The Cincinnati O2breathe Walk is almost here! Don’t miss out on this opportunity to connect with the #PH community in Cincinnati. Spend the morning with us walking for a cure.
Register now:
buff.ly/2c2t31f
@phassociation.org
Pulmonary Hypertension Association
@phassociation.org
PHA is the oldest and largest pulmonary hypertension association dedicated to supporting patients, families and health care providers. #PHAssociation #PHA
@phassociation.org@phassociation.orgThank you to those who attended the #PHWellnessExpo in San Francisco! Our afternoon was full of education, free resources and community support. We look forward to seeing you at #PHA2028 @ucdavishealth.bsky.social @stanfordmedicine.bsky.social @ucsfhealth.bsky.social @kaiser-permanente.bsky.social
@phassociation.orgToday is Lung Transplant Awareness Day, an opportunity to recognize all who make this procedure possible and raise awareness of the transplant journey.
Today you can participate in awareness day activities and read stories from patients and healthcare professionals.
Learn more:
buff.ly/gNrIXEO
@atscommunity.bsky.socialReposted by @phassociation.orgIt's Patient Voices Wednesday! Amy Burant from @phassociation.org talks about how patients are not just looking for support in their medical treatment as they heal but also in taking on new challenges.
Hear her story, part of the 15th edition of Patient Voices: youtu.be/b1LiTlaxfDw
@phassociation.orgTune in to the latest episode of PH Insights for a discussion on PH and hereditary hemorrhagic telangiectasia.
Pulmonologist Akshay Muralidhar joins us to discuss these two conditions and the complexities that arise when they coexist.
Listen now:
buff.ly/y8bpOhA?
@phassociation.orgTomorrow only, download your free copy of the “So You Need a Lung Transplant...” guide!
This guide helps patients and families understand the lung transplant journey from start to finish. Be sure to get your copy tomorrow.
Download a copy:
buff.ly/84I6tf9
@phassociation.orgThank you to the sponsors of the San Francisco #PHWellnessExpo! We appreciate your support and dedication to the #pulmonaryhypertension community.
@phassociation.orgOctober is #LiverAwarenessMonth! We recognize the importance of liver health and raise awareness of liver-associated #PH.
People with liver disease who experience shortness of breath should talk with a specialist about being evaluated for PoPH.
Learn more:
buff.ly/phbwAG1
@phassociation.orgWe want to thank everyone who attended the Chicago and Wisconsin O2breathe Walks this weekend!
We are so grateful to everyone who spent the morning with us supporting the #PH community. These events wouldn’t have been such a success without you.
@phassociation.orgTODAY is the last day to register for the #PHWellnessExpo!
The expo will take place Saturday, Oct. 10, in San Francisco and is open to anyone affected by #PH. Bring your whole family to enjoy an afternoon of education, connection and support!
Register:
buff.ly/HOKiOex
@phassociation.orgThank you to everyone who attended the Baltimore O2breathe Walk this weekend!
The event was a great success, and we are so grateful to everyone who spent the morning with us in support of the #PH community.
@phassociation.orgMen in the #PH community can make a difference as Peer Mentors.
Share your experience, offer one-on-one support and help others feel less alone as they navigate PH. No experience is required.
Learn more:
buff.ly/b7xU2KH
@phassociation.orgBehind every lung transplant is a story of resilience, hope and strength.
On Oct. 9, Lung Transplant Awareness Day raises awareness of the transplant journey. Explore personal stories, photos and more that offer a glimpse into life before and after lung transplant.
Learn more:
buff.ly/gNrIXEO
@phassociation.orgAre you caring for a child with #PH? Join our Facebook group “Parents of Kids with PH” to engage with a community who understands.
Connect with other parents and find support, advice and tips on raising a child with PH.
Learn more:
buff.ly/7kC6s9B
@phassociation.orgPH treatment can be expensive.
If you are looking for financial assistance to help cover the cost of PH care, the Patient Advocate Foundation’s Total Assist PH Fund may be able to help. The fund can be used with any type of insurance.
Learn more:
buff.ly/65VFiwc
@phassociation.orgWe believe medical oxygen access improves when communities understand portable oxygen as a necessity, not a luxury. That is why PHA supports the Supplemental Oxygen Access Reform Act. How are you and your community advocating for access to supplemental oxygen?
@phassociation.orgToday is #WorldOxygenDay!
To support the millions of people who rely on oxygen therapy, more than 300 advocates have met with lawmakers this year to urge them to pass the SOAR Act. The legislation aims to remove barriers to accessing supplemental oxygen.
Learn more:
buff.ly/0Q4E07h
@phassociation.orgPeople with #PH face a higher risk for complications from common respiratory illnesses including the flu and COVID-19.
If you have PH, it is important to stay up to date on recommended vaccines especially as cold and flu season approaches.
Learn more:
buff.ly/QgEF3gr
@phassociation.orgThe Phoenix O2breathe Walk is just one month away! Join us Sunday, Nov. 1, at Granada Park as we walk for a cure.
This event is free and open to anyone affected by PH.
Register now:
buff.ly/0JpgFmL
@phassociation.orgMeet the chair of the PHA Board of Trustees, Mitchell Koppellman.
After discovering his family’s connection to PH, Mitch became interested in PH research. He first connected with PHA through his daughter and continues to carry out her passion for PH advocacy today.
Learn more:
buff.ly/X1ZQMFG
