@alzheimereurope.bsky.socialToday is the start of FTD Awareness Week, an annual campaign dedicated to raising awareness of frontotemporal dementia (FTD) and fostering global community engagement to #endFTD
Read more about the campaign, here: www.worldftdunited.net/awareness2026
Share posts about FTD to help #spotlightFTD
@ftdregistry.bsky.socialCollaboration is key to moving FTD research forward!
We joined our @theaftd.bsky.social colleagues at the FTD Research Roundtable for important conversations about the future of FTD research.
Thank you to AFTD for bringing the FTD research community together!
@ftdregistry.bsky.socialThe @theaftd.bsky.social FTD Research Roundtable continues today! FTD Disorders Registry President Penny Dacks, PhD, is participating in discussions focused on biomarker strategies for FTD clinical trials and the challenges and opportunities facing FTD research. #FTDResearch #endFTD
@ftdregistry.bsky.socialCarrie Milliard, MS, CGC, CCRC, Director of the FTD Disorders Registry, is at @theaftd.bsky.social's Research Roundtable this week, sharing how the Registry is helping build a research-ready community and move FTD research forward.
@ftdregistry.bsky.socialWhy is recruiting participants for rare disease research so challenging?
Read about the challenges of rare disease research recruitment and how we can help address them: ftdregistry.org/press/why-ra...
#endFTD #FrontotemporalDegeneration #RareDiseaseResearch #FTDResearch
@randee-steffen.bsky.socialStarted FTD Awareness Week early celebrating Missouri enshrining FTD Awareness Week into law! Thanks to Senator @tracymccreery.bsky.social for working so hard to making this happen. @theaftd.bsky.social #endFTD #spotlightftd @johnsteffan.bsky.social
@frontier-usyd.bsky.social“I know what I want to say… but it won’t come out.”
Meet Kathy, who lives with #PPA. She shares the challenges of finding her words, the things she enjoys and continues to do, and the support she has found through FRONTIER.
Watch Kathy’s story: youtu.be/WyHaiH8t9Sg
@ftdregistry.bsky.socialAre you participating in @theaftd.bsky.social's Walk for FTD in Des Moines today? Stop by and say hi to Quinn at the FTD Disorders Registry booth! #endFTD #WalkforFTD
@ftdregistry.bsky.socialFTD research doesn’t move forward because of one study, one researcher, or one dataset. It takes participants, families, clinicians, researchers, data, all working together.
See how the FTD Disorders Registry helps support that work.
@ftdregistry.bsky.socialBehavioral changes can be challenging for people living with FTD and those who support them.
This month’s Quick Question asks about these changes and how confident you feel managing them.
Share your perspective: ftdregistry.org/quick-questi...
@ftdregistry.bsky.socialWorld FTD Awareness Week is coming Sept 28–Oct 4.
This year, we’re putting a Spotlight on FTD and on the people, families, researchers, clinicians & advocates helping move understanding and research forward.
Learn more and get involved: www.worldftdunited.net/awareness2026
@frontier-usyd.bsky.socialNew paper by @tao-usyd.bsky.social exploring behavioural and psychological symptom determinants of carer burden in #FTLD and #AD.
link.springer.com/article/10.1...
@brainandmindcentre.bsky.social
@springer.springernature.com
@springernature.com
@muireannirish.bsky.social
@sydney.edu.au
@frontier-usyd.bsky.social#DementiaAwarenessMonth #Dementia #endFTD #YoungerOnsetDementia
@brainandmindcentre.bsky.social
@newsroomusyd.bsky.social
@sydney.edu.au
@ftdregistry.bsky.socialDo you need an FTD diagnosis to join the FTD Disorders Registry? No.
The Registry is open to anyone interested in frontotemporal degeneration research, including people diagnosed, family members, care partners, healthcare providers and others.
Learn more: www.FTDRegistry.org
