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@clin-auton-res.bsky.socialOct 15, 2026, 10:41 PM

New in Clinical Autonomic Research: an AAS- and AANEM-endorsed consensus statement on clinical autonomic testing.

“Autonomic testing is irreplaceable for clinical decision-making in certain circumstances.” — Cortez et al.

Open access 👇
#Dysautonomia #POTS

@zebrabande.bsky.socialOct 15, 2026, 7:47 PM

Mein #pots ist ausgeprägter, ich bin allgemein tachykarder.
Mein körper wechselt zwischen "zu kalt, zu warm und wieder zurück"

2 Tage ohne zusätzliche Flüssigkeit wären so die Garantie dafür; dass es an anderen Stellen kippt.
-meine "Ausreichend Empfehlung" liegt bei mind. 2,5-3,5 am tag-

@mariasoleariot.bsky.socialOct 15, 2026, 7:08 PM

"It is a new and complex condition, recognition at this level also sends an important message to patients: their symptoms are being taken seriously."
#covid #longcovid #research #pots #ME #MCSA #retinalmaculopathy #dyspnea #pulmonarydiseases and more

minervafoundation.fi/genetics-unc...

@chronicallies.bsky.socialOct 15, 2026, 5:58 PM

#CriticalAppraisal, #ChronicAllies, #PatientAdvocacy #ChronicIllness #Post-ViralIllness #MECFS #LongCovid #POTS #MCAS

@virussucks.comOct 15, 2026, 12:20 AM

#POTS diagnosis criteria:

Heart rate goes up at least 30 bpm — or 40 beats in teenagers — when they go from horizontal to standing.

Blood pressure does not drop, which would make it orthostatic hypotension.

Consistent symptoms when standing, like the aforementioned ...

#Dx
#medsky

The truth is that POTS creates a vicious cycle of sickness where one problem can exacerbate another. Blitshteyn estimates that about half of all POTS cases start with a viral infection — such as COVID-19 or mononucleosis — but other sources include concussions, pregnancy, a surgical procedure or even sustained heavy drug use. Even if someone is able to make progress toward managing their POTS or dissipating their symptoms entirely, something as simple as the common cold could set them back in their progress, triggering their symptoms once again. Generally speaking, the setback can create tougher problems for high-level athletes. “When you have to go to the office, you may go in and you may feel very tired, but you can still sit for eight hours and work potentially,” Blitshteyn said. “But if you have to run a marathon or, you know, play a big game, then the next virus can set you back.” Neither Blitshteyn or Biaggioni can directly comment on Porziņģis’ exact situation as he’s not their patient, and they both noted that POTS cases can vary from person to person. That being said, POTS has pretty stringent diagnosis criteria. First is that a person’s heart rate goes up at least 30 beats per minute — or 40 beats in teenagers — when they go from horizontal to standing. Next is that their blood pressure does not drop, which would make it orthostatic hypotension. Third is that consistent symptoms when standing, like the aforementioned fatigue, occur for a length of three months. Biaggioni noted that while there are other conditions that have symptoms which could overlap with POTS, it doesn’t rule out the syndrome. He described it as a Venn diagram situation where the patient could have both POTS and, for example, chronic fatigue syndrome. Another key element of the evaluation process is ruling out other issues that could explain the increased heart rate, but, “if you have a good physician doing a good history and a regular workup, you should be able to detect those disea
@stickmancomms.bsky.socialOct 15, 2026, 12:06 AM

I’m 90% sure I have covid. Cough, fever, sore throat, insomnia. Looks like all plans are cancelled for a bit. Heart rate is 145 if I sit. (Covid is annoying my #POTS) My eyeballs are hot.

@potssignal.bsky.socialOct 14, 2026, 2:14 PM

Ear-based vagus nerve stimulation cut perioperative anxiety from 74% to 51% vs sham in thoracoscopic lung surgery patients — about 41% lower relative risk.

Double-blind RCT also showed improved depression, pain, and sleep with no serious adverse events. (n=176) #POTS

@zencoffeebreak.comOct 14, 2026, 4:48 AM

i stopped taking all my #POTS & #LongCovid supplements and i actually feel somewhat better??

@alex.bsky.toOct 14, 2026, 2:19 AM

#POTS diagnosis anniversary what up

@nemechekprotocol.bsky.socialOct 14, 2026, 12:01 AM

Progress stopped — or reversed? Before you quit the protocol, understand what's happening. Healing isn't linear. A temporary setback often precedes a bigger leap. Here's the mechanism. #NemechekProtocol #Autism #POTS

@thorsten-runge.bsky.socialOct 13, 2026, 12:03 AM

E.T. schickt allen psychosomatisch diffamierten und misshandelten Seelen, die in Wahrheit unter #MECFS, #POTS, #MCAS u. a. leiden, eine so fette Umarmung, dass kein F dazwischenpasst.

#CATS4ME
#ZUCKERSHOT

E.T. – eine 15-jährige graue Katze, die im Schlaf virtuelle Umarmungen verteilt.
@nemechekprotocol.bsky.socialOct 13, 2026, 12:01 AM

Starting a teenager on the Nemechek Protocol is different than a younger child — higher baseline inflammation, longer compensatory period. The response looks different. Here's what families need to know. #NemechekProtocol #Autism #POTS

@alexstrachan.bsky.socialOct 12, 2026, 3:37 PM

Amboseli elephant. Mine.
(the image, that is, not the elephant)
#wildlifephotography #photography #naturelovers #amboseli #amboselinationalpark #kenya 🇰🇪 #elephantt 🐘 #elephants #naturephotography #wildlife #blueskyphotography #pots #elephantsofinstagram #photooftheday #monday #picperday

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@restthingever.bsky.socialOct 11, 2026, 3:31 PM

#MECFS #pwME #POTS #LongCovid
How do you handle changes in Atmospheric/Barometric Pressure?
How do you feel them? Do you adjust your pacing strategy on impending ‘drops’?

Graph that shows a drop in atmospheric pressure from about 1023 millibar to 1014 over 36 hours
@ravenfingers.bsky.socialOct 11, 2026, 1:49 PM

This feels relevant to #POTS

@mia-67198.bsky.socialOct 10, 2026, 1:47 PM

1 Woche Ivabradin wg #pots

Es hat Probleme im Stehen gegen meinen oft 150er Puls anzukommen, wobei selbst 120 dann ja schon echt gut ist.

Aber wenn ich danach liege merke ich wie mein Puls schneller niedriger ist & fühle mich dadurch innerlich entlastet.

Bin gespannt wie's weiter geht.

@liminal-fox.bsky.socialOct 10, 2026, 10:38 AM

Long overdue but I finally started watching Star Trek for the first time.
And honestly that salt craving tentacle monster in the first episode?
So relatable as a POTSie

#longcovid #mecfs #pots #trekkie #scifi

@barracuda-22.bsky.socialOct 10, 2026, 7:12 AM

Bamboo Hut Kitchen with Hanging Lanterns
#ai #aigenerated #digitalpainting #aiart #bamboo #lanterns #hut #kitchen #shelves #baskets #crates #pots #wooden #woven #interior #warm #light #traditional #rustic #indoor #hanging #lantern #bamboostructure #woodenfloor #earthytone #cozy #homemade #cultural

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@untonuggan.myatproto.socialOct 9, 2026, 8:21 PM

Anyway: if you've got #POTS and all the POTS treatments are only sort of helping

Or you're getting POTS symptoms at weird not-POTS-flare times (eg while laying down in a cool room)

It's very valid to check and see if you're dealing with bonus medical problems on top of the POTS