Grilled Cheese

ExploreLog inSign up
Terms of UsePrivacy PolicyCommunity StandardsHelpGet the app

Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-15 07:54:03 EDT

Explore

PostsPeople
LatestRanked
Load more
@ace9801.bsky.socialSep 15, 2026, 8:36 PM

The constant and deliberate reframing of this mass disabling event by our systems globally is exhausting beyond belief.

#LongCOVID #PAIS #IACCIs #MEcfs #pwME

www.thegauntlet.news/p/covid-not-...

@meactnet.bsky.socialSep 15, 2026, 7:57 PM

It is definitely more complicated than I can manage in a thread here on social so please check out the article written by our Scientific Director Jaime Seltzer @exceedhergrasp1.bsky.social on our site: www.meaction.net/post/nationa...

#NIH #NIAID #PwME #MECFS #LongCovid

@tomkindlon.bsky.socialSep 15, 2026, 7:16 PM

🧵
I thought this 7-page introductory piece written by a medical doctor was very good

"Understanding ME/CFS An Introduction to a Complex Illness" (August 2026) by @drmichaelabauer.bsky.social

storage.e.jimdo.com/file/1caec72...

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
1/

"Understanding ME/CFS An Introduction to a Complex Illness" Dr. med. Michaela Bauer · August 2026 Image of a female reading a book entitled "ME/CFS Myalgic Encephalomyelitis/Chronic Fatigue Syndrome" with 5 thought bubbles showing what she is thinking about
@tomkindlon.bsky.socialSep 15, 2026, 1:10 PM

The advocacy group @nichtgenesen.bsky.social has written a 11-page rebuttal of a book chapter published in Psychotherapie.

link.springer.com/chapter/10.1...

drive.google.com/file/d/1_9Tt...

Automated translations
s4me.info/threads/chro...

s4me.info/threads/chro...

#MEcfs #PwME #CFS

1/

Germany The advocacy group NichtGenesen has written a 11-page rebuttal of a book chapter published in Psychotherapie. The chapter recommends cognitive behavioral therapy and states that some ME/CFS patients have a reproachful attitude toward healthcare providers who do not share their views. Article | Thread
@meactnet.bsky.socialSep 15, 2026, 1:00 PM

Making your plan to vote is critical! Check out AAPD - The American Association of People with Disabilities' make a plan document to help make sure you are ready: https://ow.ly/1Hzg50ZMI4Q

#DVRW #RevUp2026 is a nonpartisan movement.

#DisabilityVote #pwME #MECFS #Disability #VoteReady

A graphic with a cartoon blind person with a service dog. Title text: Be a Confident Voter. Make a Plan to Vote. Subtitle: Make your plan: bit.ly/m/REV-UP-Plan. Below the title is a bullet point list: “Make sure you are registered to vote!; Learn key dates, like election day, early voting, and mail-in voting deadlines; Choose how and when you will vote; Plan for your access needs; Learn what’s on your ballot; Know what to do if you have trouble voting.” Disability voting rights week
@mecvsvereniging.bsky.socialSep 15, 2026, 12:02 PM

4️⃣ Meer informatie over lid worden: me-cvsvereniging.nl/help-mee/lid...

Ook staat er een inkijkexemplaar op de website.

#mecvs #pwme #me #mecvsvereniging

@meassociation.org.ukSep 15, 2026, 10:46 AM

Research: MedRXiv Preprint: Seven replicated genomic associations of ME/CFS

This genome wide association study involved 1268 people with ME/CFS and healthy controls who were obtained from the UK Biobank.

Read more: https://meassociation.org.uk/7a28

#MECFS #pwME #MyalgicE #Research

@darthfoo.bsky.socialSep 15, 2026, 2:36 AM

Today has been hard. The pain is relentless, and my muscles feel like they simply don’t have anything left to give. Standing hurts. Moving hurts. Existing in my body hurts. Long COVID and ME/CFS can reduce an entire day to simply enduring it.

#LongCOVID #MECFS #PwME

@tomkindlon.bsky.socialSep 14, 2026, 11:54 PM

From Germany

Postural orthostatic tachycardia syndrome in adolescents with ME/CFS

www.frontiersin.org/journals/ped...

s4me.info/threads/post...

Screenshot from latest Science for ME weekly update

#MEcfs #POTS #PwME

Postural orthostatic tachycardia syndrome in adolescents with ME/CFS — a case control study — Leone et al Pilot. "The threshold for PoTS in the ME/CFS group was consistent, with the relative limit (at least 40 bpm increase above the supine mean HR) and the absolute limit (120 bpm) aligning." "For HC, the relative limit was 106 bpm." Article | Thread
@meactnet.bsky.socialSep 14, 2026, 11:04 PM

We’re fighting to make sure people with ME, Long COVID, and other infection-associated chronic conditions don’t fall off either cliff.

If you do not have access, full STAT article: archive.ph/SNCKL#select...

