@pheopara.bsky.social💚 Your time. Your voice. Your impact.
Pheo Para Alliance is looking for volunteers to support the PPGL community through Peer Navigation, advocacy & our Gratitude Team.
Interested? Join us:
zeffy.com/en-US/ticketing/volunteer-with-the-pheo-para-alliance
@pheopara.bsky.social💚 Introducing The Pheo Para Navigator, our new newsletter!
Explore updates, resources, community news, and insights for the PPGL community in our first edition.
@pheopara.bsky.socialBe a Force for Good. 💚
Jonathan Pascual turned his experience living with metastatic paraganglioma into action through JP’s Backyard Ultra.
Together, this incredible community generated $100,000+ in donations and in-kind support for the PPGL community.
@pheopara.bsky.social💚 An unforgettable evening of hope, generosity & community.
The Circle of Hope Gala brought our community together in support of Pheo Para Alliance, celebrating inspiring stories and extraordinary generosity.
Thank you to everyone who made it possible. 💚
@pheopara.bsky.social❤️ Heart Health Day
For people with functional PPGL, elevated catecholamines can affect more than blood pressure—they may also stress the heart.
Talk with your healthcare team about monitoring your cardiovascular health. ❤️
#PPGL #PheoParaAlliance #HeartHealth
@pheopara.bsky.socialOn #RareCancerDay, we’re raising awareness of pheochromocytoma and paraganglioma (PPGL). 💚
Share this post to help make rare cancers like PPGL more visible.
@pheopara.bsky.socialOn #RareCancerDay, we stand with everyone affected by rare cancers and the PPGL community working toward better answers, knowledgeable care, stronger support, and greater awareness.
Together, we can make rare more visible.
#PheoParaAlliance #PPGL #RareCancer #Pheochromocytoma #Paraganglioma
