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@thewestonmale.bsky.socialOct 17, 2026, 12:25 PM

@binitakane.bsky.social
@longcovidadvoc.com
#mecfs #me/cfs #MyalgicEncephalomyelitis #LongCovid #Radio5Live

LLong Covid Advocacy@longcovidadvoc.comOct 17, 2026, 12:04 PM

📻 Full interview with @binitakane.bsky.social on BBC Radio 5 Excellent discussion on ME & Beth Dobbin that looks at: 🔹why ME has been dismissed 🔹 why it's seen as psychological 🔹 the sickest patients have no NHS care. #pwME #longcovid #medsky

@ustinoff.eurosky.socialOct 17, 2026, 11:56 AM

Eine systematische Übersicht über den Kampf der Medizin GEGEN die Patient:innen bei #mecfs .
Man glaubt es kaum, aber das Phänomen ist inzwischen gut belegt und erforscht.

@germainehypher.bsky.socialOct 17, 2026, 11:21 AM

Your condition gives you a unique perspective. Pour that into your creativity in whatever way you can, as slowly as you need to.

#chronicillness #chronicpain #mecfs #ME/CFS #invisibleillness #autoimmune #fibromyalgia #longcovid #art #CraftSky #painting #poetry #fiberarts #drawing #photograhy

A faded photo of the underside of a fern leaf against a blue sky has the following written over it: Your condition gives you a unique perspective. Pour that into your creativity in whatever way you can, as slowly as you need to. @craftingapaththroughillness
@pehpunkt.bsky.socialOct 17, 2026, 11:18 AM

ist meine geschichte langweilig?

#jederTagMECFS #MECFS #LongCovid #MEAwareness

Bleistiftzeichnung eines Zimmers mit zwei Fenstern, darin links ein Bett und rechts ein Tisch mit Stuhl. Draussen sieht man ein Haus und einen belaubten Baum, der vom Wind zerzaust wird. Einzelne Blätter fliegen durch die Luft, in der Ferne fliegen einige Vögel. Wilde Bleistiftlinien deuten Wind und Wolken an. Auf dem Bett liegt eine schlappe Person auf der Seite, wir sehen sie nur von hinten.
@mari-19.bsky.socialOct 17, 2026, 10:30 AM

en.wikipedia.org/wiki/Myalgic...
Due to the #MECFS I had to work up the important newsletters by speedposting, sorry that I didn´t copy & paste all headlines, but I did it at the end, now I´ll go offline for today.
#ByeBye to my online f(ur)riends, with 4 cute #TrashPandas.
🦝🦝🦝💖💖💖

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@funkypuffin56.bsky.socialOct 17, 2026, 9:40 AM

@toolongcovid.bsky.social
#Mecfs #LongCovid

AAdam@abrokenbattery.bsky.socialOct 17, 2026, 9:38 AM

“These are some of the sickest patients I’ve ever come across in my life.” Dr @binitakane.bsky.social talking about #MECFS and the lack of research, specialists and services on yesterday’s BBC Radio 5 Live.

@abrokenbattery.bsky.socialOct 17, 2026, 9:38 AM

“These are some of the sickest patients I’ve ever come across in my life.”

Dr @binitakane.bsky.social talking about #MECFS and the lack of research, specialists and services on yesterday’s BBC Radio 5 Live.

@dgspsoa.eurosky.socialOct 17, 2026, 7:46 AM

RKI konformer Text. Was fehlt sind Hinweise zu #PAIS und Parallelen zur wiederkehrende sinnvollen #Influenzaimpfung.

Sie sind kurz davor, es zu begreifen.

#LongCOVID
#MEcfs

@nikosuvisto.comOct 17, 2026, 6:50 AM

Insomnia 24 September 2026.

Since the Severe ME Awareness Day in August, I have been dealing with more and more insomnia. It’s brutal on top of all the other symptoms. Since taking these photographs it has only gotten worse.

#MECFS #pwME #Photography #SelfDocumentary #Insomnia

A black-and-white self-portrait of Niko, a white man with a buzzcut and facial hair, lying in bed in darkness while wearing a CPAP mask. His face is lit by the light of a phone’s screen.
@elbelbumble.bsky.socialOct 17, 2026, 6:38 AM

Brilliant but harrowing testimnony from a fellow ME Warrior. Huge hugs to her and to her sister, who's running a marathon on Sunday to raise funds for us at @meresearchuk.bsky.social to use for vital research into the biological science behind #ME #mecfs www.bbc.co.uk/sport/athlet...

@ginitaivas.bsky.socialOct 17, 2026, 5:59 AM

”Toivoisin, että kyse olisi vain väsymyksestä – se olisi lastenleikkiä”, hän sanoo. ”Se on kuitenkin paljon enemmän kuin sitä. Jos miettisin väsymystä 20 pahimman oireeni joukossa, se saattaisi juuri ja juuri päästä listalle.”

