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@ftdregistry.bsky.socialOct 7, 2026, 2:07 PM

The FTD Disorders Registry will be at #ISFTD this week, connecting with researchers, partner organizations, and others working to move FTD research forward.

Learn what happens at an FTD research conference and why these meetings matter: ftdregistry.org/press/what-h...

#endFTD

@lariolas.bsky.socialOct 4, 2026, 8:32 AM

FTD ei ole vain ikääntyneiden sairaus. FTD alkaa usein 40–65 vuoden iässä, jolloin moni on työelämässä, kasvattaa perhettä ja rakentaa tulevaisuuttaan.
Lähde: UEF aivotutkimusyksikkö

#endFTD #spotlightFTD
#worldftdawarenessweek #frontotemporaldementia #FTD #aivoterveys #sote #otsaohimolohkorappeuma

Lue Sirpan tarina - Muisti-lehti 2/2026
"Järkytys oli suuri, kun puolison luonne muuttui" 

Näin kertoo Itä-Suomen yliopiston (UEF) aivotutkimusyksikkö somessaan:

Toisin kuin Alzheimerin tauti, FTD ei välttämättä ilmene aluksi muistioireina.

Varhaisia merkkejä voivat olla muutokset esimerkiksi:
persoonallisuudessa tai käyttäytymisessä,
impulssikontrollissa,
suunnittelussa ja päätöksenteossa,
kielessä ja vuorovaikutuksessa,
sosiaalisessa tilannetajussa tai arjen toimintakyvyssä. 

Nämä muutokset voidaan helposti tulkita stressiksi, uupumukseksi, ihmissuhdeongelmiksi tai mielenterveyden haasteiksi. Siksi haluamme nostaa FTD:n varhaiset merkit valokeilaan. Mitä aikaisemmin ne tunnistetaan, sitä suurempi merkitys sillä voi olla. 

FTD-tietoisuusviikolla jaetaan inhimillisiä, toiveikkaita ja henkilökohtaisia tarinoita, jotka tekevät FTD:tä näkyvämmäksi ja vähentävät sairauteen liittyvää yksinäisyyden tunnetta.
@ftdregistry.bsky.socialOct 4, 2026, 12:07 AM

For World FTD Awareness Week, we’re putting a Spotlight on FTD Awareness.

Greater awareness can help people recognize frontotemporal degeneration, connect with support, and understand why research across these different diagnoses matters.

#spotlightFTD #endFTD

@curemaptftd.bsky.socialOct 3, 2026, 1:00 PM

With the help of truly amazing healthcare professionals, our team has created a Frontotemporal Dementia (FTD) Rapid Decision Tree designed as a quick reference tool for frontline workers. Available on our website: curemaptftd.org

#SpotlightFTD #EndFTD #FrontotemporalDementia #HealthcareWorkers

@pennftdc.bsky.socialOct 2, 2026, 2:30 PM

In honor of FTD Awareness Week 2026, we are putting care partners in the spotlight. From our Co-Director Lauren Massimo, PhD, CRNP, FAAN, we want recognize the support and hard work of all care partners. #spotlightFTD #endFTD

@ftdregistry.bsky.socialOct 2, 2026, 11:38 AM

For World FTD Awareness Week, we’re putting a Spotlight on Researchers.

Lauren Massimo, PhD, CRNP, FAAN, shares what gives her hope about the future of frontotemporal degeneration research.

#spotlightFTD #endFTD #WorldFTDAwarenessWeek #FTDResearch

@curemaptftd.bsky.socialOct 1, 2026, 4:01 PM

Since actor Bruce Willis's diagnosis of frontotemporal dementia (FTD) in 2023, his wife Emma Heming Willis has been a fierce advocate for greater FTD awareness. This awareness starts with frontline workers.

#SpotlightFTD #EndFTD #FrontotemporalDementia #HealthcareWorkers

@pennftdc.bsky.socialOct 1, 2026, 1:41 PM

In honor of FTD Awareness Week 2026, we are putting researchers in the spotlight. From our Co-Director Corey McMillan, PhD, we want thank those who dedicate their careers to studying FTD. #spotlightFTD #endFTD

Visit our website to get more information on FTD Awareness Week!

