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@tomkindlon.bsky.socialOct 6, 2026, 11:42 AM

4/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "...The change to a completely sedentary lifestyle is a major challenge and I am missing out on my retirement and not enjoying it. I can no longer engage with the same circle of friends. Adjusting to living with the condition is depressing." Response from ME Research UK Symptom Saturday Fatigue Survey RESEARCH UK ,C0692 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 11:30 AM

5/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Remember the time you were so exhausted you couldn't wait to go to sleep? I feel like that everyday. The difference is that when I wake up, I feel the same. Remember when you came down with the flu and felt like you were hungover, your head throbbed, you had no energy, and everything hurt? I feel like that everyday." RESEARCH UK SCO36942 \ INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 5, 2026, 10:23 PM

4/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "Like a battery that only partially charges and then drains ridiculously fast. I can feel the energy leave my muscles with every step I take or word I speak...." lit:. C H UK SCO36942 \ INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 5, 2026, 10:17 PM

3/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "I have mild ME. Everyone assumes because it's mild it isn't that bad and in the scale of ME I'm lucky but it has changed my life. I can barely attend college and when I do it makes me very ill. If I go to college I don't have the energy to do anything else really. I can't read regularly and go out with my friends. I don't know if I will ever be able to work. My mental health took a massive hit especially when you watch people your age thrive and be able to do everything they want when you are so often stuck inside...." Response from ME Research UK Symptom Saturday Fatigue Survey RESEARCH UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 5, 2026, 9:18 PM

3/
What fatigue in ME/CFS feels like.

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS "...Feels like a huge overcoat of concrete is over me..." REM UK SCO36942 INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 5, 2026, 9:14 PM

2/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

Impact of fatigue in ME/CFS "...My partner finds it difficult to understand how things are for me. There can be tension there - he doesn't want to hear about how rough I feel, or what research has shown, and why I've not unloaded the dishwasher for example, when he's been at work all day...." Response from ME Research UK Symptom Saturday Fatigue Survey INFORM. INFLUENCE. INVEST. RESEA,CH UK SCO,6942
@tomkindlon.bsky.socialOct 5, 2026, 8:11 PM

2/
What fatigue in ME/CFS feels like.

#mecfs #pwME #cfs #fatigue #chronicfatigue #MyalgicEncephalomyelitis #ChronicFatigueSyndrome

What fatigue in ME/CFS feels like heavy leaden energy-depleted thinking and concentration affected drained battery not charging properly too exhausted to fulfill basic needs plug pulled weak like a constant flu weighed down by concrete wading through treacle increased gravity feeling bone deep exhaustion Recurring themes from ME Research UK Symptom Saturday Fatigue Survey INFORM. INFIINCE. INVEST. RESEARCH UK SCO36942
@achronicvoice.comOct 5, 2026, 4:30 AM

" #MECFS has taken enough pieces of my old life; [my #optimistic self] was one piece I refused to give up. In fact, I think that I needed to continue to be that person now more than ever.": buff.ly/1a3Rrxu

by lisaalioto
#SelfIdentity #MondayBlogs #ChronicIllness #disability #pwME #ChronicFatigue

How to Use the Tetris Effect to Invite Positivity Back into Your Life, Despite Chronic Illness
@germainehypher.bsky.socialOct 3, 2026, 11:48 AM

When we ask, "What is my purpose?" the most direct way to answer it is by asking, "What do I wish to create?"
Jacob Nordby, Blessed are the Weird

What would you create if you could?

#art #CraftSky #chronicpain #chronicillness #chronicfatigue #ME/CFS #mecfs

@jacobnordby.bsky.social

The background is a pastel representation of pine bark In autumn tones. A brown square with beige writing is the following quote: When we ask, "What is my purpose?" the most direct way to answer it is by asking, "What do I wish to create?" Jacob Nordby Blessed are the WeirdThe background is a pastel representation of pine bark In autumn tones. A brown square with beige writing that says: What would you create if you could? Now distill this vision down to its essence. How could you express that, even in your current situation? @craftingapaththroughillness
@smartpatient.bsky.socialOct 2, 2026, 10:30 PM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@mgnews.bsky.socialOct 2, 2026, 7:31 PM

A softer plan for bodies that shift: https://bit.ly/3ZELxh8

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue

@feyethesharkstream.bsky.socialOct 2, 2026, 6:52 PM

I WILL be streaming tomorrow! 😠😤But my body has been rather not a fan of me doing anything at all. I've been having crazy ME flare ups. My legs feel like bricks rn. #stream #twitch #disabled #chronicfatigue #ME

@francesleckie.bsky.socialOct 1, 2026, 12:02 PM

This week's IL newsletter: For people living with chronic fatigue, preparing nutritious food can be difficult. We look at how pea protein powder could offer a simple alternative on low-energy days.

buff.ly/WscvNmC
#ChronicFatigue #NutritionTips

@angioedemanews.bsky.socialSep 29, 2026, 2:02 PM

You’re not alone in this journey.

#HAE #ChronicIllness #HereditaryAngioedema #OctoberSlide #SeasonalChange #SelfCare #InvisibleIllness #PatientSupport #ChronicFatigue #MentalHealth #PacingYourself #HAECommunity

@debbieloring.bsky.socialSep 29, 2026, 1:04 PM

Chronic fatigue often reflects deeper immune, nutritional, or inflammatory imbalances. Explore integrative remedies, lifestyle strategies, and clinical insights that support sustainable energy.
https://www.healingartsnyc.com/Chronic-Fatigue-Remedies-NYC
#HealingArtsNYC #ChronicFatigue