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FND Portal

@fndportal.bsky.social

1.3k Following1.8k Followers

A person with Functional Neurological Disorder. News and musings on FND, disability, and brain science. Starting a Neuroscience MSc at KCL. Research contributor at various places. When we work together we can change it for the better. He/him.

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@fndireland.bsky.socialOct 9, 2026, 8:38 AMReposted by @fndportal.bsky.social

📢 Just over two weeks to go to join Charis at our first #FNDIreland Young Adult Event for those aged 18-26 living with #FND. 💚🧡

📅 Saturday 24 October 2026
⏰ 11am to 4pm
📍 Talbot Hotel, Dublin

Only 20 places remaining, scan QR code to find out more and book your ticket!
@fndportal.bsky.social

@jonstoneneuro.bsky.socialOct 5, 2026, 7:27 PMReposted by @fndportal.bsky.social

Scottish TV (STV) news item on FND on 4th Oct
zurl.co/hHaHD

STV link if you are in UK zurl.co/P6zxI

With thanks to Glasgow FND Support Circle -zurl.co/DOLwb

@fndportal.bsky.socialSep 27, 2026, 12:21 PM

Oh no sorry 😞 But glad for okay-ish! Thanks for signal-boosting her thread

@fndportal.bsky.socialSep 26, 2026, 10:01 PM

Really sorry you’re going through a bad flare right now (same here unfortunately, hanging on to function by my fingertips). Solidarity 🤝 100% agree especially about the need for a proper level of systematic research! and properly funded

@avel.kairos-research.orgSep 24, 2026, 5:10 PMReposted by @fndportal.bsky.social

Hm, better with the link: kairos-research.org/illness-trau...

@weeder.bsky.socialSep 24, 2026, 12:32 PMReposted by @fndportal.bsky.social

God, grant me the courage to change the things I can and incredible new powers to change the things I can't.

@jonstoneneuro.bsky.socialSep 13, 2026, 2:39 PMReposted by @fndportal.bsky.social

Scamvougeras and Castle express the view that FND should be framed ONLY in psychiatric terms in a new article @CogNPsychiatry
zurl.co/pSx1u

My reply explains why I think this historical - and dualistic - approach is wrong: zurl.co/OAcPN

@fndportal.bsky.socialSep 8, 2026, 9:07 PM

Hey friends! I’m going to go offline (maybe minus the odd travel photo?) for a few weeks as I move my life to the UK. FND continues to be challenging and I need to manage my energy and window of tolerance. Still excited to go though! See you on the other side 👋

@hallowedverses.bsky.socialMar 20, 2026, 3:02 AM PinnedReposted by @fndportal.bsky.social

You’ll survive but you’ll be funnier in ways that worries people

21
@fndportal.bsky.socialSep 4, 2026, 3:01 AM

Continuing to perplex everyone around me by referring to the amygdalae as “miggys”

@fndportal.bsky.socialSep 4, 2026, 2:17 AM

Legendary spot! Few do it at this level

@fndportal.bsky.socialSep 4, 2026, 12:00 AM

Pleased to share that uh… 🤔that uh… 🤨 hmm

@fndportal.bsky.socialSep 3, 2026, 4:27 PM

Fantastic! Thank you! 🥳

@elsieblundellmp.bsky.socialSep 3, 2026, 2:57 PMReposted by @fndportal.bsky.social

I know access to physiotherapy is difficult for those in my constituency with Functional Neurological Disorder (FND). Today, I raised this in Parliament and was pleased to secure a commitment from the Leader of the House, who will raise this with the Health Minister directly.

@iwriteok.bsky.socialSep 3, 2026, 5:10 AMReposted by @fndportal.bsky.social

i don't think it was chiefly or just the inconvenience, but that they couldn't buy their way out of the safety measures and restrictions everyone else faced (they actually could, but not everyone and not every restriction)

Cceej@ceej.onlineSep 3, 2026, 4:50 AM

I do think “every rich person went insane during covid because it was the first time they’ve been inconvenienced in decades” felt a little reductive at first but damn if isn’t more and more compelling as the years drag on

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@ceej.onlineSep 3, 2026, 4:50 AMReposted by @fndportal.bsky.social

I do think “every rich person went insane during covid because it was the first time they’ve been inconvenienced in decades” felt a little reductive at first but damn if isn’t more and more compelling as the years drag on

194
@fndportal.bsky.socialSep 3, 2026, 3:34 AM

Very exciting!! 👏👏

@miles-hentrup.bsky.socialSep 2, 2026, 9:58 PMReposted by @fndportal.bsky.social

My colleague @kaaho.bsky.social's new book, A Phenomenology of Functional Neurological Disorder, is now available for pre-order.

www.routledge.com/A-Phenomenol...

@davidlewisperez.bsky.socialSep 2, 2026, 8:48 PMReposted by @fndportal.bsky.social

Sharing info on @harvardmed.bsky.social course Movement Disorders: Current Concepts & Practices. Check it out for the latest in diagnosis and management, including spotlights on Parkinsonism, Huntington's disease, motor #FND, DBS & more.
learn.hms.harvard.edu/programs/mov...

@fndportal.bsky.socialSep 2, 2026, 4:12 PM

Woo congrats!

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