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Version devBuilt at: 2026-10-13 09:58:44 EDT

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@catsocialintel.bsky.socialOct 2, 2026, 7:48 PM

A quick analysis that I’ve done previously, using just from what we know from public data…puts their earnings off the back of #pwME in the likely *billions*

Have shared the docs with George.

@irishmecfsassoc.bsky.socialOct 2, 2026, 6:51 PM

From left: Orla Ní Chomhraí, Jacinta Fay & Aoife Delany Reade at the post-show discussion panel following "What about M.E.?": 4 Short Plays About Myalgic Encephalomyelitis

More info in next post

#MEcfs #PwME #CFS

1/

From left: Orla Ní Chomhraí, Jacinta Fay & Aoife Delany Reade
@me-with-me.bsky.socialOct 2, 2026, 3:24 PM

And now the NHS just starves #pwME to death instead.

RIP Dame Esther Rantzen and thank you trying.

@ace9801.bsky.socialOct 2, 2026, 3:22 PM

Interview with George Monbiot about Guardian column on ME/CFS.

And decades later what has been repeatedly described by many as a “major medical scandal” continues.

#LongCOVID #PAIS #IACCIs #MEcfs #pwME

www.youtube.com/watch?v=Maae...

@tomkindlon.bsky.socialOct 2, 2026, 2:37 PM

Latest update from the CureME team, can be read here and covers a range of topics on current projects, recent publications and sample usage

eepurl.com/QShnc4nywr

#MyalgicEncephalomyelitisg #ChronicFatigueSyndrome #MEcfs #CFS #PwME

@stpaulsbay.bsky.socialOct 2, 2026, 1:53 PM

Yes, it is. @georgemonbiot.bsky.social should be commended for the incredible advocacy he has done for #pwME. But at the same time, I have contacted him so often begging for the opportunity to explain the peer reviewed proof that validates all of those suffering patients and their families.

@meassociation.org.ukOct 2, 2026, 1:41 PM

The American Psychological Association: The hidden harms of medical gaslighting  

Read more: https://www.apa.org/monitor/2026/10/harms-medical-gaslighting 

#pwME #MECFS #LongCovid #Fibromyalgia #Endometriosis #MedicalGaslighting

IMAGE DESCRIPTION: Photo of a woman sat in bed, with her head in her hands. 
Wording reads: The American Psychological Association: The hidden harm of medical gaslighting. 
MEA logo.
@longcovidadvoc.comOct 2, 2026, 1:26 PM

We have taken part in the Government consultation on fireworks and pyrotechnics, with the view that #pwME & Long Covid are at risk of deterioration & PEM due to the noise & sensory risk of fireworks.

Consultation closes: 7th Oct.
Details 👇
www.gov.uk/government/c...

@meassociation.org.ukOct 2, 2026, 10:38 AM

The Guardian Letters: Specialist services are vital to help people with ME/CFS 

"Readers respond to George Monbiot’s article about how those with myalgic encephalomyelitis, or chronic fatigue syndrome, have been failed by the health system" 

Read: https://tinyurl.com/4vryfy2m 

#pwME #MECFS

IMAGE DESCRIPTION: Photo of a hand writing a letter. 
Wording reads: The Guardian Letters: Specialist services are vital to help people with ME/CFS. 
MEA logo.
@katybrc.bsky.socialOct 2, 2026, 10:14 AM

Thank you Tessa, whatever decision is made, it needs to happen urgently, the longer this situation continues, the worse it gets, more #pwME go from moderate to severe #ME & more people are diagnosed with ME.
Something radical & proportionate to the problem is necessary in order for it to change

@michaelnobbs.bsky.socialOct 2, 2026, 8:18 AM

It’s a wonderfully grey day here on my hillside. Just right for a much-needed restful day.

Wishing you the same if that’s what you’re in need of.

