@haemnet.bsky.socialThe#WorldMentalHealthDay theme "Lived experiences heard: Real voices, real change" speaks to us. In our research, people impacted by #bleedingdisorders tell us they need more #mentalhealth support. #Livedexperience can inform positive change in policies, services & care.
@ehc-news.bsky.social📣 #WorldMentalHealthDay: EHC launches its #MentalHealth Toolkit for the #BleedingDisorders community, built on the lived experience of 325 patients, carriers & caregivers in 27 countries. For patients, carriers, caregivers, HCPs & EHC NMOs 👉️ buff.ly/m1xyzPX
@haemnet.bsky.socialWe're proud to share the news that Dr Kate Khair has joined the board of #bleedingdisorders charity Save One Life.
She shares some of what has brought her there on the Haemnet #blog.
@haemophamicus.bsky.social
@haemophamicus.bsky.social
@haemophamicus.bsky.social
@haemophamicus.bsky.socialThe #EHC2026 conference is taking place in #Istanbul today—three days of invaluable experience sharing, new knowledge, and #bleedingdisorders community networking across Europe! 🌍🤝
#hemophilia 🇹🇷 @ehc-news.bsky.social
@ehc-news.bsky.socialA heartfelt thank you to all the speakers, patients, & partners who made this year of learning and connection possible! 🙏
#UNIDOP2026 #OlderPersonsDay #LivingWellAgeingWell #BleedingDisorders
@ehc-news.bsky.socialAs the #LivingWellAgeingWell project comes full circle today, its resource hub (recordings, podcasts, guides, & one-pagers) remains open for the #BleedingDisorders community to explore. 👉 buff.ly/e431dLT
@ehc-news.bsky.socialWhere relevant, these #LivingWellAgeingWell discussions were turned into practical guidelines & highlights that the #BleedingDisorders community can put to use directly.
@ehc-news.bsky.social📣Today marks the #InternationalDayOfOlderPersons. As people with #BleedingDisorders live longer than ever before, #HealthyAgeing has become a real & growing priority for our community. 🧵👇
@ehc-news.bsky.socialThis is part of our #VWD100 campaign, marking 100 years of #VonWillebrandDisease throughout 2026. Each month, we shine a light on a different aspect of #VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease
@novomedus.bsky.socialThank you to everyone who connected with us at #inSPire2026! We appreciated the opportunity to engage with #SpecialtyPharmacy professionals dedicated to improving care for people living with #BleedingDisorders
@ehc-news.bsky.socialThis talk is part of #LivingWellAgeingWell (2025–2026), supporting people with bleeding disorders as they age. Explore the resource hub 👉️ buff.ly/fATZ0kR
#BleedingDisorders #Haemophilia #MentalHealth #HealthyAgeing
@ehc-news.bsky.social🎙️ New EHC #LivingWellAgeingWell Virtual Café Talk on #MentalHealth and Isolation in Ageing People with #BleedingDisorders! Two critical issues in our community which yet don't always get the spotlight in clinical settings. Here's why this conversation matters 🧵👇️
@ehc-news.bsky.social@ehc-news.bsky.socialIt gives adults with #BleedingDisorders a practical framework — #TILT (Type, Intensity, Location, Time) — to describe what their pain feels like, where it is & when it happens.
@ehc-news.bsky.socialPain that is named is pain that can be managed, together. That's the idea behind our new EHC guide, "I want to talk about my pain today!", launched on #WorldPatientSafetyDay today 🧵👇 #SafeCareForLife #BleedingDisorders
@ehc-news.bsky.socialRead the new EHC guide for adults with #BleedingDisorders on how to talk about pain with healthcare professionals 👉️ buff.ly/Fejz8aA
#WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
@ehc-news.bsky.socialThank you to everyone who shared their story with us. ❤️🩹 #WorldPatientSafetyDay #SafeCareForLife #BleedingDisorders #Haemophilia #VonWillebrandDisease
