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@lumanity.bsky.socialSep 28, 2026, 3:02 PM

Every voice in rare disease carries a story—and every story has the power to change things. Watch the full Voices of Rare Disease series: lumanity.com/perspectives...

#RareDisease #PatientVoice #VoicesOfRareDisease

Real voices. Real impact. Rare disease, seen clearly. Advocates. Patients. Community builders. Four extraordinary people driving change across rare disease.
@lumanity.bsky.socialSep 9, 2026, 3:01 PM

In the latest installment of our Voices of Rare Disease series, Krystyn LaBate, PhD speaks to the realities families face, where the system still falls short, and how industry, advocates, and caregivers can do better together.

Watch her story: buff.ly/1TONLmV

#RareDisease #VoicesOfRareDisease

Voices of Rare Disease: Perspectives Across the Community. Lumanity logo.
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