❤️🐌

#MorningView #MECFS #pwME #Wales #CreativeHabit

@meactnet.bsky.socialOct 2, 2026, 12:00 AM

We are delighted to bring you this new campaign at the request of our amazing caregiver volunteer Denise Lopez-Majano. Denise is turning 70 and wants to help spread kindness throughout our community - 70 acts of kindness by December 7th! DETAILS: https://ow.ly/1IPH50ZTE55
#pwMe #Caregiver

Bright yellow poster promoting '70 Acts of Kindness' campaign for Denise Lopez-Majano's 70th birthday with QR code to scan. Text: In honor of her 70th birthday, Denise Lopez-Majano is launching a campaign to encourage more kindness in our community and world in a very accessible way! #70by70
@tomkindlon.bsky.socialOct 1, 2026, 6:48 PM

This is up to 223,000 views now

#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #PwME #CFS

@tomkindlon.bsky.socialOct 1, 2026, 6:40 PM

(Santa Rosa, California, USA)
"Interested in Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head?"

#MEcfs #PwME #CFS #MyE #MyalgicEncephalomyelitis #ChronicFatigueSyndrome @sunsopeningband.bsky.social


Interested in
Helping to Develop a Non-Invasive Way to Measure Blood Flow to the Head?
If you are a woman between the ages of 18-65 and you have myalgic encephalomyelitis (ME) or you are healthy, you may be eligible to participate in a study.
A Non-Invasive Way to Measure Blood Flow to the Head
If you are eligible and agree to participate in the study, you will answer three questionnaires involving more about you, your signs and symptoms, and how well you can think and pay attention.
This is a two-day test involving two different research sessions. During each session, you will do a maximal cardiopulmonary exercise test involving a stationary cycle. Before each test, you will complete a NASA Lean Test. Throughout the study, you will wear an earpiece that measures the blood going to your head.
An honorarium is available to participants.
For more information, and to participate, please contact info@workwellfoundation.org or tdavenport@pacific.edu.
Location
Workwell Foundation in Santa Rosa, California
Are you eligible?
A woman between the ages of 18-65 years Have ME
Cleared by a medical provider to complete cardiopulmonary exercise testing
If you aren't sure, a screening process is provided as part of the study
If you're unsure if you meet the requirements, call or email the study's principal investigator:
Todd E. Davenport, PT, DPT, PhD, MPH, OCS Professor
Department of Physical Therapy University of the Pacific
(209) 946-3159 tdavenport@pacific.edu
@meactnet.bsky.socialOct 1, 2026, 5:50 PM

We're excited to bring you a new art workshop on Oct. 29 at 12 PM EST. We have a Halloween theme to celebrate spooky season! One of our wonderful volunteers & #pwME, Orion Romero, will host. https://ow.ly/2zFU50ZTl4T
All you need is pencil, paper & way to join online!

#art #spoonie #MECFS

Poster for Orion's Halloween Art Workshop on October 29 at 12 PM ET, held virtually. Spooky graphics like a spider web, bat, and eerie tree. #MEaction logo at the bottom.
@jjclapton.bsky.socialOct 1, 2026, 12:47 PM

It’s release day for Haunting of a Witch! 🎉🍾

🌊Upper YA contemporary fantasy set in an English seaside town
🌈Sapphic housebound witch with a chronic illness
👻A haunted house, a violent unstable ghost, & villains who appear as friends

Ebook available everywhere (Amazon, Apple, kobo, etc)
#pwME 💙📚🌈

Graphic showing the book cover for haunting of a witch by JJ Clapton at the centre of ribbons and fireworks. The text reads: release day! Haunting of a witch by JJ Clapton. Ebook available now!
@mecvsvereniging.bsky.socialOct 1, 2026, 12:04 PM

voor €3 die we namens jou neerleggen.

#mecvs #pwme #me #mecvsvereniging #contact #erkenning

@michaelnobbs.bsky.socialOct 1, 2026, 9:11 AM

Good morning. It feels very calm by my gate this morning.

The sheep have been rather absent of late, but it was lovely to spy one at the crest of the hill as I recorded today's #MorningView. 🐑

Have a lovely day ❤️🐌

#MECFS #pwME #Wales #CreativeHabit

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