@mndoddie5.bsky.social
Our vision: a world free of MND 💙💛
@mndoddie5.bsky.socialThis Saturday, Tom Spearman will set off to run the entire length of the Thames Path (184 miles) in one go - the equivalent of 7 marathons back-to-back.
He's aiming to raise £50,000 for us, after his mum was diagnosed with MND last year.
Read Tom's story: www.myname5doddie.co.uk/news-and-sto...
@mndoddie5.bsky.socialThe full study data hasn't been released, but this announcement could add weight to the power of genetic therapies in MND subtypes, and could represent hope for future treatment approaches Once we've seen the full results from the study we'll share an update on what this means for the MND community
@mndoddie5.bsky.socialAn early announcement of results from a study of the genetic therapy ulefnersen has suggested promise for people living with FUS-MND.
Here's what we know so far: www.myname5doddie.co.uk/news-and-sto...
@mndoddie5.bsky.socialRead Andy's story here: www.myname5doddie.co.uk/news-and-sto...
@mndoddie5.bsky.socialAre you a medical professional? Our free training resource developed in partnership with The International Alliance of ALS/MND Organisations can help you recognise MND symptoms sooner, speed up referrals and support earlier diagnosis.
More details here: www.myname5doddie.co.uk/understandin...
@mndoddie5.bsky.social"I had a conversation with Dad when I was riding, in my mind. I said: I love you, and this is for you."
This year, Cammy took on 2 epic cycling challenges for MND research and in honour of his Dad, who died from MND when Cammy was just 13
Read his story: www.myname5doddie.co.uk/news-and-sto...
@mndoddie5.bsky.socialDoddie believed in bringing people together.
In our latest blog Paul, our Director of Fundraising and Engagement, shares why our community is our greatest strength, and how together we're helping to fund vital MND research.
Take a read here 👇
www.myname5doddie.co.uk/news-and-sto...
@mndoddie5.bsky.socialNick Apperley, who is living with MND, is determined not to let his diagnosis define him or prevent him from doing what he can. Nick has now raised over £100,000 for MND charities, and inspires everyone around him with his positivity💙💛
Read Nick's story here: www.myname5doddie.co.uk/news-and-sto...
