Some days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@smartpatient.bsky.social
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@angioedemanews.bsky.socialSaying no to the wrong foods can mean fewer attacks, more energy, and a body that feels just a little bit safer.
#HAE #HereditaryAngioedema #ChronicIllness #InvisibleIllness #ListenToYourBody #SpoonieLife #ChronicIllnessCommunity #PatientAdvocate #BioNews #AngioedemaNews
@smartpatient.bsky.socialThe worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.
@achronicvoice.com"When people see me out & about, it is because of hours of #preparation & days of #recovery that is hidden behind the scenes..but also why it hurts when someone insinuates, I am getting better.": buff.ly/77EURFP
by @beverleybutterfly.bsky.social
#ChronicIllness #InvisibleIllness #ableism #spoonie
@fictionwritingtips.bsky.socialBook Of The Day
Lupus, But You Don’t Look Sick: Living with an Invisible Illness in a World That Demands Proof
#Lupus #LupusAwareness #LupusWarrior #LivingWithLupus #InvisibleIllness #InvisibleDisability #YouDontLookSick #BookOfTheDay
@teawithhoneyy.bsky.social#Invisibleillness #ChronicPain Does anyone with #Adenomyosis also have a diagnosis of #endo? I feel I also have endo but the last time I spoke to my gynae about it she said I'm too young (I was 24) and made me go on the coil (which hasn't helped my pain at all). How do I get them to listen to me!?
@mgnews.bsky.socialA moment of validation: MG is real, heavy, and you’re doing your best: https://bit.ly/4rkfT4v
#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior #MGCrisis #Thymoma
@achronicvoice.com"People hurry by each other [in modern #society ]. An approaching #stranger stirs immediate apprehension. 'What do you want from me?" "What snake oil are you trying to sell?" "No, I have no spare change."": buff.ly/L774LYC
#human #InvisibleIllness #KindnessMatters #ChronicIllness #AskForHelp
@mgnews.bsky.socialPositive self-talk combats doubt and fear. What affirmations empower you? #InvisibleIllness
@smartpatient.bsky.socialThe worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@smartpatient.bsky.socialThe mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.
@smartpatient.bsky.socialThe mental load of managing a chronic condition is exhausting on its own. Appointments, medications, insurance calls, symptom tracking. It's basically a part-time job nobody signed up for.
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.
@msnewstoday.bsky.socialEvery “I’m okay” is a tiny masterpiece of self-control. #InvisibleIllness
@unveilingunicorns.bsky.socialOne nervous system, a million different stories 🧡 MS: immune system attacks nerve coverings — fatigue, numbness, vision trouble, balance issues. Invisible but real. Follow for a daily illness 🦄 #MSAwareness #InvisibleIllness 🤖 AI-assisted; do your own research
@emeraldaspects.bsky.socialThe pinned GoFundMe campaign is still active, please donate if you can, sharing ALWAYS helps. #InvisibleIllness #ChronicIllness #ChronicPain #Disabled
@michanko.bsky.socialWhat it’s really like to have chronic illness/invisible illness….
#chronicillness #invisibleillness #🦓💜
@smartpatient.bsky.socialSome days the hardest part is explaining to people why you look fine but feel terrible. You're not making it up. Your symptoms are real, your fatigue is real, and you deserve support.