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@usherireland.orgSep 19, 2026, 3:28 PM

On Usher Syndrome Awareness Day we are sharing some of the realities of living with Usher syndrome from people who know it first-hand. We want to remind you we are here to listen, help, cheer & support you and your family every step of the way. đź’š

#RareDisease #UsherSyndromeAwarenessDay #Speirgorm

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