📣 #WorldMentalHealthDay: EHC launches its #MentalHealth Toolkit for the #BleedingDisorders community, built on the lived experience of 325 patients, carriers & caregivers in 27 countries. For patients, carriers, caregivers, HCPs & EHC NMOs 👉️ buff.ly/m1xyzPX

📣 Safety is at the heart of Europe's plasma-derived medicinal product supply. People who rely on #PDMPs deserve treatments that are safe, reliable, & closely monitored, from donation to use. This #IPAW2026, the EHC is highlighting the need for robust oversight. 🩸

📣 Access to plasma-derived medicinal products (#PDMPs) shouldn't depend on where you live. Yet gaps in collection, supply, & reimbursement mean unequal access across Europe. This #IPAW2026, the EHC is highlighting the need for equitable, sustainable access for all. 🩸

A heartfelt thank you to all the speakers, patients, & partners who made this year of learning and connection possible! 🙏

#UNIDOP2026 #OlderPersonsDay #LivingWellAgeingWell #BleedingDisorders

As the #LivingWellAgeingWell project comes full circle today, its resource hub (recordings, podcasts, guides, & one-pagers) remains open for the #BleedingDisorders community to explore. 👉 buff.ly/e431dLT

#UNIDOP2026 #OlderPersonsDay

Where relevant, these #LivingWellAgeingWell discussions were turned into practical guidelines & highlights that the #BleedingDisorders community can put to use directly.

Geriatricians, haematologists, physiotherapists, occupational therapists, social workers, psychologists, cardiologists, & patients all had a seat at the table, reflecting the multidisciplinary approach to care that is at the heart of EHC's work. 🤝

#LivingWellAgeingWell

🍎 Nutrition & bone health
💪 Frailty
🚶 Mobility & fall prevention
🏡 Retirement & home adaptation
❤️ Cardiovascular issues
🦴 Pain & joint management
🧠 Mental health & isolation
🤝 Relationships in later life

#LivingWellAgeingWell

Through webinars in partnership with @erneurobloodnet.bsky.social & ERN GUARD-Heart, Virtual Café Talks with healthcare professionals, & Peer Pioneer Podcasts sharing patient experiences, #LivingWellAgeingWell covers a vast range of topics: 👇

Our #LivingWellAgeingWell project — launched exactly a year ago, on this same day — has spent the past twelve months doing exactly that.

#UNIDOP2026 #OlderPersonsDay

This year's #UnitedNations theme for International #OlderPersonsDay, "The Age of Longevity: Rethinking Systems for Longer Lives," asks us to reconsider how our systems support people as they live longer.

#UNIDOP2026

📣Today marks the #InternationalDayOfOlderPersons. As people with #BleedingDisorders live longer than ever before, #HealthyAgeing has become a real & growing priority for our community. 🧵👇

#UNIDOP2026 #OlderPersonsDay

This is part of our #VWD100 campaign, marking 100 years of #VonWillebrandDisease throughout 2026. Each month, we shine a light on a different aspect of #VWD.
#beVWDaware #VWDunited #VWDtogether #BleedingDisorders #RareDisease

Awareness starts with knowledge. Consult our #VonWillebrandDisease symptom infographic and share it widely, because the sooner symptoms are recognised, the sooner people can access the care they deserve. 👉 buff.ly/cLvwLRW

Frequent nosebleeds. Easy bruising. Heavy menstrual bleeding. Prolonged bleeding after minor procedures. Symptoms are often dismissed as "normal", but for those living with #VonWillebrandDisease, they shape every aspect of daily life.

#VonWillebrandDisease (#VWD) is the most common inherited #BleedingDisorder, yet recognition remains a major challenge, even among healthcare professionals. 🩸

🎥 Catch up on our webinar on the global prevalence & ethnic diversity of #VonWillebrandDisease with Dr Omid Seidizadeh. 🤝 Co-organised with @erneurobloodnet.bsky.social & @eahad.bsky.social. ▶️ Watch now 👇️ buff.ly/b3UaKWu

🎥 Missed our #WorldPhysiotherapyDay 2026 #ThisWay webinar? Watch it now! 💪 "Ergonomics & Physiotherapy: Small Adjustments, Big Benefits" with physiotherapist Andrea Wittenbecher — practical tips for staying active with a #BleedingDisorder👇️ buff.ly/SxW2KQ7

🎉 Big news: in 2027, the #EHCLeadership Conference is evolving into the #EHCLeadershipAndInnovation Conference, merging with the New Technologies Conference into one EHC event. 👥 Open to: 1 EHC National Member Organisation leader + 1 youth rep or staff member per organisation