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Columnist Hollie Amadio started using her voice because she wanted to be heard. Now, she works to ensure other patients are heard, too.
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A young woman with lupus developed recurrent angioedema despite normal C1-INH levels and function, with complement activation suspected.
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The FDA granted priority review to an application for a one-time gene-editing therapy for HAE, with a decision on approval now due in March.
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The coming Jewish holiday is a time of introspection, self-evaluation, and a new beginning for columnist Natalie Sirota.
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Seven years of data support Takhzyro as a preventive therapy that reduces HAE attacks and improves disease control and quality of life.
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Columnist Natalie Sirota, who is dealing with multiple diagnoses, says her current plan is to take it easy and try to avoid known stressors.
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A once-daily oral therapy for preventing swelling attacks in hereditary angioedema is now approved in Japan for children ages 2 and older.
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The FDA has granted fast track status to onvuzosiran, an HAE therapy that blocks swelling attacks and is currently in Phase 3 testing.
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A real-world study found that preventive treatment cut monthly swelling attacks in hereditary angioedema by 84% over more than two years.
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An infant with recurrent limb and eye swelling was diagnosed with idiopathic angioedema after testing ruled out lymphedema.
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A woman who took HAE treatment Orladeyo for a brief time early in her pregnancy gave birth to a healthy child.
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