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Grilled Cheese is a product of Village Compute

Version devBuilt at: 2026-10-10 01:38:52 EDT

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@rarediseaseday.bsky.socialOct 1, 2026, 12:01 PM

πŸ’™ As we count down to #RareDiseaseDay, revisit our Capacity Building video series on enhancing accessibility in physical and digital spaces.

Available in 12 languages, it's packed with practical insights to help you build a more inclusive world. πŸ‘‰ https://www.rarediseaseday.org/webinars/

@erdera.bsky.socialOct 1, 2026, 7:20 AM

πŸ† Celebrate the people and initiatives making a difference in rare diseases.
Join the 15th #EURORDIS Black Pearl Awards on 24 Feb 2026, held in Brussels & online as part of #RareDiseaseDay celebrations.
πŸŽ₯ Online participation is free.
πŸ‘‰ https://loom.ly/ClRoNdc
#RareDiseases #ERDERA

@rarediseaseday.bsky.socialSep 28, 2026, 12:01 PM

πŸ’œ #Equity starts with one simple truth: not everyone begins from the same place.

Equality gives everyone the same opportunities. Equity removes barriers so everyone can achieve fair outcomes. This #RareDiseaseDay, let's turn awareness into action.

@rarediseaseday.bsky.socialSep 21, 2026, 12:00 PM

We achieved #MoreThanYouCanImagine. But we’re still imagining more. 🌍

Millions came together for #RareDiseaseDay 2026 to raise awareness and call for greater equity. Now, we’re building on that momentum for 2027.

πŸ”— See what we achieved: https://go.eurordis.org/RDDArticle

A young girl getting her face painted by a woman wearing a pink Rare Disease Day cap against a blue background with event details. With overlapping text: Rare Disease Day 2026: highlights global inequities and amplifies youth voices in call for lasting change.
@rarediseaseday.bsky.socialSep 16, 2026, 12:01 PM

🌍 Same goal: bringing #RareDiseaseDay into the classroom. Two different approaches.

Stories, games & student research
Family conversations, art & an exhibition

Our NEW case study shares how schools brought rare disease awareness to life: https://go.eurordis.org/ItStartsWithAConversation

Children smiling and embracing under text: how schools are bringing rare disease awareness to life: a new case study.
@eurordis.bsky.socialSep 11, 2026, 12:00 PM

What is #RareDiseaseDay? πŸ’™

More than a day on the calendar, it's a global movement united by one goal: EQUITY.

Equity in diagnosis, healthcare, treatment, support and opportunity for the 300+ million people living with a rare disease worldwide. Join the movement: https://go.eurordis.org/RDD

Smiling child wearing a Rare Disease Day t-shirt with colorful handprint logo on a purple and blue background. With overlapping text: what is a rare disease?
@rarediseaseday.bsky.socialSep 8, 2026, 12:36 PM

What is a rare disease?

A rare disease is a condition experienced by fewer than 1 in 2,000 people. Yet together, more than 300 million people worldwide are living with a rare disease.

Rare diseases are rare. People living with them are not.πŸ’™

#RareDiseaseDay

Two children playing barefoot in shallow ocean water under a sky with text asking 'What is a rare disease?' and a bright yellow sun illustration.