@fundaciolluita.bsky.social📢 Més de 250.000 persones podrien conviure amb #CovidPersistent a Catalunya, però només 14.000 casos consten registrats.
Cal reforçar la recerca, millorar el diagnòstic i garantir una millor atenció a les persones afectades👇
@jama.comIn this episode of #HealthyDialogue, Wes Ely, MD, MPH, discusses the efforts to define, understand, and hopefully treat long COVID.
👂 Listen to learn more: ja.ma/4iZBwWX
@meassociation.org.ukNature: Safety of cardiopulmonary exercise testing in patients with severe post-COVID-19 condition: a matched case-control study
Read more, including comment from Dr Charles Shepherd, MEA Hon. Medical Adviser, on the blog: https://meassociation.org.uk/dijw
@craziedaizee.bsky.socialsorry for a 2nd reply (and the rant)
but just to try to be useful
here is the suggested repurposed drug investigation list
(for repairing myotube guidance under #meCFS #longCovid)
@kristina-brink.eurosky.socialMijn broer lijkt veel van de klachten van #longcovid te hebben. Hij is nu 1,5 maand ziek. Al zijn tests voor covid waren wel negatief, gek genoeg.
Hebben jullie tips wat hij nu het beste kan doen om erger te voorkomen?
Het enige wat ik weet is pacing.
@longcovidnieuws.bsky.socialIn dit Goudse huiskamerrestaurant kunnen mensen die sneller overprikkeld raken wat drinken
ad.nl/gouda/in-dit-goudse-huiskamerrestaurant…
#longcovid #longcovidnieuws
@craziedaizee.bsky.social> "new clues"
no, no it's not new, it's idiots wasting funding
it's already been proven and confirmed dozens of times
even cancer these days has new immunotherapy drugs to keep people functioning for years when they would have died previously
but #meCFS? #longCovid? nada
we need new drugs funded
@shh-uk.bsky.socialYanto’s fundraiser for #SupportingHealthcareHeroesUK is still open after his amazing Cardiff Half Marathon run.
If you meant to donate, there is still time to support healthcare workers living with Long Covid:
Thank you so much for the support!
@melmecfs.bsky.socialDer VDK Nord plant einen Podcast zu unsichtbaren Symptomen in Zusammenhang mit Gutachten.
Fragen können hier eingereicht werden:
@sammiemc.bsky.social👀 this 🎥 again, 6 yrs on, brings back so much.
Children living with #LongCovid were too often overlooked & disbelieved. The consequences are still felt today, new infections continue.
We cannot give back lost childhood years, but we can learn, act & do better.
@longcovidkids.bsky.socialEvery child deserves a childhood they can participate in.
www.youtube.com/watch?v=RiIa...
#LongCovidKids #ForEveryChildhood #LongCovid #LivedExperience
@mari-19.bsky.socialThis gives hope that there might at least be a therapy for #LongCovid soon. But what about #PostVacSyndrome, where the symptoms are about the same ones??? No studies there so far, so people like me´re not treated against it at all.
@mari-19.bsky.socialOMG how horrible that kids can get #LongCovid yet.
In my case ME/CFS probably is a result of #PostVacSyndrome, I´ve never been infected, I´m quadruple-vaxxed, but the symptoms´re about the same ones.
😱😱😱
@chronicloaf.bsky.socialHop into the #ChronicLoaf stream to watch a couple episodes of #MutantX
The early 00s answer to our desire for a live action #XMen series we were never truly gonna get lol
#Criptober #Mutation #scifi #DisCo #spookyseason #ForTinu #disability #longcovid #insomnia #autism
@drinfosec.bsky.social🎯🧵by Vipin M. Vashishtha aka @vipintukur on XTwitter:
"#LongCOVID may not be one disease—but several biological phenotypes hiding under one name.
➡️ In 356 people with PASC, researchers measured 57 biomarkers across 8 biological pathways and identified six..."
@firebel.lyDrove my car to pick up the family in town today. First time I've driven since Feb. I'm still a mess. Driving a mile has worn me out as if I ran a mile in the heat. Still need to nap every day or I start to crash again but better than before. #mecfs #longcovid
@tomkindlon.bsky.socialFrom Germany
Brain-binding auto-antibodies in subjects with and without post-COVID-syndrome after SARS-CoV-2 infection
www.sciencedirect.com/science/arti...
Screenshot from latest Science for ME weekly update
@rippersspot.bsky.social#maboost #disabled account due to #longcovid