🧬Are you a person living with a rare or ultra-rare disease, a caregiver or family member?
🫵We want your input!
📢Stay tuned for the launch of the RealiseD_ihi Patient-Centred Survey - coming soon!
@realised-ihi.bsky.social
@realised-ihi.bsky.social🧬Are you a person living with a rare or ultra-rare disease, a caregiver or family member?
🫵We want your input!
📢Stay tuned for the launch of the RealiseD_ihi Patient-Centred Survey - coming soon!
@realised-ihi.bsky.socialJust back from #ISCB2026!
🎓Three #RealiseD researchers contributed to the programme: Stefanie Schoenen, Daniel Bodden & Vanessa Ihl delivered a pre-conference course and two oral sessions on #Randomisation and #ClinicalTrials
@realised-ihi.bsky.socialLast week, at K-Channelopathies 2026 Symposium, to discuss the latest advances in #RareEpilepsies and K-channelopathies.
🗣️Ralf-Dieter Hilgers: “The meeting was a stimulation with regards to new developments”
🔗Learn about the link between #RealiseD and #RareEpilepsies: https://loom.ly/8uvU3Ms
@realised-ihi.bsky.social🔍 Did you know that six European Reference Networks (ERNs) are helping shape the future of rare disease clinical trials through RealiseD?
🔍 Learn more about ERNs and their role in the project: https://loom.ly/8uvU3Ms
#RealiseD #RareDiseases #ERNs #ClinicalTrials #HealthInnovation