@pennftdc.bsky.social
The University of Pennsylvania Frontotemporal Degeneration Center
@pennftdc.bsky.socialWe understand that care management can be tough. This October, we are sharing tips to consider when starting or resuming a routine. 📍Check out our website for more information on Support & Resources
@pennftdc.bsky.socialThe Penn FTD Center joined @theaftd.bsky.social for the Walk for FTD yesterday in the Philadelphia area to provide resources and information to attendees!
📍 Check out our Support & Resources tab
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@pennftdc.bsky.socialIn honor of FTD Awareness Week 2026, we are putting care partners in the spotlight. From our Co-Director Lauren Massimo, PhD, CRNP, FAAN, we want recognize the support and hard work of all care partners. #spotlightFTD #endFTD
@pennftdc.bsky.socialIn honor of FTD Awareness Week 2026, we are putting researchers in the spotlight. From our Co-Director Corey McMillan, PhD, we want thank those who dedicate their careers to studying FTD. #spotlightFTD #endFTD
Visit our website to get more information on FTD Awareness Week!
@pennftdc.bsky.socialIn honor of FTD Awareness Week 2026, we are putting research participants in the spotlight! From the Research Staff at the Penn FTD Center, we thank all research participants for your willingness and dedication to FTD research. #spotlightFTD #endFTD
@pennftdc.bsky.socialIn honor of FTD Awareness Week 2026, we are putting clinical research staff in the spotlight! From our Assistant Director and Clinical Research Program and Operations Lead, Dahlia Kamel, MS, we want to thank all staff that work in the field of FTD research. #spotlightFTD #endFTD
@pennftdc.bsky.socialIn honor of FTD Awareness Week, we are putting patients in the spotlight. From our Co-Director David Irwin, MD, we want to acknowledge the determination and perseverance of patients and the inspiration you bring to providers to bring all closer to a cure. #spotlightFTD #endFTD
@pennftdc.bsky.socialThe Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!
@pennftdc.bsky.socialPenn and Miami researchers launch study to detect ALS and frontotemporal dementia before symptoms appear with $26 million NIH grant.
Read more about the work from Co-Director Corey McMillan, PhD in the article below!
@pennftdc.bsky.socialThe Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!
@pennftdc.bsky.social📰 Are you subscribed to the Penn FTD Center newsletter? Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
@pennftdc.bsky.socialPenn FTDC's Dahlia Kamel, MS collaborated on a paper to explore Clinical Research Coordinator's influence on the research participant experience, including training adequacy, job satisfaction, retention, and much more.
Read the paper below!
www.frontiersin.org/journals/neu...
@pennftdc.bsky.socialIn bvFTD, we found that the spatial relationship between neurodegeneration and a neurotransmitter receptor was associated with disease severity and cognition.
Read the paper from Penn FTDC's Melanie Matyi, PhD below!
@pennftdc.bsky.socialThe Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!
@pennftdc.bsky.socialCaregivers are invited to join us for Caregivers Day at ISFTD 2026 on Friday, October 9 in Philadelphia. This one-day conference features expert-led sessions on FTD care, the latest research advances, symptom management, advocacy, and more. Register now at the link in our bio!
@pennftdc.bsky.socialPenn FTD Center Staff Highlight 🌟 Mary Kate Merenich, B.S. is a Clinical Research Coordinator at the Penn FTD Center. “As a CRC, I really enjoy the breadth of responsibility I have across the entire research process.” 📍Read details on Mary Kate in our blog! Link in bio!
@pennftdc.bsky.socialThe Penn FTD Center is here for another FTD Fact Friday! And we are here to help! 📍 Check out our Support & Resources 📃 Read our monthly blog 🔎 Learn more about Observational Research or Clinical Trials Click the website link for more!
@pennftdc.bsky.socialNeuropsychologist & Assistant Professor at the Penn FTD Center Emma Rhodes was featured in an article with AlzForum to highlight her AAIC 2026 poster.
Check out the article below!
www.alzforum.org/news/confere...
