Please bear in mind that the film trailer contains upsetting content and be mindful of your energy limits while watching or contributing your story.
#VerySevereME #pwME #SevereME
@meactionuk.bsky.socialMEAction UK
@meactionuk.bsky.social
Our movement fights for recognition, education, and research so that one day all people with ME (myalgic encephalomyelitis) will have access to rapid diagnosis, and compassionate, effective care.
@meactionuk.bsky.social@meactionuk.bsky.socialClips from these interviews are woven into the documentary to show what living with these illnesses is really like. If you are interesting in taking part follow the ink below.
@meactionuk.bsky.socialThe producers of a new documentary on ME/CFS and Long COVID, 'What Doesn't Kill You', are looking for people's experiences of living with these illnesses. Through an online video interview, people answer questions about their lives and experiences in their own words, from home.
@meactionuk.bsky.socialWatch David Tuller's interview with George Monbiot using the link below. Last week, George Monbiot, the British investigative journalist and longtime contributor to The Guardian, published a corker of a column about the mistreatment and abuse of people with ME/CFS, including those with Long COVID.
@meactionuk.bsky.socialPlease read and share @georgemonbiot.bsky.social column about the ongoing mistreatment of people with ME. Can we break through the wall of indifference?
@meactionuk.bsky.socialWe have heard that he has received more emails than he can read and has asked for no more.
@meactionuk.bsky.socialGeorge Monbiot has sent out a call asking 'Are any of you still being offered inappropriate (psych/GET etc) "treatments"?
Please email [email protected]
#pwME #VerySevereME
@meactionuk.bsky.socialPlease read this petition update about Karen Gordon and sign if you haven't already. Be aware that Karen is still very ill and having a hard time in hospital, so read with caution.
@meactionuk.bsky.socialThe video of the entire session is available here www.scottishparliament.tv/meeting/heal... Contributions from the Third Sector organisations begin around 11:11:29
#MyalgicEncephalomyelitis #MyalgicE #ScottishParliament
@meactionuk.bsky.socialYou can watch a clip above of #MEAction Scotland trustee, Janet Sylvester, giving her introductory remarks.
@meactionuk.bsky.social#MEAction Scotland was part of a group drawn from third sector organisations that included the Health and Social Care Alliance Scotland, the Scottish Association for Mental Health, @longcovidscot.bsky.social and the Chronic Pain Group
@meactionuk.bsky.social#MEAction Scotland was recently invited to give evidence to the Health, Care and Sport Committee at the Scottish Parliament.
The meeting, which took place on September 2nd, 2026, was designed to give the new committee an overview of key issues in the health care sector in Scotland.