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@cureusmedical.bsky.socialOct 5, 2026, 3:25 PM

Rare cancers make up 25% to 30% of U.S. cancer diagnoses, but tools are built for common tumors. A new open-source AI pipeline matched 30% of tested sarcoma patients to a drug option for about $1.17 each.

www.cureus.com/articles/489...

#PrecisionOncology #RareCancer #Cureus

This new AI tool finds rare cancer treatments for about a dollar
@4040rec.bsky.socialOct 5, 2026, 10:10 AM

#pharma #pharmaceuticals #NICE #desmoidtumours #NICEApproval #patientaccess #Merck #NICEfinaldraftguidance #Ogsiveo #England #NHS #CancerDrugsFund #nirogacestat #targeteddrugtreatment #rarecancer #softtissuetumours #DesmoidAidUK #DeFitrial #RareTumours #innovativemedicines
zurl.co/iM0Ds

@arcportal.org.auSep 24, 2026, 12:13 AM

Congratulations to ARCP authors AProf Bryan Chan, @ProfClareScott, and Dr Cassie Turner on their publication exploring 42 years of data on sinonasal undifferentiated carcinoma (SNUC) in Queensland.

🔗 doi.org/10.1016/j.es...

#RareCancer #CancerResearch

@nordrare.bsky.socialSep 23, 2026, 3:41 PM

This #RareCancerDay, NORD is sharing findings from a survey of oncologists we conducted with @medliveofficial.bsky.social.

What we found: 1 in 2 oncologists don't feel confident recognizing a rare #cancer.

Read our full findings: bit.ly/4cXKhgn

#RareCancer #oncology

Quote about the importance of education in recognizing rare cancers and making informed treatment decisions, attributed to Katie Kowalski, Associate Director of Education at NORD. Medlive and NORD logos are displayed on a blue background.
@pheopara.bsky.socialSep 23, 2026, 11:02 AM

On #RareCancerDay, we’re raising awareness of pheochromocytoma and paraganglioma (PPGL). 💚

Share this post to help make rare cancers like PPGL more visible.

#PheoParaAlliance #PPGL #RareCancer

@pheopara.bsky.socialSep 23, 2026, 7:26 AM

On #RareCancerDay, we stand with everyone affected by rare cancers and the PPGL community working toward better answers, knowledgeable care, stronger support, and greater awareness.

Together, we can make rare more visible.

#PheoParaAlliance #PPGL #RareCancer #Pheochromocytoma #Paraganglioma

@liposarcomasupport.bsky.socialSep 11, 2026, 2:46 PM

The STC-15 (a METTL3 inhibitor) Phase 2 monotherapy trial is currently recruiting for #DDLPS patients. Learn more: clinicaltrials.gov/study/NCT069... #Liposarcoma #Sarcoma #RareCancer #METTL3Sinhibitor