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@buttahflyk.bsky.socialOct 9, 2026, 3:54 PM

Many people with #ChronicIllness have a long list of #medications that keep us going. #TalkAboutPrescriptions Month (who knew that was a thing?) is a great reminder of why we should be talking about them all year long.
🦋
sarcoidosisnews.com/columns/crit...
#PatientExperience #sarcoidosis #SpoonieSky

@buttahflyk.bsky.socialOct 3, 2026, 11:41 PM

How would you describe your pain? Comment below!

And check out the full conversation with @Leila P.L. Valete, CHES & Deb Constien at aiarthritis.org/talkshow-ep125
🦋
#AiArthritis #arthritis #autoimmune #ChronicIllness #ChronicPain #endometriosis #fibromyalgia #migraine #RA #sarcoidosis #SpoonieSky

@buttahflyk.bsky.socialOct 1, 2026, 2:02 PM

Updated for October!
There's always something happening for the #ChronicIllness community. Here, you'll find info about upcoming #webinars, ongoing series, #support groups, and more.
🦋
floatlikeabuttahfly.blogspot.com/p/whats-happ...
#arthritis #disability #RareDisease #sarcoidosis #SpoonieSky

Bitmoji of me showing a monthly calendar filled with organization logos. Text above reads "What's on this month's Chronic Calendar?"
Includes Float Like a Buttahfly logo
@buttahflyk.bsky.socialSep 28, 2026, 2:49 PM

I was at a #sarcoidosis conference over the weekend, and a few people actually recognized me from my writing! That is such an amazing feeling!!

You know how we say "if it helps just one person, it's worth it?"

It's SO worth it!
🦋

Bitmoji of me smiling, with my hands over my heart over a background of hearts and butterflies
@sociedadsemi.bsky.socialSep 24, 2026, 9:23 AM

🩺 El diagnóstico de la sarcoidosis puede demorarse meses o años.

La Dra. Marta Dafne Cabañero abordará cómo diferenciarla de ciertas inmunodeficiencias en la XIX Reunión del GEAS-#SEMI, que se celebra hoy y mañana en Madrid.

#GEAS #Sarcoidosis #EnfermedadesAutoinmunes #MedicinaInterna #internista

@sociedadsemi.bsky.socialSep 22, 2026, 10:31 AM

Un encuentro para compartir conocimiento y debatir los retos de la práctica clínica.
🔗 Consulta el programa: https://www.geas-semi.com/

#SEMI #GEAS #MedicinaInterna #Sarcoidosis #internistas

@buttahflyk.bsky.socialSep 19, 2026, 4:20 AM

I've added a new page to my site!

There's always something happening for the #Chronicillness community. Here, you'll find info about upcoming #webinars, #podcasts, #support groups, and more.
🦋
#arthritis #sarcoidosis #PatientEducation #SpoonieSky
floatlikeabuttahfly.blogspot.com/p/whats-happ...

@buttahflyk.bsky.socialSep 18, 2026, 3:22 PM

It can seem difficult, even counterintuitive, to express gratitude during difficult times. It doesn’t mean I’m thankful for the hardship, but it's still meaningful.

That’s the focus of this week’s #Sarcoidosis News column.
🦋
#ChronicIllness #disability #gratitude
sarcoidosisnews.com/columns/refl...

@laparoscopy.bsky.socialSep 16, 2026, 7:42 AM

www.youtube.com/watch?v=Tafr...

Laparoscopic Cholecystectomy in a Female Patient with Sarcoidosis | World Laparoscopy Hospital

#LaparoscopicCholecystectomy #Sarcoidosis #DrRKMishra #WorldLaparoscopyHospital #SurgicalEducation

@tatebasildon.bsky.socialSep 11, 2026, 3:23 PM

#sarcoidosis #chronicillness

@buttahflyk.bsky.socialSep 11, 2026, 12:10 AM

To those living with #ChronicIllness:
What's the worst health/life advice you've been given?
(ex: "Just push through the pain" - we know that'll only make things worse)

*Answers may be included in my next #Sarcoidosis News column
🦋
#autoimmune #ChronicPain #disability #fatigue #SpoonieSky

@tatebasildon.bsky.socialSep 10, 2026, 11:21 PM

#sarcoidosis #chronicillness

@ancan501c3.bsky.socialSep 9, 2026, 10:00 AM

#Sarcoidosis may be a #raredisease, but that doesn't mean you're alone. Join us TONIGHT - 2nd Wednesdays at 7pm ET.
Our peer moderators know what it's like because they or their loved one lives with it. Join the meeting directly here:
https://www.gotomeet.me/ancanschmier

@buttahflyk.bsky.socialSep 8, 2026, 9:45 PM

Episode 125: When Pain Becomes Your Normal: Pain Isn’t Just One Thing @ifaiarthritis.bsky.social

Here, we talk about different types of pain, how we deal with it, and most importantly, how we talk about #ChronicPain (and why that matters).
🦋
aiarthritis.org/talkshow-ep125
#arthritis #sarcoidosis