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Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-16 04:27:01 EDT

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@smartpatient.bsky.socialOct 14, 2026, 6:30 PM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@healingwolf.bsky.socialOct 14, 2026, 1:01 PM

#chronicpain #anxiety #pain #panicattack #spoonie #fibromyalgia #chronicfatigue #painrelief #chronicpainwarrior #spoonielife #mindbody #mentalhealth

@smartpatient.bsky.socialOct 13, 2026, 10:30 PM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@healingwolf.bsky.socialOct 13, 2026, 9:11 PM

The Healing Odyssey Program for Empowerment (H.O.P.E.) is a journey designed to help you regulate your nervous system and reclaim your life.

Join the newsletter to get launch updates and early access at HealingWolfCoaching.com

#chronicpain #anxiety #pain #panicattack #fibromyalgia #chronicfatigue

@achronicvoice.comOct 13, 2026, 8:30 PM

"The #disease swallowed up the next 6 mths..Unlike [ #ChronicFatigue ]..it wasn’t a case of us asking & #asking for help & still being #sick. It was a clear-cut #diagnosis that our #community could see & help with.": buff.ly/u0v422N

by chronicallycrosscultural
#diagnosis #ChronicIllness #disability

@alsnewstoday.bsky.socialOct 13, 2026, 5:31 PM

Post-rest can still feel exhausting when your body doesn’t recover the way it used to.

#ChronicFatigue

@buttahflyk.bsky.socialOct 13, 2026, 5:40 AM

{Alt text: white text on black background:

in english we say "i'm tired"

but in poetry we say:

i have been
holding up
entire skies
with hand
that were only
ever meant
to hold flowers

-sophia bray
🦋
#ChronicIllness #fatigue #ChronicFatigue #SpoonieSky

@achronicvoice.comOct 12, 2026, 10:30 PM

"we’re #exhausted. Not just from the #PEM. From explaining it over & over to people who think they know better..Which, if you think about it, is rather the whole problem.": buff.ly/tydQbXg

by @darthfoo.bsky.social
#ChronicFatigue #ableism #disabled #NEisVoid #ChronicPain #ChronicallyIll

@mgnews.bsky.socialOct 12, 2026, 9:31 PM

A softer plan for bodies that shift: https://bit.ly/3ZELxh8

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue

@achronicvoice.comOct 11, 2026, 10:30 AM

"I belong to that strange strain of #humanity that spends a lot of time #horizontal. By simply rotating down that 90-degree angle, life's possibilities flounder. I become flaky, distant, & unavailable.": buff.ly/POfTiZC

by @robinboardman.com
#NEisVoid #ChronicFatigue #pwME #ChronicIllness #spoonie

@achronicvoice.comOct 9, 2026, 8:30 PM

"Then there is the #guilt that comes when we cannot keep up, when the #routines we are trying to force ourselves into, don’t work for us. These routines just become another source of pressure.": buff.ly/ezpevaz

by @beverleybutterfly.bsky.social
#ChronicPain #ChronicFatigue #disabled

@smartpatient.bsky.socialOct 9, 2026, 8:00 PM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@smartpatient.bsky.socialOct 8, 2026, 2:30 PM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@bebhinn.bsky.socialOct 8, 2026, 8:31 AM

Finally getting the coverage this disease deserves #endo #chronicfatigue #chronicpain
RTÉ News: Doctor calls for better #endometriosis care after surgery abroad www.rte.ie/news/investi...

@achronicvoice.comOct 8, 2026, 4:30 AM

"As the decline [into Haemolytic #Anemia ] had been gradual, the impact did not seem too harsh. The everyday #nausea, lack of appetite and general #malaise had become my norm without me even realising it.": buff.ly/U8i0CVz

#ChronicIllness #ChronicFatigue #NEisVoid #ChronicPain #lupus #Sjogrens

How Many Times Can You Hit Rock Bottom with Chronic Illness?
@smartpatient.bsky.socialOct 7, 2026, 1:30 PM

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

#EnergyManagement #ChronicFatigue #Spoonie

@mavnn.bonfire.mavnn.eu.ap.brid.gyOct 7, 2026, 11:51 AM

Ouch. Wondering if it's a good idea to get the flu vaccine with #ChronicFatigue and the current medical guidance seems to be "normally a good idea 'coz if you catch flu with chronic fatigue it's much more likely to kill you - but there's a none zero chance it will cause a huge relapse in all […]

@fabulousphoenixboy.bsky.socialOct 6, 2026, 6:24 PM

[?][currently awaiting assessment/diagnosis for] #ChronicFatigue #CFS #ME #POTS #hEDS #endo #endometriosis

@tomkindlon.bsky.socialOct 6, 2026, 6:16 PM

10/
What fatigue in ME/CFS feels like

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS 
"Bone crushing. Always. I mean always present. But the intensity fluctuates. But ALWAYS present. 
When other symptoms of ME/CFS worsen, so does the intensity of fatigue increase...." 
RESEARCH  i   (. SCO36942 
INFORM. INFLUENCE. INVEST.
@tomkindlon.bsky.socialOct 6, 2026, 4:56 PM

9/
Impact of fatigue in ME/CFS

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife

FATIGUE IN ME/CFS 
"ME/CFS-related fatigue is very different from ordinary tiredness. It feels like my body has an extremely limited amount of energy available, and even very small amounts of physical or mental activity can use up far more energy than they should. It can feel like my whole body is heavy, weak and drained, as though I have run out of fuel. Resting or sleeping does not 
reliably restore that energy.... 
RESEARCH UK SCO,6942 
INFORM. INFLUENCE. INVEST.
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