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@serenas.bsky.socialOct 7, 2026, 1:23 PM

Today I'm at RARE Summit, attending remotely with coffee, notebook and pens... Are you attending in person, or remotely like me?

I've made time for this because it matters to listen and learn. I can't do the work of community building or consulting without learning from others.

#RAREsummit26

A white ridged cup of black coffee, on a black notebook, next to a white pen with Community Leadership Circles written on it. They are all on a soft grey desk with a teal wall behind
@charityeos.bsky.socialOct 7, 2026, 6:30 AM

We're at RARE Summit 2026 today!

Come and chat with us to learn more about eosinophilic diseases and to discover helpful resources.

CamRARE (Cambridge Rare Disease Network)

#RARESummit26 #EosinophilicDiseases #EoE #EosinophilicOesophagitis #EGIDs #EGPA #HES #EosinophilicAsthma

@gene2phenotype.bsky.socialOct 6, 2026, 7:41 AM

We are excited to be presenting G2P at #RAREsummit26!
Interested in knowing more about G2P work curating genomic disease-gene relationships to accelerate diagnostics, research and development of targeted therapeutics.? Come to our poster and say Hi πŸ‘‹
#RareDisease #RareConditions

@biopartner.bsky.socialSep 15, 2026, 2:13 PM

Join @camrare.bsky.social on Wednesday 7 October for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation.

πŸ“ In person or online
🎟️ www.camraredisease.org/raresummit26...

#RareDisease #RareCondition

@nf2biosolutionsuk.bsky.socialSep 10, 2026, 2:01 PM

Join CamRARE on Wednesday 7 October for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation.
πŸ“ In person or online
🎟️ Programme & tickets: www.camraredisease.org/raresummit26...
#RAREsummit26 #RareDisease

@camrare.bsky.socialSep 8, 2026, 3:27 PM

Join us on Wed 7 Oct for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation.
πŸ“ Cambridge or online
🎟️ Programme & tickets: camraredisease.org/raresummit26...
#RareDisease #RareConditions

A rare summit graphic with photos of previous summit events and title: Agenda is now available to view.
@wsuk2250.bsky.socialSep 7, 2026, 2:01 PM

Join CamRARE on Wednesday 7 October for a packed programme of talks, panels and interactive workshops at #RAREsummit26 - exploring policy, care, health data, partnerships and innovation.
πŸ“ In person or online
🎟️ www.camraredisease.org/raresummit26...
#RAREsummit26 #RareDisease #RareCondition