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@pheopara.bsky.socialSep 24, 2026, 6:27 AM

πŸ’š Peer Support Meeting β€” Tomorrow!

You don’t have to navigate the PPGL journey alone. Connect with others who understand, share experiences, and find support.

πŸ•˜ 9 AM PT | 10 AM MT | 11 AM CT | 12 PM ET

πŸ”— Register through the link in our bio.

#PPGL #PeerSupport #PheoPara

@pheopara.bsky.socialSep 16, 2026, 5:10 PM

πŸ’š Join us September 24 for our Bi-Monthly Support Meetingβ€”a space for the PPGL community to connect, share experiences, and support one another.

πŸ•˜ 9 AM PT / 12 PM ET

Register:
www.zeffy.com/en-US/ticket...

#PheoPara #PPGL #YouAreNotAlone

@pheopara.bsky.socialSep 15, 2026, 1:20 PM

πŸ’š What does hope mean to you?

This Saturday at the Circle of Hope Gala, we’re creating a Pheo Para Hope Wall featuring messages from our community.

πŸ’¬ Tell us what hope means to you, and we’ll add your message to the wall.

#CircleOfHope #PheoPara #PPGL

@pheopara.bsky.socialSep 15, 2026, 11:27 AM

πŸ”¬ PPGL Scientific Forum β€” September 15, 2026

Research, progress and hope for the pheochromocytoma and paraganglioma community. πŸ’š

#PheoPara #PPGL #PPGLResearch

@pheopara.bsky.socialSep 13, 2026, 12:44 PM

πŸ’š Our Caregiver Support Meeting is tomorrow!

Join fellow caregivers for a supportive space to connect and support one another.

πŸ“… Monday, September 14

πŸ”— Register:
www.zeffy.com/en-US/ticket...

#CaregiverSupport #PheoPara #PPGL

@pheopara.bsky.socialSep 10, 2026, 10:31 AM

πŸ’š Our next Caregiver Support Meeting is Monday, September 14.

Connect with fellow caregivers, share experiences, and find support from people who understand the caregiver journey.

Register: www.zeffy.com/en-US/ticket...

#PheoPara #CaregiverSupport

@pheopara.bsky.socialSep 9, 2026, 2:48 PM

10 days until the Circle of Hope Gala! 🧑

Join the Pheo Para Alliance community in Boston on September 19 for an evening of hope, connection, and impact.

🎟️ Tickets:
www.zeffy.com/en-US/ticket...

#PheoPara #CircleOfHope #PPGL

@pheopara.bsky.socialSep 8, 2026, 5:33 PM

🏁 Missed a Pheo Para Awareness Week webinar?

The recordings are now available on demand. Catch up on educational sessions and expert resources on Pheo Para.

πŸŽ₯ Watch: pheopara.org/clinicians/v...

#PheoPara #PPGL

@pheopara.bsky.socialSep 7, 2026, 2:40 PM

You don’t have to navigate the Pheo Para journey alone. πŸ’š

Connect with the Pheo Para Alliance community for support, resources, and opportunities to get involved.

πŸ’¬ What support has meant the most to you?

Join us: www.zeffy.com/en-US/newsle...

#PheoPara #CommunityOfHope

Join the Pheo Para Community πŸ’š
@pheopara.bsky.socialSep 7, 2026, 8:43 AM

Clinical trials aren’t just a β€œlast resort.” They exist across different stages of disease.

Jonathan Pascal, NP and PPGL patient, explains clinical trial phases and how patients can explore their options.

πŸ”¬ Learn more: pheopara.org/find-clinical-trials

#PheoPara #ClinicalTrials #PPGL