Their experiences remind us why speaking up about pain matters & why every conversation about #Pain is a step toward better, safer care. #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

Behind our new guide, “I want to talk about my pain today!”, are the voices of people living with #BleedingDisorders, who generously shared what #Pain has really been like for them. 🧵👇 #WorldPatientSafetyDay #SafeCareForLife

👉 Read the guide: buff.ly/Fejz8aA

#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

It gives adults with #BleedingDisorders a practical framework — #TILT (Type, Intensity, Location, Time) — to describe what their pain feels like, where it is & when it happens.

This #WorldPatientSafetyDay, we're marking that principle & we've got something new in the works to help make those conversations easier. Stay tuned. 👀 #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease

But #Pain that is clearly described is pain that can be managed. When patients with #BleedingDisorders & clinicians talk openly about what pain feels like, where it is & how it changes, that conversation becomes a powerful tool in safe, effective care.

#BleedingDisorders share that same long-term, lifelong nature. For many living with one, #Pain is part of daily reality: the sudden warning of an acute bleed, the daily ache of chronic joint damage, or pain linked to menstrual bleeding.

On UK National #FitnessDay we’re thinking about #exercise! Physical activity can have positive benefits for people with #bleedingdisorders. Haemnet's Project GYM resources provide guidance on safe exercise, expert tips on strength training & advice for trainers.

#HemeSky #MedSky

💡All new articles in Bleeding Disorders: Care & Practice now include a plain language summary.

New and forthcoming in #BDCP...

🔗 https://loom.ly/uIXcNF8

#BDCP #haemophilia #pharmacokinetics #bleedingdisorders #mentalhealth #surgery #inhibitors #emicizumab #prophylaxis

#HemeSky #MedSky

Download the accompanying #LivingWellAgeingWell Guide on Staying Mobile & Preventing Falls, with practical tips designed for the #BleedingDisorders community 📄 buff.ly/BfofLpW

That's a wrap for #WorldPTDay 2026 — small adjustments, big benefits!

#Physiotherapy is also about prevention. For people with #BleedingDisorders, staying mobile & avoiding falls matters even more — a fall can mean a bleed. Revisit our #LivingWellAgeingWell Café Talk on Staying Mobile & Preventing Falls 🎥 buff.ly/apySEQg

#WorldPTDay

And join us at the #EHCRoundTable on #CardiovascularCare in #BleedingDisorders, taking place at the European Parliament in Brussels on 29 September & bringing together experts to dig deeper into these questions. Register now, seats are limited 👀 buff.ly/K6GJGG9

Missed our #LivingWellAgeingWell Webinar on Cardiovascular Issues & Other Comorbidities in #BleedingDisorders in partnership with @erneurobloodnet.bsky.social? Catch up here 🎥 buff.ly/ICUGnVv

#WorldPTDay

This year's #WorldPTDay theme — cardiovascular disease & stroke — matters for the #BleedingDisorders community too: how to stay active safely, how treatment interacts with heart health & what care teams need to consider.

We're marking this #WorldPTDay with our #ThisWay webinar on #Ergonomics and #Physiotherapy, featuring Andrea Wittenbecher, designed with the needs of people with #BleedingDisorders in mind.

Today is #WorldPTDay 🌍 For people with #BleedingDisorders, #Physiotherapy is central to protecting joint health, managing pain & staying independent. This year's global theme: cardiovascular disease & stroke. 🧵👇️

In this week's NBDF Wednesday Webinar: a whole panel of experts will help us navigate the big changes to #Medicaid coming in January.
Learn what the #BleedingDisorders #community needs to do to prepare!
Live Q&A
Sept 9 2PM ET
Pre-register (FREE): bleeding.org/events