Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.

Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
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#chronicpain #anxiety #pain #panicattack #fibromyalgia #chronicfatigue
"The #disease swallowed up the next 6 mths..Unlike [ #ChronicFatigue ]..it wasn’t a case of us asking & #asking for help & still being #sick. It was a clear-cut #diagnosis that our #community could see & help with.": buff.ly/u0v422N
by chronicallycrosscultural
#diagnosis #ChronicIllness #disability
Post-rest can still feel exhausting when your body doesn’t recover the way it used to.
#ChronicFatigue
{Alt text: white text on black background:
in english we say "i'm tired"
but in poetry we say:
i have been
holding up
entire skies
with hand
that were only
ever meant
to hold flowers
-sophia bray
🦋
#ChronicIllness #fatigue #ChronicFatigue #SpoonieSky
"we’re #exhausted. Not just from the #PEM. From explaining it over & over to people who think they know better..Which, if you think about it, is rather the whole problem.": buff.ly/tydQbXg
by @darthfoo.bsky.social
#ChronicFatigue #ableism #disabled #NEisVoid #ChronicPain #ChronicallyIll
A softer plan for bodies that shift: https://bit.ly/3ZELxh8
#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue
"I belong to that strange strain of #humanity that spends a lot of time #horizontal. By simply rotating down that 90-degree angle, life's possibilities flounder. I become flaky, distant, & unavailable.": buff.ly/POfTiZC
by @robinboardman.com
#NEisVoid #ChronicFatigue #pwME #ChronicIllness #spoonie
"Then there is the #guilt that comes when we cannot keep up, when the #routines we are trying to force ourselves into, don’t work for us. These routines just become another source of pressure.": buff.ly/ezpevaz
by @beverleybutterfly.bsky.social
#ChronicPain #ChronicFatigue #disabled
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
Finally getting the coverage this disease deserves #endo #chronicfatigue #chronicpain
RTÉ News: Doctor calls for better #endometriosis care after surgery abroad www.rte.ie/news/investi...
"As the decline [into Haemolytic #Anemia ] had been gradual, the impact did not seem too harsh. The everyday #nausea, lack of appetite and general #malaise had become my norm without me even realising it.": buff.ly/U8i0CVz
#ChronicIllness #ChronicFatigue #NEisVoid #ChronicPain #lupus #Sjogrens
Started writing down my energy levels throughout the day. Turns out I have about a 3-hour window of good energy. Now I plan my most important tasks during that window. Small insight, big difference.
Ouch. Wondering if it's a good idea to get the flu vaccine with #ChronicFatigue and the current medical guidance seems to be "normally a good idea 'coz if you catch flu with chronic fatigue it's much more likely to kill you - but there's a none zero chance it will cause a huge relapse in all […]
[?][currently awaiting assessment/diagnosis for] #ChronicFatigue #CFS #ME #POTS #hEDS #endo #endometriosis
10/
What fatigue in ME/CFS feels like
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife
9/
Impact of fatigue in ME/CFS
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #fatigue #chronicfatigue #chronicallyfatigued #fatigued #spoonie #spoonies #spoonielife