👇🏿🫶🏾
#Disability #InvisibleIllness #ChronicPain #ChronicIllness #hEDS #EhlersDanlosSyndrome #EDSSucks #CRIP
@hannemiriam.bsky.social
@ehlers-danlos.comFor example, were you diagnosed with a specific type of #EhlersDanlosSyndrome (EDS), a #hypermobilityspectrumdisorder (HSD), or were you initially told you had joint hypermobility without a diagnosis of EDS or HSD?
Has your diagnosis changed or become more specific over time?
@thezebraalliance.bsky.social"What if there was an image that summed up... wait, there is!" 👇😹
linktr.ee/thezebraalliance
#chronicillness #chronicillnessmemes #raredisease #chronicpain #invisibleillness #disability #EDS #ehlersdanlossyndrome
@thezebraalliance.bsky.social@chronicillness.bsky.social always has the best shares—from funny to compassionate 🩵🤗🩵
#chronicillness #raredisease #invisibleillness #disability #dynamicdisability #EDS #ehlersdanlossyndrome #HSD linktr.ee/thezebraalliance
@thezebraalliance.bsky.socialDo you live with Dysautonomia?
What do you want people to know about living with it?
#Dysautonomia linktr.ee/thezebraalliance #chronicillness #EDS #ehlersdanlossyndrome #hEDS #HSD
@disabilitybooks.bsky.socialWe've added new titles to our children's and young adult's Bookshelf that deal with Ehlers-Danlos Syndrome. For more information see www.disabilitybookshelf.com/invisible-di... #booksondisability #disabilitywriters #DisabilityBookshelf #disabilityissues #ehlersdanlossyndrome #invisible-disabilities
@disabilitybooks.bsky.socialWe've added new titles to our children's and young adult's Bookshelf that deal with Ehlers-Danlos Syndrome. For more information see www.disabilitybookshelf.com/invisible-di... #booksondisability #disabilitywriters #DisabilityBookshelf #disability #ehlersdanlossyndrome @bethanymangle.bsky.social
@903whpc.bsky.social📣 New Podcast! "Loss, Purpose, Legacy: Rosemarie Nania and the Mission Behind BELOvEDS" on @Spreaker #aorticdissection #athlete #athletemindset #belovedsfoundation #beyondthefinishline #collegeradio #ehlersdanlossyndrome #eliteathlete #elitemindset #familylegacy #geneticdisorder #grieftopurpose
@disabilitybooks.bsky.socialWe've added new titles to our Bookshelf that deal with Ehlers-Danlos Syndrome. For more information see www.disabilitybookshelf.com/invisible-di... #invisible-disabilities #booksondisability #disabilitywriters #DisabilityBookshelf #eds #ehlersdanlossyndrome
@alexnonymous.bsky.social #booksky
@disabilitybooks.bsky.socialWe've added new titles to our Bookshelf that deal with Ehlers-Danlos Syndrome. For more information see www.disabilitybookshelf.com/invisible-di... #invisible-disabilities #booksky #disabilitywriters #DisabilityBookshelf #eds #ehlersdanlossyndrome @laurelholl.bsky.social @brittneyarena.bsky.social
@disabilitybooks.bsky.socialWe've added new titles to our Bookshelf that deal with Ehlers-Danlos Syndrome. For more information see www.disabilitybookshelf.com/invisible-di... #disability #booksky
#booksondisability #disabilitywriters #DisabilityBookshelf #eds #ehlersdanlossyndrome @rebeccayarros.bsky.social
@thezebraalliance.bsky.socialHow would you explain the effort it takes to stay stable so that people might understand?
linktr.ee/thezebraalliance #hypermobility #EDS #hEDS #HSD #ehlersdanlossyndrome #hypermobilityspectrumdisorder #connectivetissue #raredisease
@thezebraalliance.bsky.socialThe Zebra Alliance is here you 🩵🫂🩵
linktr.ee/thezebraalliance #chronicillness #chronicpain #disability #dynamicdisability #invisibleillness #raredisease #EDS #ehlersdanlossyndrome #mentalhealth
@thezebraalliance.bsky.socialWhat is your favorite adaptive/mobility aid(s)?
Some of mine include braces, heating pads, and hiking poles.
#adaptiveaids #chronicillness #chronicpain #disability #dynamicdisability #invisibleillness #EDS #ehlersdanlossyndrome #mobilityaid
@dhsc-answers.bsky.socialA question on #EhlersDanlosSyndrome tabled by Jim Shannon on 10-09-2026 has been answered by Mr James Frith. https://questions-statements.parliament.uk/written-questions/detail/2026-09-10/28726
@thezebraalliance.bsky.socialEVERY doctor should know this: Share it far and wide 👌😀
linktr.ee/thezebraalliance (found this comment on a FB post) #EDS #ehlersdanlossyndrome #HSD #hypermobilityspectrumdisorder #connectivetissue #raredisease #chronicillness #chronicpain #disability