#Medicaid #pwME #MyalgicEncephalomyelitis #MECFS #longCovid

@irishmecfsassoc.bsky.socialSep 14, 2026, 9:43 PM

Informal ME/CFS social meet-up in Dublin hosted by Tom Kindlon @tomkindlon.bsky.social on Wednesday, September 30

Hopefully we’ll see some of you there
irishmecfs.org/blog/wednesd...

Carers/parents/similar welcome.

#MEcfs #PwME

Informal ME/CFS social meet up in Dublin 1:30 PM-3 PM, Wednesday, September 30 The Bell Bar & Restaurant, Dublin 15, D15 EW77 https://www.thebell.ie All welcome incl. relatives & people with long Covid Buy your own food +/or drink Register for any updates (in case cancelled - hasn't happened so far): tomkindlon@irishmecfs.org Host: Tom Kindlon Irish ME/CFS Association for Information. Support & Research logo
@meownersclub.bsky.socialSep 14, 2026, 9:29 PM

Awful

If you had MS/cancer understanding+support would be offered because everyone thinks ‘that could be me’

Today’s cartoon takes the cruelty of blaming #pwME +pushes it to extremes to highlight its absolute idiocy in blaming everything except biomedical causes of this awful illness

The cartoon series is called - Out of Patients! There are three boxes In Box One a doctor is lecturing. He is saying - “Apparently some people with #ME died trying to prove my bio-psycho-social model wrong!” In the bottom right hand corner a couple of doctors are saying “mutter mutter MH issues etc” Box 2 the doctor is leaning forward as if to bow while lecturing and saying “...so welcome to the... bio-mechanical psycho-social weather model of #ME...” In the bottom right hand corners the two doctors are saying “more categories=more wisdom etc etc” In Box 3 thr doctor is now playing a violin and saying - “Now doctors can blame kitchen equipment, cars, weather, biology, society AND the weather for chronic illness!” In the bottom right corner Simon Wessely is saying “Why do science when phantasy is so much more rewarding?” The cartoon maker is #FanningTheFlames
@mediaactivist.comSep 14, 2026, 5:46 PM

For years, #PwME have been gaslit and denied care - yet with an anarchist spirit they've largely relied on each other for resources through the internet. My op-ed for Freedom News: freedomnews.org.uk/2026/09/12/d... #MyalgicEncephalomyelitis #ME #Disability #ableism #anarchism

@minetodo.bsky.socialSep 14, 2026, 4:57 PM

New Autumn 2026 GoFundMe 💛💛💛
Please give as you are able!
Both one-time and monthly recurring gift options.
And please help get the word out by sharing with other kind souls. With gratitude, Cynthia
www.gofundme.com/f/Friends-of...
#StandByMEcfs #StillSickStillFighting #pwME #MEcfs

@tomkindlon.bsky.socialSep 14, 2026, 2:01 PM

2/

“Discussion of LP, its use of NLP, the SMILE trial, the Jason Busse LP trial was thorough and accurate.”

#LongCovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@meactnet.bsky.socialSep 14, 2026, 2:01 PM

Join us this #DisabilityVotingRightsWeek to Be an Accessible Democracy Defender.

Let’s start at the beginning. Register to vote! If you are registered, then check your registration. Both can be done via vote.org

#DisabilityVote #pwME AAPD - The American Association of People with Disabilities

Bold red and blue text spelling VOTE with a raised fist as the V, encouraging voter registration for Disability Voting Rights Week Sept. 14-18.
@tomkindlon.bsky.socialSep 14, 2026, 1:30 PM

2nd half of this podcast episode discusses Long Covid, ME/CFS, "neuro-bollocks"-treatments eg Lightning Process, weak scientific methods behind trials eg FALCON/SMILE/PACE & more.

www.conspirituality.net/episodes/326...

Haven't listened so far but saw praise for it

#MEcfs #LongCovid #PwME #CFS
1/

Conspiracy theorists have decided Novak Djokovic has long COVID — despite no evidence — because he's become an anti-vax icon courted by RFK Jr. and Dr. Oz. So we thought it was high time for a long COVID update. Derek looks at a new Boston Children's Hospital research on viral reactivation, as well as the findings of a 2026 meta-analysis pooling 200,000+ participants. Matthew surveys the Canadian LC landscape, where insurance-industry money is quietly funding McGill's Institute for Transforming Healthcare and McMaster's FALCON trial, testing the pseudoscientific "Lightning Process" on Long COVID patients, led by researcher Dr. Jason Busse, who has deep insurance-disability ties. Finally, Julian unpacks Phil Parker's Lightning Process — Ericksonian NLP dressed as neuroscience, with roots in hypnotherapy, cult techniques, and pure "neuro-bollocks."
@tomkindlon.bsky.socialSep 14, 2026, 11:37 AM

NINDS & MECFSnet - ME/CFS Exchange Webinar Series

Webinar 1: Persistence of Post-Acute Infection Symptoms: What Causes Them and Why Do They Persist?
Thursday, Oct. 8, 1 - 3 pm ET

mecfs.rti.org/news/

Register
rtiorg.zoom.us/webinar/regi...

#mecfs #cfs #pwme #longcovid