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@meactnet.bsky.socialSep 23, 2026, 6:01 PM

Registration is now open for the RECOVER-TLC’s 3rd annual workshop on Nov. 4-5, 2026. Virtual & in person options: https://ow.ly/Jwrt50ZQIou

"This two-day session includes keynote speakers, interactive panels, input from people with lived experience, and networking opportunities."

#MECFS #pwLC

Save the date for RECOVER-TLC's third annual workshop on November 4 and 5, 2026, available in person and virtually. Registration is now open.
@tomkindlon.bsky.socialSep 23, 2026, 12:32 AM

From Germany

Association of mRNA SARS-CoV-2 vaccination with fatigue and functional recovery in patients with post-acute sequelae of COVID-19 (PASC)

www.tandfonline.com/doi/abs/10.1...

Screenshot from latest Science for ME weekly update

#LongCovid #PASC #PwLC #postcovid #postcovid19

Association of mRNA SARS-CoV-2 vaccination with fatigue and functional recovery in patients with post-acute sequelae of COVID-19 (PASC) — Pries et al
"Adults with […] PASC and at least two visits 3 to 6 months apart […] were eligible." "The exposure of interest was receipt of an additional SARS-CoV-2 vaccination" "we did not detect a statistically significant worsening of fatigue or exercise capacity" "Both vaccinated and non-vaccinated participants showed gradual improvement over time."
Article | Thread
@tomkindlon.bsky.socialSep 22, 2026, 12:40 AM

From Sweden

Longitudinal epigenetic rewiring in lung immune cells in patients with post COVID-19 condition

link.springer.com/article/10.1...

s4me.info/threads/long...

Screenshot from latest Science for ME weekly update

#LongCovid #COVIDLung #PASC #PwLC #postcovid #postcovid19

Longitudinal epigenetic rewiring in lung immune cells in patients with post COVID-19 condition — Nikesjö et al
"Distinct DNAm patterns were observed across pulmonary immune cell fractions, with longitudinal changes primarily detected in neutrophil- and macrophage-enriched populations, while alterations were not evident in PBMCs." "This divergence between lung and blood suggests tissue-specific epigenetic remodeling following SARS-CoV-2 infection and underscores the limitations of relying solely on peripheral blood to capture disease-relevant molecular changes in PCC."
Article | Thread
@meactnet.bsky.socialSep 21, 2026, 9:10 PM

Last #MedicaidMonday, we shared that CMS announced states may use a tier system to determine which Medicaid applicants qualify for the medical frailty exemption from new work requirements. Today, we are going to explain those tiers!

#Medicaid #PwME #PwLC #disability #FrailAndFurious

Medicaid 3-tier model with criteria for medical frailty exemption. What may qualify people for the medical frailty exemption? Tier 1: Diagnosis alone, which a doctor has recorded in their records, may meet exemption requirements. Tier 2: Diagnosis with other supplemental information - from past claims and clinical records the state collects for you - may meet exemption requirements. Tier 3: Cases that can't be resolved through available data. Submitting additional documentation may be necessary
@tomkindlon.bsky.socialSep 21, 2026, 4:49 PM

Press release from Karolinska Institutet (a medical university)

"Brain blood flow linked to fatigue after COVID-19"
news.ki.se/brain-blood-...

Paper:
www.sciencedirect.com/science/arti...

#LongCovid #NeuroPASC #COVIDBrain #PASC #PwLC #postcovid #postcovid19

Published: 15-09-2026 11:56 | Updated: 16-09-2026 13:37
Brain blood flow linked to fatigue after COVID-19
An AI-generated image depicting a woman holding her head in pain, surrounded by a crowd of people in rush-hour traffic.
The image was generated using an AI tool. Photo: Sonia Miri Hedberg,AI-genererad bild
People with post-COVID-19 condition reported higher levels of fatigue and showed slower reaction times than healthy individuals. A new study from Karolinska Institutet, published in NeuroImage: Reports, also found lower blood flow in several parts of the brain, which may be linked to the cognitive difficulties experienced by many people after COVID-19.
@tomkindlon.bsky.socialSep 21, 2026, 12:23 AM

From Sweden

Cognitive fatigue is related to reduced cerebral perfusion & sustained attention in patients with post COVID-19 condition: An fMRI study

www.sciencedirect.com/science/arti...

Screenshot from Science for ME update

#LongCovid #NeuroPASC #COVIDBrain #PASC #PwLC #postcovid #postcovid19

Cognitive fatigue is related to reduced cerebral perfusion and sustained attention in patients with post COVID-19 condition: An fMRI study — Hedberg et al
"Perfusion analysis revealed reduced CBF, not only in several regions but also globally across the whole brain and correlated with overall reaction time as well as individual performance variability"
Article | Thread
@s4me.infoSep 20, 2026, 6:59 PM

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 14 - 20.

s4me.info/threads/news...

#MEcfs #PwMe #LongCovid #PwLC

@openmedf.bsky.socialSep 17, 2026, 3:04 PM

➡️ Subscribe to OMF's newsletter: https://ow.ly/LjU050ZOLGr

When you do, you’ll get the latest on OMF research, announcements & more—delivered straight to your inbox. Your information is kept private, and you can unsubscribe anytime.

#pwME #MECFS #LongCOVID #pwLC

Envelope with a newsletter invitation from Open Medicine Foundation against a background of autumn leaves.
@s4me.infoSep 13, 2026, 8:25 PM

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Sept. 7 - 13.

s4me.info/threads/news...

#MEcfs #PwME #LongCovid #PwLC

@meactnet.bsky.socialSep 8, 2026, 4:24 PM

Deadline: TONIGHT Sept. 8th. 11:59 pm ET.

#MEAction is excited to be partnering with the Writers Guild Initiative (WGI) again to offer creative writing workshops for people with ME and Long COVID.
30 slots available.

DETAILS: https://ow.ly/nTJb50ZGCFF

Thank you, WGI!

#PwME #PwLC #MECFS

Notebook page background with text announcing Writers Guild Initiative writing workshops with a September 8 application deadline, flanked by blue and pink pens. Logos of MEAction and WGI at the bottom.
@s4me.infoSep 6, 2026, 7:29 PM

Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Aug. 31 - Sept. 6.

s4me.info/threads/news...

#MEcfs #PwME #LongCovid #PwLC

@longcovidsos.bsky.socialSep 6, 2026, 10:24 AM

Anyone living with #LongCovid knows we can’t afford to be complacent about COVID, even if others are.

Sometimes protecting yourself means going against the norm you’re surrounded by.

For #pwLC, another infection isn’t something we can simply shrug off.

Longcovidsos.org