#Korona #Covid19 #LongCovid #MECFS

www.bbc.com/sport/athlet...

@chronicloaf.bsky.socialOct 17, 2026, 4:40 AM

The very first #Ghostbusters movie just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#Criptober #HauntedHouse #horror #insomnia #mecfs #DisabilityCommunity #FilmFriday #spoonies #autistic

Ghostbusters movie poster
@achronicvoice.comOct 17, 2026, 4:30 AM

"With up to 24 million people across the globe with #MECFS, is it too much to ask to see a few headlines that talk about tips & strategies for those that ‘getting enough #sleep ’ or ‘#exercising your way to #health ’ just isn’t an option?": buff.ly/uTqwNqL

by lisaalioto
#pwME #LongHauler #media

Mainstream: Can You Talk to Us About ME? (There are Enough 'Normal' Health Tips to Go Around Already)
@granejane.bsky.socialOct 17, 2026, 2:59 AM

#MEcfs #MyalgicEncephalomyelitis

TTony Britton@thewestonmale.bsky.socialOct 16, 2026, 6:53 PM

This #ME/CFS story, which ws flagged up first by BBC Sport, has got legs. Now it's been carried by celebrity website People.com people.com/olympic-spri... | Well done, Beth, and thank you. #BethDobbin

people.comOlympic Sprinter, 32, Now Bed-Bound for 22 Hours a Day After Being Diagnosed with ME: ‘Feels Like Your Body’s Shutting Down’Beth Dobbin, who represented Great Britain at the Tokyo Olympics in 2021, was diagnosed with myalgic encephalomyelitis (ME), which is described by the Cleveland Clinic as a “chronic illness that cause...
@tomkindlon.bsky.socialOct 17, 2026, 1:47 AM

[Online (Teams) & in-person (Oxford, UK)]
Conference: Latest ME Research from Prof Karl Morten and colleagues

www.eventbrite.co.uk/e/latest-me-...

I was asked to highlight this today which I'm happy to do

#MEcfs #PwME #CFS #MyalgicEncephalomyelitis #LongCovid @omegaoxon.bsky.social

Latest ME Research from Prof Karl Morten and colleagues By OMEGA and Professor Karl Morten 15 followers 2 events 1y hosting 160 total attendees Follow Anne Anderson lecture theatre, Women’s Centre Oxford, Oxfordshire Saturday 7 November • 2 PM - 4:30 PM Overview Join Prof Karl Morten and colleagues in person or online to catch the freshest insights on ME research and breakthroughs! Karl and his colleagues will share their latest research, shedding light on what’s new and promising in the field. Don't miss this chance to get updated straight from the experts and connect with others interested in ME. Patrick Esser (Oxford Brookes University) “ Something really cool : a cryotherapy trial update” Beata Godlewska ( University of Oxford) “ When the brain is challenged: energy reserves in ME/CFS” (Remote) Marna Ericson “ Stealth pathogens : Innovative imaging technologies for better diagnosis and treatment” (Remote) Aleyna Lumsden ( Rosalind Franklin Institute/University of Oxford) “Unravelling the biology and mechanisms of ME/CFS using advanced technology: an update” Inga Williams ( University of Oxford) : Title to be confirmed Maisy Higgs ( University of Oxford) : Title to be confirmed Karl Morten (University of Oxford ) “ Establishment of a centre for Post Acute Infection Syndrome (PAIS) research in Oxford: 2032”
@mari-19.bsky.socialOct 17, 2026, 1:37 AM

en.wikipedia.org/wiki/Myalgic...
Due to #MECFS I got up at 2 am, showered, washed & blow-dried my hair.
BP 121/81, body temperature 35,9°C/96,6°F, outside it cooled down to 14,9°C/58,8°F in SW Germany by about 3.40 am.
Happy early #Caturday meowing.
💖💖💖

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@longcovidanswers.bsky.socialOct 17, 2026, 12:47 AM

Why is recognizing PEM so important in Long COVID?

Post-exertional malaise (PEM) is more than ordinary fatigue. As Professor Todd Davenport explains, recognizing PEM can help clinicians understand why exercise may worsen symptoms rather than improve them.

#LongCOVID #MEcfs #PEM #LongCOVIDResearch

@bigpolarbear.bsky.socialOct 16, 2026, 10:10 PM

今日は遊具をお届けします😃

筋痛性脳脊髄炎が広く周知され、治療法が見つかりますように。

#ブルーフォトチャレンジ
#筋痛性脳脊髄炎
#笑顔の花びら集めたい
#5月12日
#mecfs
#bluephotochallenge

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@longcovidanswers.bsky.socialOct 16, 2026, 9:57 PM

Why can exertion trigger a crash in #LongCOVID and #MEcfs?

Prof Todd Davenport explains how metabolic dysfunction, including problems converting fats and sugars into energy, may contribute to post-exertional malaise (PEM).

Understanding why is key to better treatments.