For World FTD Awareness Week, we’re putting a Spotlight on Researchers.
Lauren Massimo, PhD, CRNP, FAAN, shares what gives her hope about the future of frontotemporal degeneration research.
@ftdregistry.bsky.social
@ftdregistry.bsky.socialFor World FTD Awareness Week, we’re putting a Spotlight on Researchers.
Lauren Massimo, PhD, CRNP, FAAN, shares what gives her hope about the future of frontotemporal degeneration research.
@ftdregistry.bsky.socialFor World FTD Awareness Week, we’re putting a Spotlight on Participants.
FTD research cannot move forward without people who take part. Every participant adds to what we can learn.
Numbers Have Power.
@ftdregistry.bsky.socialFor World FTD Awareness Week, we’re putting a Spotlight on FTD Research.
Participants, families, researchers, clinicians, data and collaboration all help move research forward.
@ftdregistry.bsky.socialCollaboration is key to moving FTD research forward!
We joined our @theaftd.bsky.social colleagues at the FTD Research Roundtable for important conversations about the future of FTD research.
Thank you to AFTD for bringing the FTD research community together!
@ftdregistry.bsky.socialThe @theaftd.bsky.social FTD Research Roundtable continues today! FTD Disorders Registry President Penny Dacks, PhD, is participating in discussions focused on biomarker strategies for FTD clinical trials and the challenges and opportunities facing FTD research. #FTDResearch #endFTD
@ftdregistry.bsky.socialCarrie Milliard, MS, CGC, CCRC, Director of the FTD Disorders Registry, is at @theaftd.bsky.social's Research Roundtable this week, sharing how the Registry is helping build a research-ready community and move FTD research forward.
@ftdregistry.bsky.socialWhy is recruiting participants for rare disease research so challenging?
Read about the challenges of rare disease research recruitment and how we can help address them: ftdregistry.org/press/why-ra...
#endFTD #FrontotemporalDegeneration #RareDiseaseResearch #FTDResearch
@ftdregistry.bsky.socialFTD research doesn’t move forward because of one study, one researcher, or one dataset. It takes participants, families, clinicians, researchers, data, all working together.
See how the FTD Disorders Registry helps support that work.
@ftdregistry.bsky.socialBehavioral changes can be challenging for people living with FTD and those who support them.
This month’s Quick Question asks about these changes and how confident you feel managing them.
Share your perspective: ftdregistry.org/quick-questi...
@ftdregistry.bsky.socialDo you need an FTD diagnosis to join the FTD Disorders Registry? No.
The Registry is open to anyone interested in frontotemporal degeneration research, including people diagnosed, family members, care partners, healthcare providers and others.
Learn more: www.FTDRegistry.org
