsky.social on Friday, October 23

Hopefully we’ll see some of you there
irishmecfs.org/blog/friday-...

Carers/parents/similar welcome.

#MEcfs #LongCovid #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

Informal ME/CFS social meet up in Dublin 2:30 PM-4 PM, Friday, October 23 The Bell Bar & Restaurant, Dublin 15, D15 EW77 https://www.thebell.ie All welcome incl. relatives & people with long Covid Buy your own food +/or drink Register for any updates (in case cancelled - hasn't happened so far): tomkindlon@irishmecfs.org Host: Tom Kindlon Irish ME/CFS Association for Information. Support & Research logo
@longcovidnederland.bsky.socialOct 8, 2026, 5:21 PM

🔗 Lees hier meer over de prijs: efsj.eu/2026/09/13/a... het hele artikel hier terug: www.groene.nl/artikel/mist... 🧵9/9

#LongCovid #PAIS #NietHersteld #deGroeneAmsterdammer

@longcovidnieuws.bsky.socialOct 8, 2026, 4:30 PM

Artsen zoeken ernstig zieke patiënten thuis op met laboratoriumbus: ‘Als het te veel wordt, stoppen we’

volkskrant.nl/wetenschap/artsen-zoeken-ernsti…

#longcovid #longcovidnieuws

@thesicktimes.orgOct 8, 2026, 4:15 PM

This week's #LongCOVID research updates from @mileswgriffis.bsky.social: thesicktimes.org/2026/10/06/r...

Helicobacter pylori infection seen medical imaging. The bacteria appears dark brown in clumps in an endoscopic gastric biopsy image. The text reads, “The Sick Times. Long COVID research updates. As many as 2.3 million new cases of cancer were triggered by infections worldwide in 2024. One in 10 adults stated that COVID-19 worsened a pre-existing health condition long term. A recent commentary argues that Long COVID is an occupational disease for teachers.”🤒 As many as 2.3 million new cases of cancer were triggered by infections worldwide in 2024, according to new research in The Lancet Oncology. French researchers analyzed a large database of cancer incidence from 2024, looking at specific diagnoses that were attributable to infections. They assessed twelve infections including HIV and found that the bacteria H. pylori, human papillomavirus (HPV), hepatitis B virus (HBV), and Epstein–Barr virus (EBV) had the largest number of cases attributable to them. The researchers concluded that some of these infections, like HPV and HBV, are preventable with vaccines, and that more research for EBV vaccines is needed. EBV has also been linked to multiple sclerosis and Lupus. The study did not assess SARS-CoV-2. 🦠 One in 10 adults stated that COVID-19 worsened a pre-existing health condition long term, according to a new preprint. Researchers conducted a study between 2023 and 2025 that included 2,227 adults from four sites around the U.S. who took three surveys over the course of a year after having COVID-19. “Respondents in our study shared struggles with stress and social isolation as they live with chronic conditions and the risk of reinfection or newly worsening condition,” the authors wrote. 👩🏽‍🏫 A recent commentary in NEW SOLUTIONS argues that Long COVID is an occupational disease for teachers. The article states this profession has a high risk of Long COVID and COVID-19 and recommends policies including air cleaning and ventilation to benefit both teachers and students, as well as disability supports compliant with the American with Disabilities Act. “Making these proposed investments in future research and practice to promote teachers’ occupational health could help support and replenish the teacher workforce,” the authors concluded.
@kunterbuntesnk.bsky.socialOct 8, 2026, 3:59 PM

Der Mann wollte sich heute impfen lassen, (Angehöriger von #PostCovid -Patientin). Jetzt erstmal Krankenkassen abtelefonieren (meine + seine). Er hat erstmal nur Grippe intus. Nächste Woche dann beide (hoffentlich) neuen Coronaimpfstoff. Wenn's blöd läuft nur alten. 😭

B.

#LongCovid

@anna-lyst.bsky.socialOct 8, 2026, 3:33 PM

./4
Bedenke: Jede(!) weitere Reinfektion, auch asymptomatisch, ist eine erneute Lotterie-Teilnahme für #LongCovid !🧐

Mit jeder #Covid19 Reinfektion kumuliert das Risiko. Das bedeutet, mit jeder Infektion wird das Risiko größer (LongCovid, teils lebenslange Beeinträchtigungen)! Wird so hingenommen?🤬

Viele Studien zeigen längst: Mit jeder SARS-CoV-2-Reinfektion kumuliert das Risiko. Das bedeutet, mit jeder Infektion wird das Risiko (auf LongCovid, teils lebenslange Beeinträchtigungen) größer! Man spielt mit jeder neuen Covid Infektion jedes Mal Roulette (auf das zusätzliche, sich potenzierende Risiko LongCovid). Am besten bleibt daher: Infektionsvermeidung! Link zum Ausgangs-Beitrag von Ralf Wittenbrink über die 'Science'-Studie: https://bsky.app/profile/ralfwittenbrink.bsky.social/post/3l7ivtle74a2q ❤️lichen Dank @ralfwittenbrink.bsky.social 💐
@longcovidnieuws.bsky.socialOct 8, 2026, 3:30 PM

Schrijf je nu in voor de online themabijeenkomst

postcovidnl.nl/nieuws/schrijf-je-nu-voor-de-o…

#longcovid #longcovidnieuws

@mark-ungrin.bsky.socialOct 8, 2026, 3:14 PM

It's also worth looking at the impact of Russia's "virtual biowarfare", using disinformation to accelerate the spread of diseases like COVID (and the resulting #longCOVID, which has an *immense* economic impact - quite possibly more than the rest combined).

As the UK COVID Inquiry highlighted...

@longcovidnieuws.bsky.socialOct 8, 2026, 2:50 PM

Rechter: minister mag Velsense kliniek dwingen te stoppen met omstreden longcovid-behandeling

haarlemsdagblad.nl/regio/haarlem/rechter-mini…

#longcovid #longcovidnieuws

@meassociation.org.ukOct 8, 2026, 2:46 PM

This leaflet explores the history & causes of #MECFS, its overlap with #LongCovid, & predisposing, precipitating & perpetuating factors. It reviews what we know - & don’t know - about this multisystem illness, & current & future research. Written by Dr Shepherd.

https://meassociation.org.uk/w6ph

IMAGE DESCRIPTION: Someone holding the MEA's booklet 'What causes ME/CFS?' on a purple background. Wording reads: What Causes ME/CFS? Updated booklet.
@openmedf.bsky.socialOct 8, 2026, 2:26 PM

Today is DAF Day, a day dedicated to the power of Donor-Advised Funds to make a difference. You can multiply your impact by directing a grant from your DAF to OMF to fuel critical research into #MECFS and #LongCOVID.

👉 Recommend your grant for DAF Day: https://ow.ly/90Oy50ZVUeW

Group of eight OMF's researchers in white Open Medicine Foundation shirts smiling in a lab setting.
@longcovidsignal.bsky.socialOct 8, 2026, 2:24 PM

Tixagevimab/Cilgavimab did not significantly reduce spike protein or improve symptoms in immunodeficient ME/CFS patients with circulating spike.

β1-adrenergic receptor autoantibodies decreased, but no other meaningful changes at 30 days in observational study. (n=21) #LongCovid

@anilvanderzee.bsky.socialOct 8, 2026, 2:13 PM

Indrukwekkend stuk met Caroline Van Kessel door ellen de visser.

Sorry zou al een beginnetje zijn Sophie Hermans.

#QVS #LongCovid #lyme #postsepsis #pwme #myalgicE #millionsmissing #PAIZ #PAIS #IACI #IACC

www.volkskrant.nl/wetenschap/l...