@ftdregistry.bsky.socialOct 1, 2026, 11:32 AM

For World FTD Awareness Week, we’re putting a Spotlight on Participants.

FTD research cannot move forward without people who take part. Every participant adds to what we can learn.

Numbers Have Power.

ftdregistry.org

#spotlightFTD #endFTD #FTDResearch

@hcluganda.bsky.socialOct 1, 2026, 11:11 AM

lnkd.in/p/eKBi9uRs #endFTD being misunderstood.

@theaftd.bsky.socialSep 30, 2026, 5:45 PM

Today, we’re putting the FTD community in the spotlight. 🩵

During World FTD Awareness Week, we’re celebrating everyone living with FTD, supporting a loved one, volunteering, advocating, and working to #endFTD.

Tag someone who has made a difference in your FTD journey.

🔗: https://bit.ly/4AnPMyY

@pennftdc.bsky.socialSep 30, 2026, 12:37 PM

In honor of FTD Awareness Week 2026, we are putting research participants in the spotlight! From the Research Staff at the Penn FTD Center, we thank all research participants for your willingness and dedication to FTD research. #spotlightFTD #endFTD

@ftdregistry.bsky.socialSep 30, 2026, 11:54 AM

For World FTD Awareness Week, we’re putting a Spotlight on FTD Research.

Participants, families, researchers, clinicians, data and collaboration all help move research forward.

ftdregistry.org/press/what-d...

#spotlightFTD #endFTD #FTDResearch

@alzheimereurope.bsky.socialSep 30, 2026, 7:17 AM

🧠This FTD Awareness Week, we're sharing a preview of our upcoming interview with Jordan and Cian Adams, The FTD Brothers. Thank you to both for speaking with us.

👉Read more about their inspiring work: theftdbrothers.com

#endFTD #spotlightFTD #WorldAlzheimersMonth

@lariolas.bsky.socialSep 29, 2026, 8:49 PM

🧪 🧬 🧫 🔬
"The Genetic Frontotemporal dementia Initiative (GENFI) is a group of research centres across Europe and Canada with expertise in familial frontotemporal dementia (FTD) and is co-ordinated by Professor Jonathan Rohrer .."

www.genfi.org

#spotlightftd #endFTD #worldftdawarenessweek

@pennftdc.bsky.socialSep 29, 2026, 2:08 PM

In honor of FTD Awareness Week 2026, we are putting clinical research staff in the spotlight! From our Assistant Director and Clinical Research Program and Operations Lead, Dahlia Kamel, MS, we want to thank all staff that work in the field of FTD research. #spotlightFTD #endFTD

@ftdregistry.bsky.socialSep 29, 2026, 12:16 PM

For World FTD Awareness Week, we’re putting a Spotlight on the FTD Disorders Registry.

Numbers Have Power. Because FTD is rare, every participant matters.

Learn more or join: www.ftdregistry.org

#spotlightFTD #endFTD

@alzheimereurope.bsky.socialSep 29, 2026, 11:19 AM

It's FTD Awareness Week!
We're proud to be a partner in @predictftd.bsky.social project on frontotemporal dementia (FTD) whose mission is to advance early & accurate diagnosis through innovative biomarkers & AI-driven tools enabling personalised care & support www.predictftd.eu
#spotlightFTD #endFTD

@lariolas.bsky.socialSep 29, 2026, 9:49 AM

🌍 28.9.–4.10.2026, vietetään maailmanlaajuista #FTD tietoisuusviikkoa.

👉 Lue Sirpan tarina: muistiliitto.fi/jarkytys-oli...

Juttu on julkaistu Muisti-lehdessä 2/2026.

#endFTD #spotlightFTD
#worldftdawarenessweek #frontotemporaldementia #aivoterveys #sote #otsaohimolohkorappeuma
#tutkimus #raha

@pennftdc.bsky.socialSep 28, 2026, 1:44 PM

In honor of FTD Awareness Week, we are putting patients in the spotlight. From our Co-Director David Irwin, MD, we want to acknowledge the determination and perseverance of patients and the inspiration you bring to providers to bring all closer to a cure. #spotlightFTD #endFTD

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